Literature DB >> 25999336

Layers of listening: qualitative analysis of the impact of early intervention services for first-episode psychosis on carers' experiences.

Anna Lavis1, Helen Lester2, Linda Everard2, Nicholas Freemantle2, Tim Amos2, David Fowler2, Jo Hodgekins2, Peter Jones2, Max Marshall2, Vimal Sharma2, John Larsen2, Paul McCrone2, Swaran Singh2, Jo Smith2, Max Birchwood2.   

Abstract

BACKGROUND: Early intervention services (EIS) comprise low-stigma, youth-friendly mental health teams for young people undergoing first-episode psychosis (FEP). Engaging with the family of the young person is central to EIS policy and practice.AimsBy analysing carers' accounts of their daily lives and affective challenges during a relative's FEP against the background of wider research into EIS, this paper explores relationships between carers' experiences and EIS.
METHOD: Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS.
RESULTS: Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers' emotions unacknowledged and compounding an existing lack of help-seeking.
CONCLUSIONS: By focusing on EIS's engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways? © The Royal College of Psychiatrists 2015.

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Year:  2015        PMID: 25999336     DOI: 10.1192/bjp.bp.114.146415

Source DB:  PubMed          Journal:  Br J Psychiatry        ISSN: 0007-1250            Impact factor:   9.319


  15 in total

1.  Family member engagement with early psychosis specialty care.

Authors:  Alicia Lucksted; Jennifer Stevenson; Ilana Nossel; Amy Drapalski; Sarah Piscitelli; Lisa B Dixon
Journal:  Early Interv Psychiatry       Date:  2016-11-09       Impact factor: 2.732

2.  Family Experiences Prior to the Initiation of Care for First-Episode Psychosis: A Meta-Synthesis of Qualitative Studies.

Authors:  Oladunni Oluwoye; Sunny Chieh Cheng; Elizabeth Fraser; Bryony Stokes; Michael G McDonell
Journal:  J Child Fam Stud       Date:  2019-12-25

3.  Family Burden, Emotional Distress and Service Satisfaction in First Episode Psychosis. Data from the GET UP Trial.

Authors:  Mirella Ruggeri; Antonio Lasalvia; Paolo Santonastaso; Francesca Pileggi; Emanuela Leuci; Maurizio Miceli; Silvio Scarone; Stefano Torresani; Sarah Tosato; Katia De Santi; Doriana Cristofalo; Carla Comacchio; Simona Tomassi; Carla Cremonese; Angelo Fioritti; Giovanni Patelli; Chiara Bonetto
Journal:  Front Psychol       Date:  2017-05-16

4.  Economic impact of early intervention in psychosis services: results from a longitudinal retrospective controlled study in England.

Authors:  Apostolos Tsiachristas; Tony Thomas; Jose Leal; Belinda R Lennox
Journal:  BMJ Open       Date:  2016-10-20       Impact factor: 2.692

Review 5.  Do Family Interventions Improve Outcomes in Early Psychosis? A Systematic Review and Meta-Analysis.

Authors:  Melanie Claxton; Juliana Onwumere; Miriam Fornells-Ambrojo
Journal:  Front Psychol       Date:  2017-03-27

6.  Editorial: Family Interventions in Psychosis Change Outcomes in Early Intervention Settings - How Much Does the Evidence Support This?

Authors:  Juliana Onwumere; Jens E Jansen; Elizabeth Kuipers
Journal:  Front Psychol       Date:  2018-05-23

7.  What constitutes 'good practice' in early intervention for psychosis? Analysis of clinical guidelines.

Authors:  Paolo Corsico; Michelle Griffin-Doyle; Ilina Singh
Journal:  Child Adolesc Ment Health       Date:  2017-08-08       Impact factor: 2.175

8.  Case management in early psychosis intervention programme: Perspectives of clients and caregivers.

Authors:  Horng Hien Wong; Yee Huei Yong; Shazana Shahwan; Laxman Cetty; Janhavi Vaingankar; Charlene Hon; Helen Lee; Christopher Loh; Edimansyah Abdin; Mythily Subramaniam
Journal:  Early Interv Psychiatry       Date:  2017-12-14       Impact factor: 2.732

9.  Caregiver involvement in psychiatric inpatient treatment - a representative survey among triads of patients, caregivers and hospital psychiatrists.

Authors:  F Schuster; F Holzhüter; S Heres; J Hamann
Journal:  Epidemiol Psychiatr Sci       Date:  2020-05-22       Impact factor: 6.892

10.  Carers' experiences of involuntary admission under mental health legislation: systematic review and qualitative meta-synthesis.

Authors:  Ruth Stuart; Syeda Ferhana Akther; Karen Machin; Karen Persaud; Alan Simpson; Sonia Johnson; Sian Oram
Journal:  BJPsych Open       Date:  2020-02-11
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