| Literature DB >> 25938285 |
Jacques Hutsebaut1, Wim Janssens, Renaud Louis, Frank Willersinn, Xavier Stephenne, Etienne Sokal, Eric Derom.
Abstract
A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.Entities:
Keywords: COPD; alpha-1 antitrypsin deficiency; registry
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Year: 2015 PMID： 25938285 DOI： 10.3109/15412555.2015.1021916
Source DB: PubMed Journal: COPD ISSN： 1541-2563 Impact factor: 2.409