Literature DB >> 25865031

Knowledge mobilization to spread awareness of the 'F-words' in childhood disability: lessons from a family-researcher partnership.

A Cross1,2, P Rosenbaum2, D Grahovac2, D Kay2, J W Gorter2.   

Abstract

BACKGROUND: In 2012, two CanChild researchers published an article in Child: Care, Health and Development titled 'The "F-words" in childhood disability: I swear this is how we should think!' Building on the World Health Organization's International Classification of Functioning, Disability and Health (ICF) framework, the article featured key strengths-based ICF themes (i.e. the 'F-words' - Function, Family, Fitness, Fun, Friends and Future). This paper reports on a knowledge mobilization initiative designed to spread awareness of the 'F-words' ideas.
METHODS: Families and researchers collaborated to develop, disseminate and evaluate an online awareness video. The video used written descriptions, parents' reflections and their pictures, music and graphics to captivate the audience. Posted on the CanChild website in May 2014, information about the video was distributed via various dissemination strategies and evaluated by tracking its views and through an online survey.
RESULTS: After a 2-month evaluation, there were 715 views and 137 survey responses. Of the survey responses, 89% lived in Canada, 55% had not previously heard of the 'F-words', 98% 'extremely liked'/'liked the ideas' and 88% indicated they would share the video.
CONCLUSIONS: By creating a short and captivating video, we were able to spread awareness to a wide audience in a short period of time. Engaging families throughout the project was critical to the success of the video. By working together, we hope to continue bridging research and practice and moving the 'F-words' concepts forward one 'word' at a time.
© 2015 John Wiley & Sons Ltd.

Entities:  

Keywords:  ICF; childhood disability; family; knowledge mobilization; multimedia

Mesh:

Year:  2015        PMID: 25865031     DOI: 10.1111/cch.12249

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  4 in total

1.  Childhood disability: can people implement the F-words in low and middle-income countries - and how?

Authors:  Hércules Ribeiro Leite; Paula Silva de Carvalho Chagas; Peter Rosenbaum
Journal:  Braz J Phys Ther       Date:  2020-07-28       Impact factor: 3.377

2.  Availability and Quality of Web Resources for Parents of Children With Disability: Content Analysis and Usability Study.

Authors:  Anabel Buteau-Poulin; Camille Gosselin; Andréa Bergeron-Ouellet; Jocelyne Kiss; Marie-Ève Lamontagne; Désirée Maltais; Christiane Trottier; Chantal Desmarais
Journal:  JMIR Pediatr Parent       Date:  2020-11-10

3.  Using qualitative research perspectives to inform patient engagement in research.

Authors:  Michelle Phoenix; Tram Nguyen; Stephen J Gentles; Sandra VanderKaay; Andrea Cross; Linda Nguyen
Journal:  Res Involv Engagem       Date:  2018-07-06

4.  Parents' Expressions of Concerns and Hopes for the Future and Their Concomitant Assessments of Disability in Their Children.

Authors:  Niels Ove Illum; Mette Bonderup; Kim Oren Gradel
Journal:  Clin Med Insights Pediatr       Date:  2018-06-27
  4 in total

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