Seppo Taskinen1, Janne S Suominen2, Aino K Mattila3. 1. Department of Pediatric Surgery, Children's Hospital, University of Helsinki, Helsinki, Finland. Electronic address: seppo.taskinen@hus.fi. 2. Department of Pediatric Surgery, Children's Hospital, University of Helsinki, Helsinki, Finland. 3. Gender Identity Unit, Department of Adult Psychiatry, University Hospital of Tampere, Tampere, Finland.
Abstract
OBJECTIVE: To evaluate health-related quality of life (HRQoL) and psychiatric symptom aspects in patients with bladder exstrophy and epispadias. METHODS: Sixty-two adolescents or adults operated for BEE were mailed questionnaires evaluating HRQoL (RAND-36 questionnaire) and psychiatric symptoms (SCL-90 questionnaire). Thirty-two patients with a median age of 28 years responded. The results were compared with national reference values. RESULTS: Overall, RAND-36 scores and SCL-90 scores were comparable in the patients and the referral population. However, 7 patients (21%) had high SCL-90 scores, suggesting mental health problems. The patients with unsatisfactory genital appearance, urinary incontinence, or bladder augmentation tended to have poorer HRQoL and psychiatric symptom scores. CONCLUSION: Most adults with BEE have satisfactory HRQoL and mental health. However, a possible mental health problem can be found in one-fifth of the patients. Abnormal genitalia and bladder function may have a negative effect on HRQoL and mental health. Bladder augmentation is not associated with better outcome than mild incontinence.
OBJECTIVE: To evaluate health-related quality of life (HRQoL) and psychiatric symptom aspects in patients with bladder exstrophy and epispadias. METHODS: Sixty-two adolescents or adults operated for BEE were mailed questionnaires evaluating HRQoL (RAND-36 questionnaire) and psychiatric symptoms (SCL-90 questionnaire). Thirty-two patients with a median age of 28 years responded. The results were compared with national reference values. RESULTS: Overall, RAND-36 scores and SCL-90 scores were comparable in the patients and the referral population. However, 7 patients (21%) had high SCL-90 scores, suggesting mental health problems. The patients with unsatisfactory genital appearance, urinary incontinence, or bladder augmentation tended to have poorer HRQoL and psychiatric symptom scores. CONCLUSION: Most adults with BEE have satisfactory HRQoL and mental health. However, a possible mental health problem can be found in one-fifth of the patients. Abnormal genitalia and bladder function may have a negative effect on HRQoL and mental health. Bladder augmentation is not associated with better outcome than mild incontinence.
Authors: Jose Arnaldo Shiomi da Cruz; Bruno de Mattos; Miguel Srougi; Hiep Nguyen; Rafael Bonan; Francisco Denes; Amilcar Giron; Carlo Passerotti Journal: Cent European J Urol Date: 2016-03-24