Emiel A Boogerd1, Nienke M Maas-van Schaaijk1, Cees Noordam2,3, Hans J G Marks4, Chris M Verhaak1. 1. Department of Medical Psychology, Radboud university medical center, Nijmegen, the Netherlands. 2. Department of Pediatrics, Radboud university medical center, Nijmegen, the Netherlands. 3. Children's Diabetes Center Nijmegen, Nijmegen, the Netherlands. 4. Department of Cultural Anthropology and Development Studies, Radboud University, Nijmegen, the Netherlands.
Abstract
PURPOSE: To investigate the needs and preferences of parents of children with type 1 diabetes (T1D) concerning pediatric diabetes care and use of Internet in care. DESIGN AND METHODS: Parents of 34 children, aged 2-12, with T1D participated in seven focus group interviews. RESULTS: Analysis revealed provision of tailored care, disease information, peer support, and accessibility of healthcare professionals as major needs in parents. Internet could be used to satisfy these needs. PRACTICAL IMPLICATIONS: According to parents, diabetes teams should focus on the impact of the disease, parents' experience, and the child's development, and provide online professional and peer support.
PURPOSE: To investigate the needs and preferences of parents of children with type 1 diabetes (T1D) concerning pediatric diabetes care and use of Internet in care. DESIGN AND METHODS: Parents of 34 children, aged 2-12, with T1D participated in seven focus group interviews. RESULTS: Analysis revealed provision of tailored care, disease information, peer support, and accessibility of healthcare professionals as major needs in parents. Internet could be used to satisfy these needs. PRACTICAL IMPLICATIONS: According to parents, diabetes teams should focus on the impact of the disease, parents' experience, and the child's development, and provide online professional and peer support.
Authors: Emiel Boogerd; Nienke M Maas-Van Schaaijk; Theo C Sas; Agnes Clement-de Boers; Mischa Smallenbroek; Roos Nuboer; Cees Noordam; Chris M Verhaak Journal: J Med Internet Res Date: 2017-08-22 Impact factor: 5.428