Literature DB >> 26213256

Patients' experiences of adapting to multiple sclerosis: a qualitative study.

Somayeh Ghafari1, Masoud Fallahi-Khoshknab, Kian Nourozi, Eesa Mohammadi.   

Abstract

Unpleasant, unpredictable symptoms, difficult treatment regimes, and uncertainty about the future of Multiple Sclerosis require the patients to adapt to new life changes and restrictions. This study aimed to explore patients' experiences of adapting to Multiple Sclerosis. A qualitative content analysis method was used to conduct this study. The study participants were 25 patients with Multiple Sclerosis, chosen through purposeful sampling. Data were analyzed by using content analysis. The analysis resulted in the emergence of seven themes and eighteen subthemes. The main themes were: religiosity, information seeking, seeking support, hope rearing, emotional reactions, concealing the disease, fighting the disease and disability. These themes can represent the perceived characteristics and difficulties of adaptation to Multiple Sclerosis by patients. These findings can help nurses and families to aid patients in increasing their abilities to adapt to the disease and enhance their quality of life.

Entities:  

Keywords:  adaptation; content analysis; multiple sclerosis; nursing

Mesh:

Year:  2015        PMID: 26213256     DOI: 10.1080/10376178.2015.1010252

Source DB:  PubMed          Journal:  Contemp Nurse        ISSN: 1037-6178            Impact factor:   1.787


  7 in total

1.  Exploring Self-management Needs of Persons With Multiple Sclerosis: A Qualitative Study for Mobile Application Development.

Authors:  Shahla Damanabi; Zeinab Salimzadeh; Leila R Kalankesh; Sheida Shaafi; Reza Ferdousi
Journal:  Int J MS Care       Date:  2021-04-16

2.  Understanding quality of life across different clinical subtypes of multiple sclerosis: a thematic analysis.

Authors:  Hikari Ando; Rosanna Cousins; Carolyn A Young
Journal:  Qual Life Res       Date:  2021-11-25       Impact factor: 4.147

3.  Identifying Barriers to and Facilitators of Health Service Access Encountered by Individuals with Multiple Sclerosis.

Authors:  Chantel D Mayo; Negar Farzam-Kia; Setareh Ghahari
Journal:  Int J MS Care       Date:  2021-02-23

Review 4.  'It struck at the heart of who I thought I was': A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis.

Authors:  Jane Desborough; Crystal Brunoro; Anne Parkinson; Katrina Chisholm; Mark Elisha; Janet Drew; Vanessa Fanning; Christian Lueck; Anne Bruestle; Matthew Cook; Hanna Suominen; Antonio Tricoli; Adam Henschke; Christine Phillips
Journal:  Health Expect       Date:  2020-06-24       Impact factor: 3.377

Review 5.  Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives.

Authors:  Elisabeth G Celius; Heidi Thompson; Maija Pontaga; Dawn Langdon; Alice Laroni; Stanca Potra; Trishna Bharadia; David Yeandle; Jane Shanahan; Pieter van Galen; Nektaria Alexandri; Jürg Kesselring
Journal:  Patient Prefer Adherence       Date:  2021-01-08       Impact factor: 2.711

6.  Experiences of and attitudes to lifestyle modification for the management of multiple sclerosis: A qualitative analysis of free-text survey data.

Authors:  Sandra L Neate; Angela Donald; George A Jelinek; Nupur Nag
Journal:  Health Expect       Date:  2021-10-02       Impact factor: 3.377

7.  Features of Coping with Disease in Iranian Multiple Sclerosis Patients: a Qualitative Study.

Authors:  Ali Dehghani; Nahid Dehghan Nayeri; Abbas Ebadi
Journal:  J Caring Sci       Date:  2018-03-01
  7 in total

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