Hanne Irene Jensen1, Rik T Gerritsen2, Matty Koopmans3, Jan G Zijlstra4, Jared Randall Curtis5, Helle Ørding6. 1. Department of Anaesthesiology and Intensive Care, Vejle and Middelfart Hospitals, 7100 Vejle, Denmark; Institute of Regional Health Research, University of Southern Denmark, 5000 Odense, Denmark. Electronic address: hanne.irene.jensen@rsyd.dk. 2. Center of Intensive Care, Medisch Centrum Leeuwarden, 8901 BR Leeuwarden, The Netherlands. Electronic address: RTGerritsen@ZNB.NL. 3. Center of Intensive Care, Medisch Centrum Leeuwarden, 8901 BR Leeuwarden, The Netherlands. Electronic address: Matty.Koopmans@ZNB.NL. 4. University Medical Center Groningen, University of Groningen, 9713 GZ Groningen, The Netherlands. Electronic address: j.g.zijlstra@umcg.nl. 5. Cambia Palliative Care Center of Excellence, Harborview Medical Center, University of Washington, Seattle, WA, USA. Electronic address: jrc@u.washington.edu. 6. Department of Anaesthesiology and Intensive Care, Vejle and Middelfart Hospitals, 7100 Vejle, Denmark. Electronic address: oerding@dadlnet.dk.
Abstract
PURPOSE: The purpose of the study is to adapt and provide preliminary validation for questionnaires evaluating families' experiences of quality of care for critically ill patients in the intensive care unit (ICU). MATERIALS AND METHODS: This study took place in 2 European ICUs. Based on literature and qualitative interviews, we adapted 2 previously validated North American questionnaires: "Family Satisfaction with the ICU" and "Quality of Dying and Death." Family members were asked to assess relevance and understandability of each question. Validation also included test-retest reliability and construct validity. RESULTS: A total of 110 family members participated. Response rate was 87%. For all questions, a median of 97% (94%-99%) was assessed as relevant, and a median of 98% (97%-100%), as understandable. Median ceiling effect was 41% (30%-47%). There was a median of 0% missing data (0%-1%). Test-retest reliability showed a median weighted κ of 0.69 (0.53-0.83). Validation showed significant correlation between total scores and key questions. CONCLUSIONS: The questions were assessed as relevant and understandable, providing high face and content validity. Ceiling effects were comparable to similar instruments; missing data, low; and test-retest reliability, acceptable. These measures are promising for use in research, but further validation is needed before they can be recommended for routine clinical use.
PURPOSE: The purpose of the study is to adapt and provide preliminary validation for questionnaires evaluating families' experiences of quality of care for critically illpatients in the intensive care unit (ICU). MATERIALS AND METHODS: This study took place in 2 European ICUs. Based on literature and qualitative interviews, we adapted 2 previously validated North American questionnaires: "Family Satisfaction with the ICU" and "Quality of Dying and Death." Family members were asked to assess relevance and understandability of each question. Validation also included test-retest reliability and construct validity. RESULTS: A total of 110 family members participated. Response rate was 87%. For all questions, a median of 97% (94%-99%) was assessed as relevant, and a median of 98% (97%-100%), as understandable. Median ceiling effect was 41% (30%-47%). There was a median of 0% missing data (0%-1%). Test-retest reliability showed a median weighted κ of 0.69 (0.53-0.83). Validation showed significant correlation between total scores and key questions. CONCLUSIONS: The questions were assessed as relevant and understandable, providing high face and content validity. Ceiling effects were comparable to similar instruments; missing data, low; and test-retest reliability, acceptable. These measures are promising for use in research, but further validation is needed before they can be recommended for routine clinical use.
Authors: Leopoldo M Amendola; Alessandro Galazzi; Irene Zainaghi; Ivan Cortinovis; Anna Zolin; Rik T Gerritsen; Ileana Adamini; Maura Lusignani; Dario Laquintana Journal: Int J Environ Res Public Health Date: 2020-11-28 Impact factor: 3.390
Authors: Hanne Irene Jensen; Rik T Gerritsen; Matty Koopmans; Lois Downey; Ruth A Engelberg; J Randall Curtis; Peter E Spronk; Jan G Zijlstra; Helle Ørding Journal: Crit Care Date: 2017-09-07 Impact factor: 9.097