Literature DB >> 26040262

The Value of Patient Reported Outcomes and Other Patient-Generated Health Data in Clinical Hematology.

Hemant S Murthy1, William A Wood.   

Abstract

With cures and long-term survival rates increasing in hematologic malignancies, increased focus has been placed on gaining a better understanding of the patient experience from disease and treatment effects. This has been the basis for the utilization of patient reported outcomes (PRO) and other patient-generated health data (PGHD) in efforts to improve long-term health-related quality of life (HRQOL). This review will summarize the impact PROs have had on the evolving standard of care for patients with hematologic malignant conditions and will conclude with a template for the integration of PRO and PGHD to enhance the patient experience, using stem cell transplantation as an example.

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Year:  2015        PMID： 26040262     DOI： 10.1007/s11899-015-0261-6

Source DB:  PubMed          Journal:  Curr Hematol Malig Rep        ISSN： 1558-8211            Impact factor:   3.952


  92 in total

Review 1.  Health-related quality of life and symptom assessment in clinical research of patients with hematologic malignancies: where are we now and where do we go from here?

Authors:  Fabio Efficace; Andrei Novik; Marco Vignetti; Franco Mandelli; Charles S Cleeland
Journal:  Haematologica       Date:  2007-12       Impact factor: 9.941

2.  Randomized controlled trial of azacitidine in patients with the myelodysplastic syndrome: a study of the cancer and leukemia group B.

Authors:  Lewis R Silverman; Erin P Demakos; Bercedis L Peterson; Alice B Kornblith; Jimmie C Holland; Rosalie Odchimar-Reissig; Richard M Stone; Douglas Nelson; Bayard L Powell; Carlos M DeCastro; John Ellerton; Richard A Larson; Charles A Schiffer; James F Holland
Journal:  J Clin Oncol       Date:  2002-05-15       Impact factor: 44.544

3.  U.S. Food and Drug Administration approval: ruxolitinib for the treatment of patients with intermediate and high-risk myelofibrosis.

Authors:  Albert Deisseroth; Edvardas Kaminskas; Joseph Grillo; Wei Chen; Haleh Saber; Hong L Lu; Mark D Rothmann; Satjit Brar; Jian Wang; Christine Garnett; Julie Bullock; Laurie B Burke; Atiqur Rahman; Rajeshwari Sridhara; Ann Farrell; Richard Pazdur
Journal:  Clin Cancer Res       Date:  2012-04-27       Impact factor: 12.531

4.  Cost-effectiveness of imatinib versus interferon-alpha plus low-dose cytarabine for patients with newly diagnosed chronic-phase chronic myeloid leukemia.

Authors:  Shelby D Reed; Kevin J Anstrom; Jennifer A Ludmer; G Alastair Glendenning; Kevin A Schulman
Journal:  Cancer       Date:  2004-12-01       Impact factor: 6.860

5.  Health status, late effects and long-term survivorship of allogeneic bone marrow transplantation: a retrospective study.

Authors:  G Gifford; J Sim; A Horne; D Ma
Journal:  Intern Med J       Date:  2014-02       Impact factor: 2.048

6.  The quality of life of long-term survivors of Hodgkin's disease.

Authors:  M W van Tulder; N K Aaronson; P F Bruning
Journal:  Ann Oncol       Date:  1994-02       Impact factor: 32.976

7.  Fertility and sexual function in long-term survivors of haematological malignancy: using patient-reported outcome measures to assess a neglected area of need in the late effects clinic.

Authors:  Paul Greaves; Shah-Jalal Sarker; Kashfia Chowdhury; Rachel Johnson; Janet Matthews; Rebecca Matthews; Matthew Smith; Ania Korszun; John G Gribben; T Andrew Lister
Journal:  Br J Haematol       Date:  2013-11-15       Impact factor: 6.998

8.  A prospective study of health-related quality of life, fatigue, anxiety and depression 3-5 years after stem cell transplantation.

Authors:  M J Hjermstad; H Knobel; L Brinch; P M Fayers; J H Loge; H Holte; S Kaasa
Journal:  Bone Marrow Transplant       Date:  2004-08       Impact factor: 5.483

9.  Quality of life and brain function following high-dose recombinant human erythropoietin in low-risk myelodysplastic syndromes: a preliminary report.

Authors:  Marino Clavio; Flavio Nobili; Enrico Balleari; Nicola Girtler; Filippo Ballerini; Paolo Vitali; Paola Rosati; Claudia Venturino; Riccardo Varaldo; Marco Gobbi; Riccardo Ghio; Guido Rodriguez
Journal:  Eur J Haematol       Date:  2004-02       Impact factor: 2.997

10.  Chronic myeloid leukemia (CML): association of treatment satisfaction, negative medication experience and treatment restrictions with health outcomes, from the patient's perspective.

Authors:  Ishan Hirji; Shaloo Gupta; Amir Goren; Diana R Chirovsky; Alyson B Moadel; Eduardo Olavarria; Timothy W Victor; Catherine C Davis
Journal:  Health Qual Life Outcomes       Date:  2013-10-08       Impact factor: 3.186
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  9 in total

1.  Self-reported health and survival in older patients diagnosed with multiple myeloma.

Authors:  Nadia A Nabulsi; Ali Alobaidi; Brian Talon; Alemseged A Asfaw; Jifang Zhou; Lisa K Sharp; Karen Sweiss; Pritesh R Patel; Naomi Y Ko; Brian C-H Chiu; Gregory S Calip
Journal:  Cancer Causes Control       Date:  2020-04-30       Impact factor: 2.506

2.  Using PROMIS® to create clinically meaningful profiles of nephrotic syndrome patients.

Authors:  Jonathan P Troost; Debbie S Gipson; Noelle E Carlozzi; Bryce B Reeve; Patrick H Nachman; Rasheed Gbadegesin; Jichuan Wang; Frank Modersitzki; Susan Massengill; John D Mahan; Yang Liu; Howard Trachtman; Emily G Herreshoff; Darren A DeWalt; David T Selewski
Journal:  Health Psychol       Date:  2019-05       Impact factor: 4.267

3.  Early experiences with patient generated health data: health system and patient perspectives.

Authors:  Julia Adler-Milstein; Paige Nong
Journal:  J Am Med Inform Assoc       Date:  2019-10-01       Impact factor: 4.497

Review 4.  Innovations in research and clinical care using patient-generated health data.

Authors:  Heather S L Jim; Aasha I Hoogland; Naomi C Brownstein; Anna Barata; Adam P Dicker; Hans Knoop; Brian D Gonzalez; Randa Perkins; Dana Rollison; Scott M Gilbert; Ronica Nanda; Anders Berglund; Ross Mitchell; Peter A S Johnstone
Journal:  CA Cancer J Clin       Date:  2020-04-20       Impact factor: 508.702

Review 5.  Present and Future Trends in Consumer Health Informatics and Patient-Generated Health Data.

Authors:  A M Lai; P-Y S Hsueh; Y K Choi; R R Austin
Journal:  Yearb Med Inform       Date:  2017-09-11

6.  Clinicians' Perspectives in Using Patient-Generated Health Data to Improve Ischemic Heart Disease Management.

Authors:  Khuder Alaboud; Maniza Shahreen; Humayera Islam; Tanmoy Paul; Md Kamruz Zaman Rana; Anissa Morrison; Arun Kumar; Abu Saleh Mohammad Mosa
Journal:  AMIA Annu Symp Proc       Date:  2022-05-23

Review 7.  Value Based Care and Patient-Centered Care: Divergent or Complementary?

Authors:  Eric K Tseng; Lisa K Hicks
Journal:  Curr Hematol Malig Rep       Date:  2016-08       Impact factor: 3.952

8.  Creating Consumer-Generated Health Data: Interviews and a Pilot Trial Exploring How and Why Patients Engage.

Authors:  Kara Burns; Craig A McBride; Bhaveshkumar Patel; Gerard FitzGerald; Shane Mathews; Judy Drennan
Journal:  J Med Internet Res       Date:  2019-06-13       Impact factor: 5.428

9.  Patient-generated health data and electronic health record integration: protocol for a scoping review.

Authors:  Victoria L Tiase; William Hull; Mary M McFarland; Katherine A Sward; Guilherme Del Fiol; Catherine Staes; Charlene Weir; Mollie R Cummins
Journal:  BMJ Open       Date:  2019-12-17       Impact factor: 2.692
  9 in total

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