C Harrington1, M Bedford2, K Andritschke3, A Barrie4, P Elfvinge5, S Grønhaug6, E Mueller-Kagi7, B Leenders8, L H Schrijvers9. 1. The Katharine Dormandy Haemophilia Centre & Thrombosis Unit, Royal Free London NHS Foundation Trust, London, UK. 2. Canterbury Christ Church University, Kent, UK. 3. Haemophilia Centre Rhine Main, Frankfurt-Moerfelden, Germany. 4. Haemophilia Centre, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK. 5. Coagulation Unit, Karolinska University Hospital, Stockholm, Sweden. 6. Centre for Rare Disorders, Department of Rare Disorders and Disabilities, Oslo University Hospital, Rikshopitalet, Norway. 7. Haemophilia treatment centre, University Children's Hospital, Zurich, Switzerland. 8. The Children's University Hospital, Brussels, Belgium. 9. Van Creveldkliniek, University Medical Center Utrecht, Utrecht, the Netherlands.
Abstract
INTRODUCTION: Currently, there is no consensus on education required to develop haemophilia nursing. The aim was to develop a curriculum for haemophilia nurses that could be used as a resource in Europe. This could form a basis for continuous professional development and used in the preparation of specialized educational programmes. METHODS: The EAHAD nurses working group set out to describe the skills and knowledge needed for a nurse to work in this specialty. This was considered at two levels: basic requirements and at a more advanced level. The working group acted as a focus group for this project drawing on existing specialist training, national role definitions, competencies and results of the EAHAD Nurses survey (2012). A template was populated with the knowledge base and the skills required. RESULTS: Themes were analysed and information generated organized into domains: content of curriculum; learning outcomes, defined in terms of knowledge, skills, behaviour and attitudes; and suggestions for teaching methods. For curriculum content the following domains were identified: Applied biological science; treatment and management of haemophilia and associated disorders; genetic practice; care management of affected carriers and women; the impact of living with bleeding disorders; evidence base and applied research in haemophilia practice; and, the specialist role of the haemophilia nurse. Examples are given for teaching and learning process. CONCLUSION: This curriculum is intended for use as a strategic resource to outline education for the haemophilia nurse and contribute to the standardization and benchmarking of haemophilia nursing care and thus to improvement in the quality of patient care.
INTRODUCTION: Currently, there is no consensus on education required to develop haemophilia nursing. The aim was to develop a curriculum for haemophilia nurses that could be used as a resource in Europe. This could form a basis for continuous professional development and used in the preparation of specialized educational programmes. METHODS: The EAHAD nurses working group set out to describe the skills and knowledge needed for a nurse to work in this specialty. This was considered at two levels: basic requirements and at a more advanced level. The working group acted as a focus group for this project drawing on existing specialist training, national role definitions, competencies and results of the EAHAD Nurses survey (2012). A template was populated with the knowledge base and the skills required. RESULTS: Themes were analysed and information generated organized into domains: content of curriculum; learning outcomes, defined in terms of knowledge, skills, behaviour and attitudes; and suggestions for teaching methods. For curriculum content the following domains were identified: Applied biological science; treatment and management of haemophilia and associated disorders; genetic practice; care management of affected carriers and women; the impact of living with bleeding disorders; evidence base and applied research in haemophilia practice; and, the specialist role of the haemophilia nurse. Examples are given for teaching and learning process. CONCLUSION: This curriculum is intended for use as a strategic resource to outline education for the haemophilia nurse and contribute to the standardization and benchmarking of haemophilia nursing care and thus to improvement in the quality of patient care.
Authors: P L F Giangrande; C Hermans; B O'Mahony; P de Kleijn; M Bedford; A Batorova; J Blatný; K Jansone Journal: Orphanet J Rare Dis Date: 2018-04-27 Impact factor: 4.123
Authors: Patrice Lazure; James Munn; Sara Labbé; Suzanne Murray; Regina Butler; Kate Khair; Angela Lambing; Maura Malone; Thomas Reiser; Fiona Newall Journal: Res Pract Thromb Haemost Date: 2018-11-01