Literature DB >> 26099647

'Connecting tracks': exploring the roles of an Aboriginal women's cancer support network.

Beatriz Cuesta-Briand1, Dawn Bessarab2, Shaouli Shahid3, Sandra C Thompson3.   

Abstract

Aboriginal Australians are at higher risk of developing certain types of cancer and, once diagnosed, they have poorer outcomes than their non-Aboriginal counterparts. Lower access to cancer screening programmes, deficiencies in treatment and cultural barriers contribute to poor outcomes. Additional logistical factors affecting those living in rural areas compound these barriers. Cancer support groups have positive effects on people affected by cancer; however, there is limited evidence on peer-support programmes for Aboriginal cancer patients in Australia. This paper explores the roles played by an Aboriginal women's cancer support network operating in a regional town in Western Australia. Data were collected through semi-structured interviews with 24 participants including Aboriginal and mainstream healthcare service providers, and network members and clients. Interviews were audiotaped and transcribed verbatim. Transcripts were subjected to inductive thematic analysis. Connecting and linking people and services was perceived as the main role of the network. This role had four distinct domains: (i) facilitating access to cancer services; (ii) fostering social interaction; (iii) providing a culturally safe space; and (iv) building relationships with other agencies. Other network roles included providing emotional and practical support, delivering health education and facilitating engagement in cancer screening initiatives. Despite the network's achievements, unresolved tensions around role definition negatively impacted on the working relationship between the network and mainstream service providers, and posed a threat to the network's sustainability. Different perspectives need to be acknowledged and addressed in order to build strong, effective partnerships between service providers and Aboriginal communities. Valuing and honouring the Aboriginal approaches and expertise, and adopting an intercultural approach are suggested as necessary to the way forward.
© 2015 John Wiley & Sons Ltd.

Entities:  

Keywords:  Aboriginal Australians; cancer services; health disparities; regional and remote health; support groups

Mesh:

Year:  2015        PMID: 26099647     DOI: 10.1111/hsc.12261

Source DB:  PubMed          Journal:  Health Soc Care Community        ISSN: 0966-0410


  3 in total

1.  Addressing unresolved tensions to build effective partnerships: lessons from an Aboriginal cancer support network.

Authors:  Beatriz Cuesta-Briand; Dawn Bessarab; Shaouli Shahid; Sandra C Thompson
Journal:  Int J Equity Health       Date:  2015-11-04

Review 2.  Interventions to improve cancer survivorship among Indigenous Peoples and communities: a systematic review with a narrative synthesis.

Authors:  Wendy Gifford; Margo Rowan; Peggy Dick; Shokoufeh Modanloo; Maggie Benoit; Zeina Al Awar; Liquaa Wazni; Viviane Grandpierre; Roanne Thomas; Lindsey Sikora; Ian D Graham
Journal:  Support Care Cancer       Date:  2021-05-24       Impact factor: 3.603

3.  Fundamental Elements in Training Patient Navigators and Their Involvement in Promoting Public Cervical Cancer Screening Knowledge and Practices: A Systematic Review.

Authors:  Joanes Faustine Mboineki; Panpan Wang; Changying Chen
Journal:  Cancer Control       Date:  2021 Jan-Dec       Impact factor: 3.302

  3 in total

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