Literature DB >> 25981423

Across the Miles: Process and Impacts of Collaboration with a Rural Community Advisory Board in HIV Research.

Malika Roman Isler, Margaret Shandor Miles, Bahby Banks, Lexie Perreras, Melvin Muhammad, Donald Parker, Giselle Corbie-Smith.   

Abstract

BACKGROUND: Project Education and Access to Services and Testing (EAST) worked with a community advisory board (CAB) to (1) identify individual-level, provider-level, and community-level factors influencing attitudes about human immunodeficiency virus (HIV) and HIV/acquired immuno-deficiency syndrome (AIDS) research and (2) develop and test a community-based HIV clinical trials educational intervention in six rural counties in the Southeast.
OBJECTIVES: We describe the processes and impact of forming and collaborating with a rural, multicommunity CAB.
METHODS: CAB members included community leaders, providers, and people living with HIV/AIDS (PLWHA). CAB engagement emphasized respect and confidentiality. Tape-recorded meeting minutes and debriefing notes were used in analysis.
RESULTS: The CAB identified physical and social parameters of the communities, built community trust, informed research design and implementation, and helped to navigate the impact of stigma. Major barriers to engagement were distance and geographic dispersion.
CONCLUSIONS: CABs can make a critical difference in conducting culturally appropriate and successful research in rural communities.

Entities:  

Mesh:

Year:  2015        PMID: 25981423     DOI: 10.1353/cpr.2015.0014

Source DB:  PubMed          Journal:  Prog Community Health Partnersh        ISSN: 1557-0541


  8 in total

1.  The Patient-Centered Medical Home as a Community-based Strategy.

Authors:  Berkeley A Franz; John W Murphy
Journal:  Perm J       Date:  2017

2.  Managing community engagement in research in Uganda: insights from practices in HIV/AIDS research.

Authors:  John Barugahare; Nancy E Kass
Journal:  BMC Med Ethics       Date:  2022-06-14       Impact factor: 2.834

3.  Expanding community engagement in HIV clinical trials: a pilot study using crowdsourcing.

Authors:  Suzanne Day; Allison Mathews; Meredith Blumberg; Thi Vu; Hailey Mason; Stuart Rennie; JoAnne D Kuruc; Cynthia L Gay; David M Margolis; Joseph D Tucker
Journal:  AIDS       Date:  2020-07-01       Impact factor: 4.177

4.  Building Partnerships and Stakeholder Relationships for HIV Prevention: Longitudinal Cohort Study Focuses on Community Engagement.

Authors:  Rondalya D DeShields; Jonathan Paul Lucas; Melissa Turner; Kemi Amola; Valarie Hunter; Stephanie Lykes; Anne M Rompalo; Sten H Vermund; Suzanne Fischer; Danielle F Haley
Journal:  Prog Community Health Partnersh       Date:  2020

5.  Community Advisory Boards Guiding Engaged Research Efforts within a Clinical Translational Sciences Award: Key Contextual Factors Explored.

Authors:  Jacqueline R Halladay; Katrina E Donahue; Betsy Sleath; Dan Reuland; Adina Black; C Madeline Mitchell; Carol E Breland; Tamera Coyne-Beasley; Kathleen Mottus; Sable Noelle Watson; Virginia Lewis; Mysha Wynn; Giselle Corbie-Smith
Journal:  Prog Community Health Partnersh       Date:  2017

6.  Successfully Recruiting Black and Hispanic/Latino Adolescents for Sexually Transmitted Infection and HIV Prevention Research.

Authors:  Erin L P Bradley; Yzette Lanier; Afekwo M Ukuku Miller; Bridgette M Brawner; Madeline Y Sutton
Journal:  J Racial Ethn Health Disparities       Date:  2019-09-13

7.  Stakeholder engagement to inform HIV clinical trials: a systematic review of the evidence.

Authors:  Suzanne Day; Meredith Blumberg; Thi Vu; Yang Zhao; Stuart Rennie; Joseph D Tucker
Journal:  J Int AIDS Soc       Date:  2018-10       Impact factor: 5.396

8.  A Community Engagement Advisory Board as a strategy to improve research engagement and build institutional capacity for community-engaged research.

Authors:  Alicia K Matthews; Emily E Anderson; Marilyn Willis; Amparo Castillo; Wendy Choure
Journal:  J Clin Transl Sci       Date:  2018-08-08
  8 in total

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