Literature DB >> 26212596

Psychosocial acceptance of cleft patients: has something changed?

Niels Christian Pausch1, Karsten Winter2, Dirk Halama3, Christian Wirtz4, Vedat Yildirim3, Nattapong Sirintawat3, Sirintawat Nattapong3.   

Abstract

OBJECTIVE: The main purpose of this study was to analyse the reactions of a panel (non-cleft adults) when observing cleft lip morphology. Although rehabilitation of cleft lip and palate is improving, there are still indications of social rejection of cleft patients by the people around them. Polarity profiles have been used since 1973 to measure social distance with regard to cleft patients. Because rehabilitation results and education of the society have improved in recent decades, we investigated whether social distance has been affected.
SETTING: The setting of this study is the Department of Oral, Craniomaxillofacial, and Facial Plastic Surgery, University Hospital of Leipzig, Germany PATIENTS AND PARTICIPANTS: Using a cross-sectional study design, we enrolled a sample of adult laypersons (n = 273). For the survey, we followed the concept of photograph presentation and questionnaire investigation reported by Sergl and Schmid (1973). We presented anonymised frontal and profile pictures of the faces of 50 cleft patients and asked the laypersons to specify social distance. Three predictor variables (layperson gender, profession and year of evaluation) were grouped.
RESULTS: Although social distance has reduced during the last 40 years, life situations which require emotional proximity still cause some concern. Professional background and gender affect laypersons' attitudes.
CONCLUSION: Although rehabilitation of cleft lip and palate is much better than 40 years ago, social distance remains a problem in society. It is necessary to improve both results of rehabilitation of cleft patients and social acceptance by the people around them.

Entities:  

Keywords:  Cleft lip patients; Laypersons; Social distance

Mesh:

Year:  2015        PMID: 26212596     DOI: 10.1007/s10006-015-0518-1

Source DB:  PubMed          Journal:  Oral Maxillofac Surg        ISSN: 1865-1550


  32 in total

1.  Standardizing digital photography: it's not all in the eye of the beholder.

Authors:  G M Galdino; J E Vogel; C A Vander Kolk
Journal:  Plast Reconstr Surg       Date:  2001-10       Impact factor: 4.730

2.  Secondary cleft rhinoplasty rejuvenates the nose: a suggestion from a panel survey.

Authors:  Niels Christian Pausch; Poramate Pitak-Arnnop; Philipp Yorck Herzberg; Kittipong Dhanuthai; Alexander Hemprich
Journal:  Oral Surg Oral Med Oral Pathol Oral Radiol Endod       Date:  2011-02

3.  Observed social interaction patterns in adolescents with and without craniofacial conditions.

Authors:  K A Kapp-Simon; D E McGuire
Journal:  Cleft Palate Craniofac J       Date:  1997-09

4.  Appraisal and coping in adults with cleft lip: associations with well-being and social anxiety.

Authors:  V M Cochrane; P Slade
Journal:  Br J Med Psychol       Date:  1999-12

5.  Educational, occupational, and marital status of cleft palate adults.

Authors:  B J McWilliams; L P Paradise
Journal:  Cleft Palate J       Date:  1973-07

6.  German animal terms for oral cleft deformity: a Leipzig survey.

Authors:  Niels Christian Pausch; Philipp Yorck Herzberg; Christian Wirtz; Alexander Hemprich; Kittipong Dhanuthai; Thomas Hierl; Poramate Pitak-Arnnop
Journal:  J Craniomaxillofac Surg       Date:  2011-11-25       Impact factor: 2.078

7.  An attitudinal study of responses to a range of dermatological conditions using the implicit association test.

Authors:  Tracey A Grandfield; Andrew R Thompson; Graham Turpin
Journal:  J Health Psychol       Date:  2005-11

8.  Reproductive patterns among Danish women with oral clefts.

Authors:  Janne Elin Yttri; Kaare Christensen; Lisbeth B Knudsen; Camilla Bille
Journal:  Cleft Palate Craniofac J       Date:  2010-09-08

Review 9.  Clefting and psychosocial adjustment. Influence of facial aesthetics.

Authors:  J M Tobiasen; J M Hiebert
Journal:  Clin Plast Surg       Date:  1993-10       Impact factor: 2.017

10.  The psychosocial functioning of young adults born with cleft lip or palate. A follow-up study.

Authors:  A Heller; W Tidmarsh; I B Pless
Journal:  Clin Pediatr (Phila)       Date:  1981-07       Impact factor: 1.168

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