Literature DB >> 26119063

A model of caregiver paediatric HIV disclosure decision-making.

Michael Evangeli1, Ashraf Kagee2.   

Abstract

Many of the over 3 million HIV-positive children will only be told of their status as adolescents. Knowing one's status may increase treatment adherence, reduce onward HIV transmission, increase trust in caregivers and maximise available support. Yet deciding whether, what, how and when to tell HIV-positive children about their condition is challenging for caregivers. We systematically review HIV disclosure theories before presenting a process model of caregiver paediatric HIV disclosure decision-making. The model, consisting of both a pre-intention and a post-intention stage, integrates individual and contextual determinants. It aims to be situationally specific, broadly applicable and consistent with the empirical literature. Research and practice implications are discussed.

Entities:  

Keywords:  HIV; caregiver; decision-making; model; paediatric disclosure

Mesh:

Year:  2015        PMID: 26119063      PMCID: PMC4940610          DOI: 10.1080/13548506.2015.1058959

Source DB:  PubMed          Journal:  Psychol Health Med        ISSN: 1354-8506            Impact factor:   2.423


  40 in total

Review 1.  Understanding HIV disclosure: a review and application of the Disclosure Processes Model.

Authors:  Stephenie R Chaudoir; Jeffrey D Fisher; Jane M Simoni
Journal:  Soc Sci Med       Date:  2011-04-06       Impact factor: 4.634

2.  Ten things that motivational interviewing is not.

Authors:  William R Miller; Stephen Rollnick
Journal:  Behav Cogn Psychother       Date:  2009-03

3.  'You're HIV positive': perinatally infected young people's accounts of the critical moment of finding out their diagnosis.

Authors:  Judith Dorrell; Jeanne Katz
Journal:  AIDS Care       Date:  2013-10-14

4.  Patterns of disclosure of HIV status to infected children in a Sub-Saharan African setting.

Authors:  Lara M E Vaz; Suzanne Maman; Eugenia Eng; Oscar A Barbarin; Tomi Tshikandu; Frieda Behets
Journal:  J Dev Behav Pediatr       Date:  2011-05       Impact factor: 2.225

5.  Prevalence and pattern of disclosure of HIV status in HIV-infected children in Ghana.

Authors:  Stacey Kallem; Lorna Renner; Musie Ghebremichael; Elijah Paintsil
Journal:  AIDS Behav       Date:  2011-08

6.  A retest of two HIV disclosure theories: the women's story.

Authors:  Julianne M Serovich; Ji-Young Lim; Tina L Mason
Journal:  Health Soc Work       Date:  2008-02

7.  Impact of disclosure of HIV infection on health-related quality of life among children and adolescents with HIV infection.

Authors:  Anne M Butler; Paige L Williams; Lois C Howland; Deborah Storm; Nancy Hutton; George R Seage
Journal:  Pediatrics       Date:  2009-03       Impact factor: 7.124

8.  Contextual and psychosocial influences on antiretroviral therapy adherence in rural Zimbabwe: towards a systematic framework for programme planners.

Authors:  Morten Skovdal; Catherine Campbell; Kundai Nhongo; Constance Nyamukapa; Simon Gregson
Journal:  Int J Health Plann Manage       Date:  2011-07-10

9.  "If I take my medicine, I will be strong: " evaluation of a pediatric HIV disclosure intervention in Namibia.

Authors:  Gabrielle OʼMalley; Kristin Beima-Sofie; Larissa Feris; Mark Shepard-Perry; Ndapewa Hamunime; Grace John-Stewart; Francina Kaindjee-Tjituka; Laura Brandt
Journal:  J Acquir Immune Defic Syndr       Date:  2015-01-01       Impact factor: 3.731

10.  Caregivers' Barriers to Disclosing the HIV Diagnosis to Infected Children on Antiretroviral Therapy in a Resource-Limited District in South Africa: A Grounded Theory Study.

Authors:  Sphiwe Madiba; Kebogile Mokwena
Journal:  AIDS Res Treat       Date:  2012-12-10
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  3 in total

1.  A randomised feasibility trial of an intervention to support sharing of HIV status for 18-25-year olds living with perinatally acquired HIV compared with standard care: HIV Empowering Adults' Decisions to Share-UK/Uganda Project (HEADS-UP).

Authors:  Michael Evangeli; Caroline Foster; Victor Musiime; Sarah Fidler; Janet Seeley; Georgina Gnan
Journal:  Pilot Feasibility Stud       Date:  2020-09-24

Review 2.  HIV Disclosure Anxiety: A Systematic Review and Theoretical Synthesis.

Authors:  Michael Evangeli; Abigail L Wroe
Journal:  AIDS Behav       Date:  2017-01

3.  Caregivers' Experiences with Caring for a Child Living with HIV/AIDS: A Qualitative Study in Northern Ghana.

Authors:  Gideon Awenabisa Atanuriba; Felix Apiribu; Adwoa Bemah Boamah Mensah; Veronica Millicent Dzomeku; Richard Adongo Afaya; Timothy Gazari; Joseph Kuufaakang Kuunibe; Philemon Adoliwine Amooba
Journal:  Glob Pediatr Health       Date:  2021-03-23
  3 in total

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