Literature DB >> 25901503

Developmental changes in the roles of patients and families in type 1 diabetes management.

Jessica T Markowitz1, Katharine C Garvey, Lori M B Laffel.   

Abstract

Developmentally-tailored diabetes self-care education and support are integral parts of contemporary multidisciplinary T1D care. The patient with T1D must have the support of the family and the diabetes team to maintain the rigors of diabetes management, but the specific roles of patients and families with regard to daily diabetes tasks change considerably throughout the developmental span of early childhood, middle childhood/school-age years, and adolescence. This review provides a framework of key normative developmental issues for each of these developmental stages. Within this context, ideal family diabetes management is reviewed within each developmental stage and anticipated challenges that can arise during these stages and that can adversely impact diabetes management are presented. This paper also summarizes empirical evidence for specific intervention and care strategies to support optimal diabetes management across these stages in order to maximize opportunities for a successful transfer of diabetes management tasks from parents to maturing youth. Finally, the review provides an emphasis on approaches to promote family teamwork and adolescent diabetes self-care adherence as well as opportunities to use novel technology platforms as a means to support optimal diabetes management.

Entities:  

Mesh:

Year:  2015        PMID: 25901503      PMCID: PMC4826732          DOI: 10.2174/1573399811666150421114146

Source DB:  PubMed          Journal:  Curr Diabetes Rev        ISSN: 1573-3998


  69 in total

1.  A randomized controlled trial of Sweet Talk, a text-messaging system to support young people with diabetes.

Authors:  V L Franklin; A Waller; C Pagliari; S A Greene
Journal:  Diabet Med       Date:  2006-12       Impact factor: 4.359

2.  Effects of behavioral family systems therapy for diabetes on adolescents' family relationships, treatment adherence, and metabolic control.

Authors:  Tim Wysocki; Michael A Harris; Lisa M Buckloh; Deborah Mertlich; Amanda Sobel Lochrie; Alexandra Taylor; Michelle Sadler; Nelly Mauras; Neil H White
Journal:  J Pediatr Psychol       Date:  2006-01-09

3.  Momentary assessment of social context and glucose monitoring adherence in adolescents with type 1 diabetes.

Authors:  Joshua S Borus; Emily Blood; Lisa K Volkening; Lori Laffel; Lydia A Shrier
Journal:  J Adolesc Health       Date:  2012-12-12       Impact factor: 5.012

4.  The role of friendship in the lives of male and female adolescents: does diabetes make a difference?

Authors:  Vicki S Helgeson; Kerry A Reynolds; Oscar Escobar; Linda Siminerio; Dorothy Becker
Journal:  J Adolesc Health       Date:  2006-10-05       Impact factor: 5.012

5.  Disentangling the roles of parental monitoring and family conflict in adolescents' management of type 1 diabetes.

Authors:  Marisa E Hilliard; Clarissa S Holmes; Rusan Chen; Kathryn Maher; Elizabeth Robinson; Randi Streisand
Journal:  Health Psychol       Date:  2012-04-30       Impact factor: 4.267

6.  Family influence on self-care, quality of life, and metabolic control in school-age children and adolescents with type 1 diabetes.

Authors:  Melissa Spezia Faulkner; Lu-I Chang
Journal:  J Pediatr Nurs       Date:  2007-02       Impact factor: 2.145

7.  Family-based psychoeducation and Care Ambassador intervention to improve glycemic control in youth with type 1 diabetes: a randomized trial.

Authors:  Michelle L Katz; Lisa K Volkening; Deborah A Butler; Barbara J Anderson; Lori M Laffel
Journal:  Pediatr Diabetes       Date:  2013-08-05       Impact factor: 4.866

8.  Most youth with type 1 diabetes in the T1D Exchange Clinic Registry do not meet American Diabetes Association or International Society for Pediatric and Adolescent Diabetes clinical guidelines.

Authors:  Jamie R Wood; Kellee M Miller; David M Maahs; Roy W Beck; Linda A DiMeglio; Ingrid M Libman; Maryanne Quinn; William V Tamborlane; Stephanie E Woerner
Journal:  Diabetes Care       Date:  2013-01-22       Impact factor: 19.112

Review 9.  Technology and intensive management in youth with type 1 diabetes: state of the art.

Authors:  Jamie R Wood; Lori M B Laffel
Journal:  Curr Diab Rep       Date:  2007-04       Impact factor: 5.430

10.  Internet psycho-education programs improve outcomes in youth with type 1 diabetes.

Authors:  Margaret Grey; Robin Whittemore; Sangchoon Jeon; Kathryn Murphy; Melissa S Faulkner; Alan Delamater
Journal:  Diabetes Care       Date:  2013-04-11       Impact factor: 19.112

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  24 in total

1.  Development and Validation of the Pediatric Diabetes Routines Questionnaire for Adolescents.

Authors:  Jessica S Pierce; Sara S Jordan; Randolph C Arnau
Journal:  J Clin Psychol Med Settings       Date:  2019-03

2.  Creation of Experience-based Celiac Benchmarks: The First Step in Pretransition Self-management Assessment.

Authors:  Laurie N Fishman; Jennifer Kearney; Maya DeGroote; Enju Liu; Janis Arnold; Dascha C Weir
Journal:  J Pediatr Gastroenterol Nutr       Date:  2018-07       Impact factor: 2.839

3.  Technology Use for Problem Solving in Adolescent Type 1 Diabetes.

Authors:  Ling Hinshaw; Ananda Basu
Journal:  Diabetes Technol Ther       Date:  2015-07       Impact factor: 6.118

4.  Greater number of perceived barriers to hydroxyurea associated with poorer health-related quality of life in youth with sickle cell disease.

Authors:  Arlene Smaldone; Deepa Manwani; Nancy S Green
Journal:  Pediatr Blood Cancer       Date:  2019-04-02       Impact factor: 3.167

5.  Diabetes-specific family conflict and responsibility among emerging adults with type 1 diabetes.

Authors:  MaryJane S Campbell; Jichuan Wang; Yao Cheng; Fran R Cogen; Randi Streisand; Maureen Monaghan
Journal:  J Fam Psychol       Date:  2019-04-25

6.  HABIT, a Randomized Feasibility Trial to Increase Hydroxyurea Adherence, Suggests Improved Health-Related Quality of Life in Youths with Sickle Cell Disease.

Authors:  Arlene Smaldone; Sally Findley; Deepa Manwani; Haomiao Jia; Nancy S Green
Journal:  J Pediatr       Date:  2018-03-20       Impact factor: 4.406

7.  Positive Well-Being in Youth With Type 1 Diabetes During Early Adolescence.

Authors:  Dara M Steinberg; Barbara J Anderson; Maartje de Wit; Marisa E Hilliard
Journal:  J Early Adolesc       Date:  2017-02-12

Review 8.  The Relationship Between Executive Functioning, Type 1 Diabetes Self-Management Behaviors, and Glycemic Control in Adolescents and Young Adults.

Authors:  Ke Ding; Cheyenne M Reynolds; Kimberly A Driscoll; David M Janicke
Journal:  Curr Diab Rep       Date:  2021-02-22       Impact factor: 4.810

9.  Understanding adolescent and parent acceptability and feasibility experience in a large Type 1 diabetes mellitus behavioural trial.

Authors:  D H Grossoehme; E Smith; D Standiford; N Morwessel; J Kichler; D M Maahs; K Driscoll; M Seid
Journal:  Diabet Med       Date:  2019-02-12       Impact factor: 4.359

10.  Adherence in adolescents with Type 1 diabetes: strategies and considerations for assessment in research and practice.

Authors:  Kajal Gandhi; Bach-Mai K Vu; Sahar S Eshtehardi; Rachel M Wasserman; Marisa E Hilliard
Journal:  Diabetes Manag (Lond)       Date:  2015-11
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