Literature DB >> 26093217

In focus: The everyday lives of families of adult individuals with epilepsy.

Fahed Saada1, Zizhao Selina Wang1, Ramon Edmundo D Bautista2.   

Abstract

Epilepsy is a multifaceted chronic neurological disorder with diverse effects on a patient's psychosocial well-being. The impact on quality of life has been well documented, and many studies have addressed the detrimental influences epilepsy has on an individual. However, the emotional impact and the influence of the condition on family members have not been well studied. Furthermore, the majority of the studies on this topic have been confined to childhood epilepsy, and there is only scarce literature that discusses the effects on family members caring for adult patients. The purpose of this literature review was to examine the influence of adult epilepsy on the psychological and social well-being of individual family members. We explored the psychological and physical well-being, satisfaction with social circumstances, and perceived level of support in families of adult patients with intractable epilepsy. The paper also suggests best practices on how to improve the family's quality of life, as well as future directions for research. Superior medical care and a positive family support system are important conditions that can help adult individuals with epilepsy best deal with their condition.
Copyright © 2015. Published by Elsevier Inc.

Entities:  

Keywords:  Coping; Epilepsy; Family; Quality of life; Seizures; Siblings; Spouses

Mesh:

Year:  2015        PMID: 26093217     DOI: 10.1016/j.yebeh.2015.05.041

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  4 in total

1.  Mood disorders in familial epilepsy: A test of shared etiology.

Authors:  Beverly J Insel; Ruth Ottman; Gary A Heiman
Journal:  Epilepsia       Date:  2018-01-10       Impact factor: 5.864

2.  Akt Inhibitor Perifosine Prevents Epileptogenesis in a Rat Model of Temporal Lobe Epilepsy.

Authors:  Feng Zhu; Jiejing Kai; Linglin Chen; Meiling Wu; Jingyin Dong; Qingmei Wang; Ling-Hui Zeng
Journal:  Neurosci Bull       Date:  2017-08-07       Impact factor: 5.203

3.  Validation of the German version of the Family Reported Outcome Measure (FROM-16) to assess the impact of disease on the partner or family member.

Authors:  Susanne A Elsner; Sam S Salek; Andrew Y Finlay; Anna Hagemeier; Catherine J Bottomley; Alexander Katalinic; Annika Waldmann
Journal:  Health Qual Life Outcomes       Date:  2021-03-24       Impact factor: 3.186

4.  Correlates of Caregiving Burden among Bedouin-Muslim Mothers of Children Diagnosed with Epilepsy.

Authors:  Offer E Edelstein; Talia Shorer; Zamir Shorer; Yaacov G Bachner
Journal:  Int J Environ Res Public Health       Date:  2022-09-14       Impact factor: 4.614

  4 in total

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