Literature DB >> 26317801

Clergy Views on a Good Versus a Poor Death: Ministry to the Terminally Ill.

Virginia T LeBaron1, Amanda Cooke2, Jonathan Resmini3, Alexander Garinther4, Vinca Chow5, Rebecca Quiñones6, Sarah Noveroske6, Andrew Baccari7, Patrick T Smith8, John Peteet6, Tracy A Balboni6, Michael J Balboni6.   

Abstract

BACKGROUND: Clergy are often important sources of guidance for patients and family members making medical decisions at the end-of-life (EOL). Previous research revealed spiritual support by religious communities led to more aggressive care at the EOL, particularly among minority patients. Understanding this phenomenon is important to help address disparities in EOL care.
OBJECTIVE: The study objective was to explore and describe clergy perspectives regarding "good" versus "poor" death within the participant's spiritual tradition.
METHODS: This was a qualitative, descriptive study. Community clergy from various spiritual backgrounds, geographical locations within the United States, and races/ethnicities were recruited. Participants included 35 clergy who participated in one-on-one interviews (N = 14) and two focus groups (N = 21). Semistructured interviews explored clergy viewpoints on factors related to a "good death." Principles of grounded theory were used to identify a final set of themes and subthemes.
RESULTS: A good death was characterized by wholeness and certainty and emphasized being in relationship with God. Conversely, a "poor death" was characterized by separation, doubt, and isolation. Clergy identified four primary determinants of good versus poor death: dignity, preparedness, physical suffering, and community. Participants expressed appreciation for contextual factors that affect the death experience; some described a "middle death," or one that integrates both positive and negative elements. Location of death was not viewed as a significant contributing factor.
CONCLUSIONS: Understanding clergy perspectives regarding quality of death can provide important insights to help improve EOL care, particularly for patients highly engaged with faith communities. These findings can inform initiatives to foster productive relationships between clergy, clinicians, and congregants and reduce health disparities.

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Year:  2015        PMID: 26317801      PMCID: PMC4842946          DOI: 10.1089/jpm.2015.0176

Source DB:  PubMed          Journal:  J Palliat Med        ISSN: 1557-7740            Impact factor:   2.947


  20 in total

1.  Barriers to optimum end-of-life care for minority patients.

Authors:  Eric L Krakauer; Christopher Crenner; Ken Fox
Journal:  J Am Geriatr Soc       Date:  2002-01       Impact factor: 5.562

2.  Spiritual care at the end of life. Some clergy lack training in end-of-life care.

Authors:  Kaye Norris; Gretchen Strohmaier; Charles Asp; Ira Byock
Journal:  Health Prog       Date:  2004 Jul-Aug

3.  Providing a "good death": critical care nurses' suggestions for improving end-of-life care.

Authors:  Renea L Beckstrand; Lynn Clark Callister; Karin T Kirchhoff
Journal:  Am J Crit Care       Date:  2006-01       Impact factor: 2.228

Review 4.  Factors influencing death at home in terminally ill patients with cancer: systematic review.

Authors:  Barbara Gomes; Irene J Higginson
Journal:  BMJ       Date:  2006-02-08

Review 5.  Church and spirituality in the lives of the African American community.

Authors:  Joyce Newman Giger; Susan J Appel; Ruth Davidhizar; Claudia Davis
Journal:  J Transcult Nurs       Date:  2008-07-23       Impact factor: 1.959

6.  How well trained are clergy in care of the dying patient and bereavement support?

Authors:  Mari Lloyd Williams; Mark Cobb; Chris Shiels; Fiona Taylor
Journal:  J Pain Symptom Manage       Date:  2006-07       Impact factor: 3.612

7.  Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life.

Authors:  Tracy A Balboni; Lauren C Vanderwerker; Susan D Block; M Elizabeth Paulk; Christopher S Lathan; John R Peteet; Holly G Prigerson
Journal:  J Clin Oncol       Date:  2007-02-10       Impact factor: 44.544

8.  Religious coping and use of intensive life-prolonging care near death in patients with advanced cancer.

Authors:  Andrea C Phelps; Paul K Maciejewski; Matthew Nilsson; Tracy A Balboni; Alexi A Wright; M Elizabeth Paulk; Elizabeth Trice; Deborah Schrag; John R Peteet; Susan D Block; Holly G Prigerson
Journal:  JAMA       Date:  2009-03-18       Impact factor: 56.272

Review 9.  Racial, cultural, and ethnic factors influencing end-of-life care.

Authors:  LaVera M Crawley
Journal:  J Palliat Med       Date:  2005       Impact factor: 2.947

10.  Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment.

Authors:  Alexi A Wright; Baohui Zhang; Alaka Ray; Jennifer W Mack; Elizabeth Trice; Tracy Balboni; Susan L Mitchell; Vicki A Jackson; Susan D Block; Paul K Maciejewski; Holly G Prigerson
Journal:  JAMA       Date:  2008-10-08       Impact factor: 56.272

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  8 in total

1.  U.S. Clergy Religious Values and Relationships to End-of-Life Discussions and Care.

Authors:  Michael J Balboni; Adam Sullivan; Andrea C Enzinger; Patrick T Smith; Christine Mitchell; John R Peteet; James A Tulsky; Tyler VanderWeele; Tracy A Balboni
Journal:  J Pain Symptom Manage       Date:  2017-02-06       Impact factor: 3.612

Review 2.  Defining a Good Death (Successful Dying): Literature Review and a Call for Research and Public Dialogue.

Authors:  Emily A Meier; Jarred V Gallegos; Lori P Montross Thomas; Colin A Depp; Scott A Irwin; Dilip V Jeste
Journal:  Am J Geriatr Psychiatry       Date:  2016-01-22       Impact factor: 4.105

3.  Training Community Clergy in Serious Illness: Balancing Faith and Medicine.

Authors:  Sarah E Koss; Ross Weissman; Vinca Chow; Patrick T Smith; Bethany Slack; Vitaliy Voytenko; Tracy A Balboni; Michael J Balboni
Journal:  J Relig Health       Date:  2018-08

4.  Seeking and Accepting: U.S. Clergy Theological and Moral Perspectives Informing Decision Making at the End of Life.

Authors:  Justin J Sanders; Vinca Chow; Andrea C Enzinger; Tai-Chung Lam; Patrick T Smith; Rebecca Quiñones; Andrew Baccari; Sarah Philbrick; Gloria White-Hammond; John Peteet; Tracy A Balboni; Michael J Balboni
Journal:  J Palliat Med       Date:  2017-04-07       Impact factor: 2.947

5.  The Views of Clergy Regarding Ethical Controversies in Care at the End of Life.

Authors:  Michael J Balboni; Adam Sullivan; Patrick T Smith; Danish Zaidi; Christine Mitchell; James A Tulsky; Daniel P Sulmasy; Tyler J VanderWeele; Tracy A Balboni
Journal:  J Pain Symptom Manage       Date:  2017-08-15       Impact factor: 5.576

6.  Elements of healthy death: a thematic analysis.

Authors:  Fatemeh Estebsari; Mohammad Hossein Taghdisi; Davood Mostafaei; Zahra Rahimi
Journal:  Med J Islam Repub Iran       Date:  2017-03-23

7.  A Roadmap for conducting psychosocial research in epidemiological studies: perspectives of cohort study principal investigators.

Authors:  M Austin Argentieri; Bobak Seddighzadeh; Sarah Noveroske Philbrick; Tracy Balboni; Alexandra Shields
Journal:  BMJ Open       Date:  2020-07-28       Impact factor: 2.692

8.  Building towards common psychosocial measures in U.S. cohort studies: principal investigators' views regarding the role of religiosity and spirituality in human health.

Authors:  Alexandra E Shields; Tracy A Balboni
Journal:  BMC Public Health       Date:  2020-06-22       Impact factor: 3.295

  8 in total

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