Literature DB >> 26099652

206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014.

Jes Rahbek1, Birgit F Steffensen2, Kate Bushby3, Imelda J M de Groot4.   

Abstract

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Year:  2015        PMID: 26099652     DOI: 10.1016/j.nmd.2015.05.005

Source DB:  PubMed          Journal:  Neuromuscul Disord        ISSN: 0960-8966            Impact factor:   4.296


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  16 in total

Review 1.  Genetic neuromuscular disorders: living the era of a therapeutic revolution. Part 2: diseases of motor neuron and skeletal muscle.

Authors:  Giuseppe Vita; Gian Luca Vita; Olimpia Musumeci; Carmelo Rodolico; Sonia Messina
Journal:  Neurol Sci       Date:  2019-02-25       Impact factor: 3.307

Review 2.  Clinical management of Duchenne muscular dystrophy: the state of the art.

Authors:  Sonia Messina; Gian Luca Vita
Journal:  Neurol Sci       Date:  2018-09-14       Impact factor: 3.307

3.  Occurrence of symptoms in different stages of Duchenne muscular dystrophy and their impact on social participation.

Authors:  Saskia L S Houwen-van Opstal; Lotte Heutinck; Merel Jansen; Yvonne D Krom; Edith H C Cup; Jos G M Hendriksen; Michel A A P Willemsen; Jan J G M Verschuuren; Erik H Niks; Imelda J M de Groot
Journal:  Muscle Nerve       Date:  2021-09-09       Impact factor: 3.852

Review 4.  Diagnosis and management of Duchenne muscular dystrophy, part 2: respiratory, cardiac, bone health, and orthopaedic management.

Authors:  David J Birnkrant; Katharine Bushby; Carla M Bann; Benjamin A Alman; Susan D Apkon; Angela Blackwell; Laura E Case; Linda Cripe; Stasia Hadjiyannakis; Aaron K Olson; Daniel W Sheehan; Julie Bolen; David R Weber; Leanne M Ward
Journal:  Lancet Neurol       Date:  2018-02-03       Impact factor: 44.182

Review 5.  Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan.

Authors:  David J Birnkrant; Katharine Bushby; Carla M Bann; Susan D Apkon; Angela Blackwell; Mary K Colvin; Linda Cripe; Adrienne R Herron; Annie Kennedy; Kathi Kinnett; James Naprawa; Garey Noritz; James Poysky; Natalie Street; Christina J Trout; David R Weber; Leanne M Ward
Journal:  Lancet Neurol       Date:  2018-02-02       Impact factor: 44.182

6.  Role Attainment in Emerging Adulthood: Subjective Evaluation by Male Adolescents and Adults with Duchenne and Becker Muscular Dystrophy.

Authors:  Holly L Peay; Barbara T Do; Neil Khosla; Pangaja Paramsothy; Stephen W Erickson; Molly M Lamb; Nedra Whitehead; Deborah J Fox; Shree Pandya; Kathi Kinnett; Jodi Wolff; James F Howard
Journal:  J Neuromuscul Dis       Date:  2022

7.  Comparison between sEMG and force as control interfaces to support planar arm movements in adults with Duchenne: a feasibility study.

Authors:  Joan Lobo-Prat; Kostas Nizamis; Mariska M H P Janssen; Arvid Q L Keemink; Peter H Veltink; Bart F J M Koopman; Arno H A Stienen
Journal:  J Neuroeng Rehabil       Date:  2017-07-12       Impact factor: 4.262

8.  "Be an ambassador for change that you would like to see": a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease.

Authors:  Anna Ambrosini; Ros Quinlivan; Valeria A Sansone; Ingeborg Meijer; Guus Schrijvers; Aad Tibben; George Padberg; Maarten de Wit; Ellen Sterrenburg; Alexandre Mejat; Alexandra Breukel; Michal Rataj; Hanns Lochmüller; Raffaella Willmann
Journal:  Orphanet J Rare Dis       Date:  2019-06-07       Impact factor: 4.123

9.  Needs management in families affected by childhood-onset dystrophinopathies.

Authors:  Kristin M Conway; Katy Eichinger; Christina Trout; Paul A Romitti; Katherine D Mathews; Shree K Pandya
Journal:  SAGE Open Med       Date:  2019-03-02

10.  Surface EMG signals in very late-stage of Duchenne muscular dystrophy: a case study.

Authors:  Joan Lobo-Prat; Mariska M H P Janssen; Bart F J M Koopman; Arno H A Stienen; Imelda J M de Groot
Journal:  J Neuroeng Rehabil       Date:  2017-08-29       Impact factor: 4.262

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