Mari Carmen Portillo1, Elena Regaira2, María J Pumar-Méndez3, Agurtzane Mujika3, Ivaylo Vassilev4, Anne Rogers4, Michel Wensing5, Christina Foss6, Ingrid Ruud Knutsen6, Elka Todorova7, Poli Roukova8, Anne Kennedy4, Manuel Serrano9, Christos Lionis10, Agapi Angelaki10, Evridiki Patelarou11, Jan Koetsenruijter5. 1. Faculty of Health Sciences, University of Southampton, Hampshire, UK (Associate Prof Portillo) 2. Intensive Care Unit, Clinica Universidad de Navarra, Pamplona, Spain (Ms Regaira) 3. School of Nursing, University of Navarra, Pamplona, Spain (Dr Pumar, Dr Mujika) 4. Faculty of Health Sciences, NIHR Wessex CLAHRC, University of Southampton, Hampshire, UK (Dr Vassilev, Prof Rogers, Prof Kennedy) 5. Radboud University Medical Centre, Radboud Institute for Health Sciences, Nijmegen, the Netherlands (Prof Wensing, Mr Koetsenruijter) 6. Institute of Health and Society, University of Oslo, Olso, Norway (Prof Foss, Dr Knutsen) 7. Department of Economic Sociology, University of National and World Economy, Sofia, Bulgaria (Prof Todorova) 8. Department of Economic and Social Geography, NIGGG, Bulgaria Academy of Sciences, Sofia, Bulgaria (Ms Roukova) 9. Education, Health and Society Foundation, Murcia, Spain (Dr Serrano) 10. Clinic of Social and Family Medicine, Department of Social Medicine, University of Crete, Heraklion, Greece (Prof Lionis, Ms Angelaki) 11. Florence Nightingale Faculty of Nursing and Midwifery, King's College London, London, UK (Dr Patelarou)
Abstract
PURPOSE: The purpose of this study is to critically review the literature on the role and work of voluntary organizations and community groups and volunteers in diabetes self-management programs. It seeks to explain how these organizations are located and could be integrated further within a broader system of support. METHODS: A critical interpretative synthesis of the literature was undertaken as part of the conceptual development of a European research project. Evidence (2000-November 2014) was searched in databases, with the use of key terms, and limited to the languages of the participating countries. This was supplemented by an additional hand search and snowballing technique. A total of 21 articles were included in the review. RESULTS: Evidence regarding the involvement of voluntary organizations in diabetes self-management programs mainly related to: the nature and remit of their work, responsibilities, and attributes; key strategies of programs accounting for success; motivations/barriers for engaging in volunteering participation; relationships between volunteers and users; and connections/tensions with formal services. CONCLUSIONS: This review has uncovered a range of facets of voluntary organizations and community groups relevant for supporting diabetes self-management such as the context within which they act and the nature of relationships developed with community and health services. The principles of "assistance, support, sharing, and link" seem essential for this voluntary initiative in self-management to establish effective reciprocal collaboration with health professionals.
PURPOSE: The purpose of this study is to critically review the literature on the role and work of voluntary organizations and community groups and volunteers in diabetes self-management programs. It seeks to explain how these organizations are located and could be integrated further within a broader system of support. METHODS: A critical interpretative synthesis of the literature was undertaken as part of the conceptual development of a European research project. Evidence (2000-November 2014) was searched in databases, with the use of key terms, and limited to the languages of the participating countries. This was supplemented by an additional hand search and snowballing technique. A total of 21 articles were included in the review. RESULTS: Evidence regarding the involvement of voluntary organizations in diabetes self-management programs mainly related to: the nature and remit of their work, responsibilities, and attributes; key strategies of programs accounting for success; motivations/barriers for engaging in volunteering participation; relationships between volunteers and users; and connections/tensions with formal services. CONCLUSIONS: This review has uncovered a range of facets of voluntary organizations and community groups relevant for supporting diabetes self-management such as the context within which they act and the nature of relationships developed with community and health services. The principles of "assistance, support, sharing, and link" seem essential for this voluntary initiative in self-management to establish effective reciprocal collaboration with health professionals.
Authors: Kelsey A Luoma; Ian M Leavitt; Joel C Marrs; Andrea L Nederveld; Judith G Regensteiner; Andrea L Dunn; Russell E Glasgow; Amy G Huebschmann Journal: Transl Behav Med Date: 2017-12 Impact factor: 3.046
Authors: Ivaylo Vassilev; Anne Rogers; Anne Kennedy; Michel Wensing; Jan Koetsenruijter; Rosanna Orlando; Maria Carmen Portillo; David Culliford Journal: PLoS One Date: 2016-08-18 Impact factor: 3.240
Authors: Mari Carmen Portillo; Anne Kennedy; Elka Todorova; Elena Regaira; Michel Wensing; Christina Foss; Christos Lionis; Ivaylo Vassilev; Valentin Goev; Anne Rogers Journal: Int J Nurs Stud Date: 2017-02-03 Impact factor: 5.837
Authors: María J Pumar-Méndez; Agurtzane Mujika; Elena Regaira; Ivaylo Vassilev; Mari Carmen Portillo; Christina Foss; Elka Todorova; Poli Roukova; Ingrid A Ruud Knutsen; Manuel Serrano; Christos Lionis; Michel Wensing; Anne Rogers Journal: Health Expect Date: 2016-05-27 Impact factor: 3.377
Authors: Celeste Marsh; Paul A Agius; Gamini Jayakody; Roshan Shajehan; Chandima Abeywickrema; Kelly Durrant; Stanley Luchters; Wendy Holmes Journal: BMC Public Health Date: 2018-05-16 Impact factor: 3.295