Sabrina Cavallo1, Annette Majnemer1, Barbara Mazer1, Gevorg Chilingaryan1, Debbie Ehrmann Feldman1. 1. From the Département de Médecine Sociale et Préventive, École de Santé Publique, and the École de Réadaptation, Faculté de Médecine, Université de Montréal; The Montreal Children's Hospital; McGill University Health Center; The Institut de Recherche en Santé Publique Université de Montréal; The Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal; The School of Physical and Occupational Therapy, McGill University; The Public Health Department, Montréal; The Jewish Rehabilitation Hospital, Laval, Québec, Canada.S. Cavallo, MSc, BSc(OT), Département de Médecine Sociale et Préventive, École de Santé Publique, Université de Montréal, Montreal Children's Hospital, McGill University Health Center, Institut de Recherche en Santé Publique Université de Montréal, and Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, and the Institut de Réadaptation de Montréal; A. Majnemer, PhD, OT, School of Physical and Occupational Therapy, McGill University, Montreal Children's Hospital, and McGill University Health Center; B. Mazer, PhD, BSc(OT), Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal, School of Physical and Occupational Therapy, McGill University, and Jewish Rehabilitation Hospital; G. Chilingaryan, DMD, MPH, Département de Médecine Sociale et Préventive, École de Santé Publique, Université de Montréal, and Jewish Rehabilitation Hospital; D. Ehrmann Feldman, PhD, PT, Département de Médecine Sociale et Préventive, École de Santé Publique, Université de Montréal, Institut de Recherche en Santé Publique Université de Montréal, Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal, École de Réadaptation, Faculté de Médecine, Université de Montréal, Montreal Children's Hospital, and t
Abstract
OBJECTIVE: To describe the level of participation in leisure activities among children and youth with arthritis, as well as to identify the sociodemographic (age, sex, family income), disease-related (functional limitations, disease duration, pain, medication use, child's need for assistance), and contextual factors (use of rehabilitation services, proximity of local recreation facilities, cost of activities) that may be associated. METHODS: Data from the Participation and Activity Limitation Survey (PALS) 2006, a Canadian postcensus survey, was analyzed. Bivariate and multivariable linear regression analyses were applied to examine the associations between the sample's level of participation in leisure activities, and sociodemographic, disease-related, and contextual characteristics. RESULTS: In Canada in 2006, an estimated 4350 children ranging in age from 5 to 14 years were living with arthritis. Fifty-six percent of parents reported that arthritis restricted their child's participation in leisure activities. Bivariate analysis showed that the availability of local recreational facilities, the affordability of activities, and the child not requiring any assistance were all associated (modified Bonferroni correction α < 0.005) with greater participation in various types of leisure activities. Multiple linear regressions showed that higher family income (β 0.47, 95% CI 0.09, 0.85) and greater perceived pain (β 0.59, 95% CI 0.07, 1.10) were positively associated with involvement in informal leisure. CONCLUSION: Our findings underline the importance of considering contextual factors in developing treatment plans aimed at improving participation in leisure activities among children with arthritis. Future longitudinal studies targeting children living with arthritis could provide pertinent information on participation over fluctuations in disease status.
OBJECTIVE: To describe the level of participation in leisure activities among children and youth with arthritis, as well as to identify the sociodemographic (age, sex, family income), disease-related (functional limitations, disease duration, pain, medication use, child's need for assistance), and contextual factors (use of rehabilitation services, proximity of local recreation facilities, cost of activities) that may be associated. METHODS: Data from the Participation and Activity Limitation Survey (PALS) 2006, a Canadian postcensus survey, was analyzed. Bivariate and multivariable linear regression analyses were applied to examine the associations between the sample's level of participation in leisure activities, and sociodemographic, disease-related, and contextual characteristics. RESULTS: In Canada in 2006, an estimated 4350 children ranging in age from 5 to 14 years were living with arthritis. Fifty-six percent of parents reported that arthritis restricted their child's participation in leisure activities. Bivariate analysis showed that the availability of local recreational facilities, the affordability of activities, and the child not requiring any assistance were all associated (modified Bonferroni correction α < 0.005) with greater participation in various types of leisure activities. Multiple linear regressions showed that higher family income (β 0.47, 95% CI 0.09, 0.85) and greater perceived pain (β 0.59, 95% CI 0.07, 1.10) were positively associated with involvement in informal leisure. CONCLUSION: Our findings underline the importance of considering contextual factors in developing treatment plans aimed at improving participation in leisure activities among children with arthritis. Future longitudinal studies targeting children living with arthritis could provide pertinent information on participation over fluctuations in disease status.
Authors: Stella Arakelyan; Donald Maciver; Robert Rush; Anne O'hare; Kirsty Forsyth Journal: Dev Med Child Neurol Date: 2019-01-06 Impact factor: 5.449