Literature DB >> 26318728

The Contribution of Parent and Family Variables to the Well-Being of Youth With Arthritis.

Kathleen Knafl1, Jennifer Leeman2, Nancy L Havill2, Jamie L Crandell2, Margarete Sandelowski2.   

Abstract

Among developed countries, the reported prevalence of juvenile idiopathic arthritis (JIA) varies from 16 to 150 per 100,000. Previous reviews have identified risks faced by children with chronic conditions and indicate a relationship between parent/family characteristics and child adaptation. This analysis provides a mixed-methods synthesis of 29 research reports addressing the intersection of family life and JIA. Data were extracted using a structured template, and effect sizes were calculated for reported relationships between variables. Results were coded using a scheme that differentiated types of family factors. Meta-analysis revealed a moderately strong positive relationship between parent and child psychological functioning, and a medium negative relationship between family conflict and child psychosocial well-being, and parental depression and child physical functioning. Thematic analysis of qualitative results identified parenting challenges related to pain management and regimen demands. Results indicate that interventions to enhance parenting competence and family relationships may improve caregiver and patient outcomes.
© The Author(s) 2015.

Entities:  

Keywords:  child well-being; family; juvenile idiopathic arthritis; synthesis research

Mesh:

Year:  2015        PMID: 26318728     DOI: 10.1177/1074840715601475

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  5 in total

1.  Struggling in the Dark to Help My Child: Parents' Experience in Caring for a Young Child with Juvenile Idiopathic Arthritis.

Authors:  Weichao Yuwen; Frances M Lewis; Amy J Walker; Teresa M Ward
Journal:  J Pediatr Nurs       Date:  2017-08-01       Impact factor: 2.145

2.  Living with Juvenile Idiopathic Arthritis: Parent and Physician Perspectives.

Authors:  Shelly Heath-Watson; Sangeeta Sule
Journal:  Rheumatol Ther       Date:  2018-02-26

3.  Factors associated with care- and health-related quality of life of caregivers of children with juvenile idiopathic arthritis.

Authors:  Luiza R Grazziotin; Gillian Currie; Marinka Twilt; Maarten J IJzerman; Michelle M A Kip; Hendrik Koffijberg; Gouke Bonsel; Susanne M Benseler; Joost F Swart; Sebastiaan J Vastert; Nico M Wulffraat; Rae S M Yeung; Wineke Armbrust; J Merlijn van den Berg; Deborah A Marshall
Journal:  Pediatr Rheumatol Online J       Date:  2022-07-23       Impact factor: 3.413

4.  Comparing parental distress and children's difficulties between parents of children with rheumatic diseases and parents of healthy children in families facing the COVID-19 pandemic.

Authors:  Sonia M Bramanti; Valerio Manippa; Alessandra Babore; Anna Dilillo; Alessia Marcellino; Vanessa Martucci; Saverio Mallardo; Sara Isoldi; Silvia Bloise; Mariateresa Sanseviero; Donatella Iorfida; Enrica De Luca; Carmen Trumello; Francesca D'Alleva; Flavia Ventriglia; Riccardo Lubrano; Emanuela Del Giudice
Journal:  Curr Psychol       Date:  2022-08-06

Review 5.  Caregiving Role and Psychosocial and Individual Factors: A Systematic Review.

Authors:  Elena Cejalvo; Manuel Martí-Vilar; César Merino-Soto; Marivel Teresa Aguirre-Morales
Journal:  Healthcare (Basel)       Date:  2021-12-07
  5 in total

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