Literature DB >> 26210133

Psychosocial Aspects of Scleroderma.

Linda Kwakkenbos1, Vanessa C Delisle2, Rina S Fox3, Shadi Gholizadeh3, Lisa R Jewett2, Brooke Levis4, Katherine Milette2, Sarah D Mills3, Vanessa L Malcarne5, Brett D Thombs6.   

Abstract

Patients with systemic sclerosis (SSc; also called scleroderma) have to cope with not only the physical impacts of the disease but also the emotional and social consequences of living with the condition. Because there is no cure for SSc, improving quality of life is a primary focus of treatment and an important clinical challenge. This article summarizes significant problems faced by patients with SSc, including depression, anxiety, fatigue, sleep disruption, pain, pruritus, body image dissatisfaction, and sexual dysfunction, and describes options to help patients cope with the consequences of the disease.
Copyright © 2015 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Psychosocial; Quality of life; Scleroderma; Self-management; Systemic sclerosis

Mesh:

Year:  2015        PMID: 26210133     DOI: 10.1016/j.rdc.2015.04.010

Source DB:  PubMed          Journal:  Rheum Dis Clin North Am        ISSN: 0889-857X            Impact factor:   2.670


  26 in total

Review 1.  Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review.

Authors:  Vanessa C Delisle; Stephanie T Gumuchian; Danielle B Rice; Alexander W Levis; Lorie A Kloda; Annett Körner; Brett D Thombs
Journal:  Patient       Date:  2017-06       Impact factor: 3.883

2.  Factors related to alexithymia in patients with systemic sclerosis: a tight relationship with facial image dissatisfaction.

Authors:  Fabio Basta; Domenico Paolo Emanuele Margiotta; Carmen Mazzuca; Veronica Batani; Giulio Dolcini; Patrizio Moras; Marta Vadacca; Antonella Afeltra
Journal:  Rheumatol Int       Date:  2018-11-29       Impact factor: 2.631

Review 3.  Comparison of Self-Efficacy for Managing Chronic Disease between patients with systemic sclerosis and other chronic conditions: a systematic review.

Authors:  Brett D Thombs; Linda Kwakkenbos; Kira E Riehm; Nazanin Saadat; Claire Fedoruk
Journal:  Rheumatol Int       Date:  2016-11-19       Impact factor: 2.631

4.  Validation of the Social Interaction Anxiety Scale in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort study.

Authors:  Shadi Gholizadeh; Linda Kwakkenbos; Marie-Eve Carrier; Sarah D Mills; Rina S Fox; Lisa R Jewett; Karen Gottesman; Scott Roesch; Brett D Thombs; Vanessa L Malcarne
Journal:  J Scleroderma Relat Disord       Date:  2017-10-24

5.  Reasons for attending support groups and organizational preferences: A replication study using the North American Scleroderma Support Group Survey.

Authors:  Mia Pépin; Linda Kwakkenbos; Marie-Eve Carrier; Sandra Peláez; Ghassan El-Baalbaki; Vanessa L Malcarne; Brett D Thombs
Journal:  J Scleroderma Relat Disord       Date:  2019-05-29

Review 6.  Pregnancy in systemic sclerosis.

Authors:  Mauro Betelli; Silvia Breda; Veronique Ramoni; Federico Parisi; Stefania Rampello; Massimiliano Limonta; Marianna Meroni; Antonio Brucato
Journal:  J Scleroderma Relat Disord       Date:  2018-04-04

7.  Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND): Study protocol.

Authors:  Marie-Eve Carrier; Linda Kwakkenbos; Isabelle Boutron; Joep Welling; Maureen Sauve; Cornelia van den Ende; Anne A Schouffoer; Marie Hudson; Brett D Thombs; Luc Mouthon
Journal:  J Scleroderma Relat Disord       Date:  2017-10-16

8.  Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.

Authors:  Linda Kwakkenbos; Brett D Thombs; Dinesh Khanna; Marie-Eve Carrier; Murray Baron; Daniel E Furst; Karen Gottesman; Frank van den Hoogen; Vanessa L Malcarne; Maureen D Mayes; Luc Mouthon; Warren R Nielson; Serge Poiraudeau; Robert Riggs; Maureen Sauvé; Fredrick Wigley; Marie Hudson; Susan J Bartlett
Journal:  Rheumatology (Oxford)       Date:  2017-08-01       Impact factor: 7.580

9.  Progression of gastrointestinal symptoms over time in patients with systemic sclerosis.

Authors:  Jamie Bering; W Leroy Griffing; Michael Crowell; Sarah B Umar
Journal:  Rheumatol Int       Date:  2021-02-25       Impact factor: 2.631

10.  Diverse cellular players orchestrate regeneration after wounding.

Authors:  Kaitlin L Williams; Luis A Garza
Journal:  Exp Dermatol       Date:  2020-12-08       Impact factor: 3.960

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.