Jane R Schubart1, Michael J Green2, Lauren J Van Scoy3, Erik Lehman4, Elana Farace4, Niraj J Gusani5, Benjamin H Levi6. 1. 1 Departments of Surgery and Public Health Sciences, The Pennsylvania State University , College of Medicine, Hershey, Pennsylvania. 2. 2 Department of Humanities, The Pennsylvania State University , College of Medicine, Hershey, Pennsylvania. 3. 3 Department of Medicine, The Pennsylvania State University , College of Medicine, Hershey, Pennsylvania. 4. 4 Department of Public Health Sciences, The Pennsylvania State University , College of Medicine, Hershey, Pennsylvania. 5. 5 Department of Surgery, The Pennsylvania State University , College of Medicine, Hershey, Pennsylvania. 6. 6 Department of Pediatrics and Humanities, The Pennsylvania State University , College of Medicine, Hershey, Pennsylvania.
Abstract
BACKGROUND: People with cancer face complex medical decisions, including whether to receive life-sustaining treatments at the end of life. It is not unusual for clinicians to make assumptions about patients' wishes based on whether they had previously chosen to pursue curative treatment. OBJECTIVE: We hypothesized that cancer patients who initially underwent curative intent surgery (CIS) would prefer more aggressive end-of-life treatments compared to patients whose treatment was noncurative intent (non-CIT). METHODS: This study was a retrospective review of data from a large, randomized controlled trial examining the use of an online decision aid for advance care planning, "Making Your Wishes Known" (MYWK), with patients who had advanced cancer. We reviewed patients' medical records to determine which patients underwent CIS versus non-CIT. In the parent trial, conducted at an academic medical center (2007-2012), 200 patients were enrolled with stage IV malignancy or other poor prognosis cancer. Patients' preferences for aggressive treatment were measured in two ways: using patient-selected General Wishes statements generated by the decision aid and patient-selected wishes for specific treatments under various hypothetical clinical scenarios (Specific Wishes). RESULTS: We evaluated 79 patients. Of these, 48 had undergone initial CIS and 31 had non-CIT. Cancer patients who initially underwent CIS did not prefer more aggressive end-of-life treatments compared to patients whose treatment was non-CIT. CONCLUSIONS: Clinicians should avoid assumptions about patients' preferences for life-sustaining treatment based on their prior choices for aggressive treatment.
BACKGROUND:People with cancer face complex medical decisions, including whether to receive life-sustaining treatments at the end of life. It is not unusual for clinicians to make assumptions about patients' wishes based on whether they had previously chosen to pursue curative treatment. OBJECTIVE: We hypothesized that cancerpatients who initially underwent curative intent surgery (CIS) would prefer more aggressive end-of-life treatments compared to patients whose treatment was noncurative intent (non-CIT). METHODS: This study was a retrospective review of data from a large, randomized controlled trial examining the use of an online decision aid for advance care planning, "Making Your Wishes Known" (MYWK), with patients who had advanced cancer. We reviewed patients' medical records to determine which patients underwent CIS versus non-CIT. In the parent trial, conducted at an academic medical center (2007-2012), 200 patients were enrolled with stage IV malignancy or other poor prognosis cancer. Patients' preferences for aggressive treatment were measured in two ways: using patient-selected General Wishes statements generated by the decision aid and patient-selected wishes for specific treatments under various hypothetical clinical scenarios (Specific Wishes). RESULTS: We evaluated 79 patients. Of these, 48 had undergone initial CIS and 31 had non-CIT. Cancerpatients who initially underwent CIS did not prefer more aggressive end-of-life treatments compared to patients whose treatment was non-CIT. CONCLUSIONS: Clinicians should avoid assumptions about patients' preferences for life-sustaining treatment based on their prior choices for aggressive treatment.
Authors: Jane R Schubart; Benjamin H Levi; Cheryl Dellasega; Megan Whitehead; Michael J Green Journal: J Psychosoc Nurs Ment Health Serv Date: 2013-11-07 Impact factor: 1.098
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