Literature DB >> 26062844

From passengers to co-pilots: Patient roles expand.

Margaret Anderson1, K Kimberly McCleary1.   

Abstract

The premier position of medical research on the U.S. national policy agenda offers an unprecedented opportunity to advance the science of patient input and marks a turning point in the evolution of patient engagement.
Copyright © 2015, American Association for the Advancement of Science.

Entities:  

Mesh：

Year:  2015        PMID： 26062844     DOI： 10.1126/scitranslmed.aac6023

Source DB:  PubMed          Journal:  Sci Transl Med        ISSN： 1946-6234            Impact factor:   17.956


  17 in total

Review 1.  Within and beyond the communal turn to informed consent in industry-sponsored pharmacogenetics research: merits and challenges of community advisory boards.

Authors:  Hojjat Soofi; Evert van Leeuwen
Journal:  J Community Genet       Date:  2016-08-05

2.  Reflections on the Evolution of Patient Engagement in Drug Development.

Authors:  Kenneth Getz
Journal:  Pharmaceut Med       Date:  2019-06

3.  Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine.

Authors:  Alessandro Blasimme; Effy Vayena
Journal:  BMC Med Ethics       Date:  2016-11-04       Impact factor: 2.652

4.  Patients as partners in Enhanced Recovery After Surgery: A qualitative patient-led study.

Authors:  Chelsia Gillis; Marlyn Gill; Nancy Marlett; Gail MacKean; Kathy GermAnn; Loreen Gilmour; Gregg Nelson; Tracy Wasylak; Susan Nguyen; Edamil Araujo; Sandra Zelinsky; Leah Gramlich
Journal:  BMJ Open       Date:  2017-06-24       Impact factor: 2.692

Review 5.  Reflections on the Future of Pharmaceutical Public-Private Partnerships: From Input to Impact.

Authors:  Remco L A de Vrueh; Daan J A Crommelin
Journal:  Pharm Res       Date:  2017-06-06       Impact factor: 4.200

6.  Maintaining primacy of the patient perspective in the development of patient-centered patient reported outcomes.

Authors:  Rochelle E Tractenberg; Amanda Garver; Inger H Ljungberg; Manon M Schladen; Suzanne L Groah
Journal:  PLoS One       Date:  2017-03-03       Impact factor: 3.240

7.  Extent, quality and impact of patient and public involvement in antimicrobial drug development research: A systematic review.

Authors:  David Evans; Emma Bird; Andy Gibson; Sally Grier; Teh Li Chin; Margaret Stoddart; Alasdair MacGowan
Journal:  Health Expect       Date:  2017-07-27       Impact factor: 3.377

Review 8.  Measuring what matters to rare disease patients - reflections on the work by the IRDiRC taskforce on patient-centered outcome measures.

Authors:  Thomas Morel; Stefan J Cano
Journal:  Orphanet J Rare Dis       Date:  2017-11-02       Impact factor: 4.123

Review 9.  Evaluating the Feasibility and Validity of a New Tool to Assess Organizational Preparedness and Capabilities to Support Patient Engagement in Drug Development.

Authors:  Debra L Michaels; Yaritza Peña; Barbara Lopez Kunz; Kenneth A Getz
Journal:  Ther Innov Regul Sci       Date:  2021-07-20       Impact factor: 1.778

10.  Strategies to Improve Prevention and Management in Diabetic Retinopathy: Qualitative Insights from a Mixed-Methods Study.

Authors:  Richard S Beaser; Wendy A Turell; Alexandra Howson
Journal:  Diabetes Spectr       Date:  2018-02
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