OBJECTIVES: This study aimed to identify the factors determining carer burden in a group of carers supporting people with dementia (PwD) deemed to be at high risk of moving to long-term residential or nursing home care. DESIGN: National data collected as part of the European RightTimePlaceCare project were analysed. This included 81 dyads of community-dwelling people with dementia and their informal carers. METHODS: Structured face-to-face interviews were conducted in North West England between June 2011 and April 2012. Interviews collected data relating to the person with dementia (cognitive functioning, activities of daily living, neuropsychiatric symptoms and formal and informal dementia care resource use) and carers' level of burden (22-item Zarit Burden Index), hours spent caring and availability of additional informal support. RESULTS: Logistic regression analysis identified five factors associated with high carer burden: neuropsychiatric symptomatology in the PwD, intensive supervision of the PwD by the carer, being a female carer, being an adult-child carer and absence of informal carer support. Use of home care or day care services was unrelated to burden. CONCLUSION: Support programmes focusing on challenging behaviours and risk management may be of benefit to carers. More individually tailored interventions for specific carer groups including female or younger carers may be warranted. The implementation of peer support networks could be beneficial to carers who lack additional family support.
OBJECTIVES: This study aimed to identify the factors determining carer burden in a group of carers supporting people with dementia (PwD) deemed to be at high risk of moving to long-term residential or nursing home care. DESIGN: National data collected as part of the European RightTimePlaceCare project were analysed. This included 81 dyads of community-dwelling people with dementia and their informal carers. METHODS: Structured face-to-face interviews were conducted in North West England between June 2011 and April 2012. Interviews collected data relating to the person with dementia (cognitive functioning, activities of daily living, neuropsychiatric symptoms and formal and informal dementia care resource use) and carers' level of burden (22-item Zarit Burden Index), hours spent caring and availability of additional informal support. RESULTS: Logistic regression analysis identified five factors associated with high carer burden: neuropsychiatric symptomatology in the PwD, intensive supervision of the PwD by the carer, being a female carer, being an adult-child carer and absence of informal carer support. Use of home care or day care services was unrelated to burden. CONCLUSION: Support programmes focusing on challenging behaviours and risk management may be of benefit to carers. More individually tailored interventions for specific carer groups including female or younger carers may be warranted. The implementation of peer support networks could be beneficial to carers who lack additional family support.
Authors: Clarissa Giebel; Kerry Hanna; Manoj Rajagopal; Aravind Komuravelli; Jacqueline Cannon; Justine Shenton; Ruth Eley; Anna Gaughan; Steve Callaghan; Hilary Tetlow; Stan Limbert; Rosie Whittington; Carol Rogers; Kym Ward; Lisa Shaw; Sarah Butchard; Mark Gabbay Journal: BMC Public Health Date: 2021-04-20 Impact factor: 3.295
Authors: Nienke van Wezel; Iris van der Heide; Walter L J M Devillé; Gozde Duran; Rianne Hoopman; Marco M Blom; Anne Margriet Pot; Peter Spreeuwenberg; Anneke L Francke Journal: BMC Geriatr Date: 2021-04-29 Impact factor: 3.921
Authors: Emilia Grycuk; Yaohua Chen; Arianna Almirall-Sanchez; Dawn Higgins; Miriam Galvin; Joseph Kane; Irina Kinchin; Brian Lawlor; Carol Rogan; Gregor Russell; Roger O'Sullivan; Iracema Leroi Journal: Int J Geriatr Psychiatry Date: 2022-06 Impact factor: 3.850
Authors: Daniel Lüdecke; Barbara Bien; Kevin McKee; Barbro Krevers; Elizabeth Mestheneos; Mirko Di Rosa; Olaf von dem Knesebeck; Christopher Kofahl Journal: PLoS One Date: 2018-04-03 Impact factor: 3.240