Literature DB >> 26290540

Chronic Disease Self-Management by People With HIV.

Karalyn McDonald1, Sean Slavin2, Marian K Pitts3, Julian H Elliott4.   

Abstract

As HIV has transitioned into a chronic disease, reappraisal of clinical management has occurred with chronic disease self-management (CDSM) as one possibility. However, despite extensive work on CDSM across a range of diseases, little attention has focused on psychosocial contexts of the lives of people for whom programs are intended. This article reports semi-structured interviews used to explore health practices and motivations of 33 people with HIV (PWHIV) in Australia. Within participants' accounts, different forms of subjectivity and agency emerged with implications for how they understood and valued health-related behaviors. Four themes arose: health support and disclosure, social support and stigma, employment/structure, and health decisions beyond HIV. The experience of stigma and its intersection with CDSM remains relatively un-chartered. This study found stigma shapes agency and engagement with health. Decisions concerning health behaviors are often driven by perceived social and emotional benefit embedded in concerns of disclosure and stigma.
© The Author(s) 2015.

Entities:  

Keywords:  Australia; HIV/AIDS; chronic; illness and disease; self-care; semi-structured interviews; stigma

Mesh:

Year:  2015        PMID: 26290540     DOI: 10.1177/1049732315600415

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  10 in total

1.  The prevalence and patterns of substance use by birth cohort among HIV-positive adults in Florida.

Authors:  Zachary L Mannes; Vaughn E Bryant; Larry E Burrell; Huiyin Lu; Erin G Ferguson; Zhi Zhou; Robert L Cook; Nicole Ennis
Journal:  Aging Ment Health       Date:  2018-02-13       Impact factor: 3.658

2.  Sexual Debut and HIV-Related Sexual Risk-Taking by Birth Cohort Among Men Who Have Sex with Men in the United States.

Authors:  Kimberly M Nelson; Kristi E Gamarel; David W Pantalone; Michael P Carey; Jane M Simoni
Journal:  AIDS Behav       Date:  2016-10

3.  A descriptive, cross-sectional study examining treatment burden in people living with HIV.

Authors:  Nathanial Schreiner; Joseph Perazzo; Jackson Currie; Barbra Daly; Allison Webel
Journal:  Appl Nurs Res       Date:  2019-02-13       Impact factor: 2.257

4.  "They're all struggling as well": social and economic barriers and facilitators to self-managing chronic illness among marginalized people who use drugs.

Authors:  Lisa M Boucher; Esther S Shoemaker; Clare E Liddy; Lynne Leonard; Paul A MacPherson; Justin Presseau; Alana Martin; Dave Pineau; Christine Lalonde; Nic Diliso; Terry Lafleche; Michael Fitzgerald; Claire E Kendall
Journal:  Int J Qual Stud Health Well-being       Date:  2022-12

5.  Common elements and features of a mobile-based self-management system for people living with HIV.

Authors:  Esmaeil Mehraeen; Reza Safdari; SeyedAhmad SeyedAlinaghi; Niloofar Mohammadzadeh; Minoo Mohraz
Journal:  Electron Physician       Date:  2018-04-25

6.  The systematic development of a complex intervention: HealthMap, an online self-management support program for people with HIV.

Authors:  Tanya Millard; Sarity Dodson; Karalyn McDonald; Karen M Klassen; Richard H Osborne; Malcolm W Battersby; Christopher K Fairley; Julian H Elliott
Journal:  BMC Infect Dis       Date:  2018-12-04       Impact factor: 3.090

7.  Supporting choices about HIV disclosure in the workplace: A cross-Canada survey of strategies.

Authors:  Gayle Restall; Alexandria Simms; Emily Etcheverry; Kerstin Roger; Dawn James; Pumulo Roddy; Wendy Porch; Jeff Potts; Dave Skitch; Tammy Yates
Journal:  Work       Date:  2019

8.  Exploring Self-Management of Adults Living with HIV on Antiretroviral Therapy in North-West Ethiopia: Qualitative Study.

Authors:  Habtamu Areri; Amy Marshall; Gillian Harvey
Journal:  HIV AIDS (Auckl)       Date:  2020-11-30

9.  The chronic disease Self-Management Programme: A phenomenological study for empowering vulnerable patients with chronic diseases included in the EFFICHRONIC project.

Authors:  Dallal Fracso; Gérard Bourrel; Christian Jorgensen; Hélène Fanton; Hein Raat; Alberto Pilotto; Graham Baker; Marta M Pisano; Rosanna Ferreira; Verushka Valsecchi; Yves-Marie Pers; Agnes Oude Engberink
Journal:  Health Expect       Date:  2022-01-10       Impact factor: 3.318

10.  "A fog that impacts everything": a qualitative study of health-related quality of life in people living with HIV who have cognitive impairment.

Authors:  Kate Alford; Stephanie Daley; Sube Banerjee; Elizabeth Hamlyn; Daniel Trotman; Jaime H Vera
Journal:  Qual Life Res       Date:  2022-05-17       Impact factor: 3.440

  10 in total

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