Christina Bökberg1, Gerd Ahlström2, Helena Leino-Kilpi3, Maria E Soto-Martin4, Esther Cabrera5, Hilde Verbeek6, Kai Saks7, Astrid Stephan8, Caroline Sutcliffe9, Staffan Karlsson10. 1. Doctoral Student and Lecturer, Department of Health Sciences, Faculty of Medicine, Lund University, Sweden. 2. Professor, Director of the research group Older People's Health and Person-centred Care, Co-coordinator for the Swedish National Graduate School for Competitive Science on Ageing and Health (SWEAH), Department of Health Sciences, Faculty of Medicine, Lund University, Sweden. 3. Lampda Pi, Professor and Chair in Nursing Science, University of Turku, Finland, and Nurse Manager, Turku University Hospital, Finland. 4. Medical Doctor, Gerontopôle Alzheimer´s Disease Research and Clinical Center, Toulouse University Hospital, France. 5. Associate Professor, School of Health Sciences, TecnoCampus, University Pompeu Fabra, Mataró (Barcelona), Spain. 6. Assistant Professor, Department of Health Services Research, Maastricht University, The Netherlands. 7. Associate Professor, Department of Internal Medicine, University of Tartu, Estonia. 8. Doctoral Student and Research Associate, School of Nursing Science, Witten/Herdecke University, Germany. 9. Research Associate, Personal Social Services Research Unit, School of Nursing, Midwifery, and Social Work, University of Manchester, England. 10. Assistant Professor, Department of Health Sciences, Faculty of Medicine, Lund University, Sweden.
Abstract
PURPOSE: To describe available and utilized formal care and service at home for persons with dementia, from diagnosis to end-of-life stage, in eight European countries. DESIGN: A descriptive cross-country design concerning eight European countries as a part of the European research project RightTimePlaceCare. METHODS: The research team in each country used a mapping system to collect country-specific information concerning dementia care and service system. The mapping system consists of 50 types of care and service activities. Sixteen of the 50 predefined activities concerning care and service at home were selected for this study and subdivided into three categories, following the stages of dementia. FINDINGS: Availability was reported to be higher than utilization, and the findings indicated more similarities than differences among the eight countries involved. Even though there were several available activities of "basic care and services" and "healthcare interventions," they were utilized by few in most countries. Furthermore, "specialized dementia care and services" were sparsely available and even more sparsely utilized in the participating countries. CONCLUSIONS: The findings indicated that persons with dementia in Europe received formal care and service on a general, basic level but seldom adjusted to their specific needs. CLINICAL RELEVANCE: This study describes the gap between service provision and utilization enabling nurses to develop individually adjusted care plans for persons with dementia during the progress of the disease. The findings do not include matters of quality of care or how to best organize effective care and services. However, the activities of care and services presented here should shed light on what room there is for improvement when it comes to enabling persons with dementia to go on living at home.
PURPOSE: To describe available and utilized formal care and service at home for persons with dementia, from diagnosis to end-of-life stage, in eight European countries. DESIGN: A descriptive cross-country design concerning eight European countries as a part of the European research project RightTimePlaceCare. METHODS: The research team in each country used a mapping system to collect country-specific information concerning dementia care and service system. The mapping system consists of 50 types of care and service activities. Sixteen of the 50 predefined activities concerning care and service at home were selected for this study and subdivided into three categories, following the stages of dementia. FINDINGS: Availability was reported to be higher than utilization, and the findings indicated more similarities than differences among the eight countries involved. Even though there were several available activities of "basic care and services" and "healthcare interventions," they were utilized by few in most countries. Furthermore, "specialized dementia care and services" were sparsely available and even more sparsely utilized in the participating countries. CONCLUSIONS: The findings indicated that persons with dementia in Europe received formal care and service on a general, basic level but seldom adjusted to their specific needs. CLINICAL RELEVANCE: This study describes the gap between service provision and utilization enabling nurses to develop individually adjusted care plans for persons with dementia during the progress of the disease. The findings do not include matters of quality of care or how to best organize effective care and services. However, the activities of care and services presented here should shed light on what room there is for improvement when it comes to enabling persons with dementia to go on living at home.
Authors: A Bieber; A Stephan; H Verbeek; F Verhey; L Kerpershoek; C Wolfs; M de Vugt; R T Woods; J Røsvik; G Selbaek; B M Sjölund; A Wimo; L Hopper; K Irving; M J Marques; M Gonçalves-Pereira; E Portolani; O Zanetti; G Meyer Journal: Z Gerontol Geriatr Date: 2017-06-14 Impact factor: 1.281
Authors: Connie Lethin; Helena Leino-Kilpi; Brenda Roe; Maria Martin Soto; Kai Saks; Astrid Stephan; Sandra Zwakhalen; Adelaida Zabalegui; Staffan Karlsson Journal: BMC Geriatr Date: 2016-01-29 Impact factor: 3.921