Literature DB >> 26103916

Ethical problems in health research with indigenous or originary peoples in Peru.

Gabriela Minaya1, Joel Roque.   

Abstract

The varied, abrupt and amazing geography of the land of Peru is home of one of the major concentrations of indigenous peoples in the world. The asymmetry of power, however, in their relationship with the rest of society and the State is still very evident in their social exclusion, their gap in social and economic development, barriers in their access to health services as well as their marginalization and exploitation as subjects of health research. In this paper, we analyse two cases of research on indigenous populations in Peru, discuss them from the point of view of bioethics and reflect on important issues for researchers, research participants and the society, such as the need to respect different cultures, the need that the research being done is relevant to the needs of the population in which it is conducted and the necessity to empower indigenous communities in participatory research, to strengthen the institutions and to protect human rights, namely through ethics committees for research and the free, informed and meaningful informed consent. This approach should foster quality research, while at the same time fully respecting human rights and bioethics. We cannot forget that advancements in genetics, throughout the world, are very much in debt to indigenous populations.

Entities:  

Year:  2015        PMID: 26103916      PMCID: PMC4524872          DOI: 10.1007/s12687-015-0240-6

Source DB:  PubMed          Journal:  J Community Genet        ISSN: 1868-310X


  6 in total

1.  The Havasupai Indian tribe case--lessons for research involving stored biologic samples.

Authors:  Michelle M Mello; Leslie E Wolf
Journal:  N Engl J Med       Date:  2010-06-09       Impact factor: 91.245

Review 2.  Indigenous health in Latin America and the Caribbean.

Authors:  Raul A Montenegro; Carolyn Stephens
Journal:  Lancet       Date:  2006-06-03       Impact factor: 79.321

3.  Participatory research: a way to reduce vulnerability.

Authors:  Luis Justo
Journal:  Am J Bioeth       Date:  2004       Impact factor: 11.229

Review 4.  DNA on loan: issues to consider when carrying out genetic research with aboriginal families and communities.

Authors:  Laura Arbour; Doris Cook
Journal:  Community Genet       Date:  2006

5.  A clash of paradigms? Western and indigenous views on health research involving Aboriginal peoples.

Authors:  Theresa Diane Campbell
Journal:  Nurse Res       Date:  2014-07

6.  High prevalence of HIV and syphilis in a remote native community of the Peruvian Amazon.

Authors:  Carol Zavaleta; Connie Fernández; Kelika Konda; Yadira Valderrama; Sten H Vermund; Eduardo Gotuzzo
Journal:  Am J Trop Med Hyg       Date:  2007-04       Impact factor: 2.345

  6 in total
  3 in total

1.  Health research: working with Indigenous People in Peru.

Authors:  Carol Zavaleta; Kelika Konda; Yadira Valderrama; Eduardo Gotuzzo
Journal:  J Community Genet       Date:  2016-02-03

2.  Relevant ethical consideration in research with indigenous people in Peru.

Authors:  Gabriela Minaya
Journal:  J Community Genet       Date:  2016-02-27

Review 3.  Indigenous knowledge around the ethics of human research from the Oceania region: A scoping literature review.

Authors:  Etivina Lovo; Lynn Woodward; Sarah Larkins; Robyn Preston; Unaisi Nabobo Baba
Journal:  Philos Ethics Humanit Med       Date:  2021-10-09       Impact factor: 2.464

  3 in total

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