Literature DB >> 25852203

Is There a Need for Early Palliative Care in Patients With Life-Limiting Illnesses? Interview Study With Patients About Experienced Care Needs From Diagnosis Onward.

Kim Beernaert1, Luc Deliens2, Aline De Vleminck2, Dirk Devroey3, Koen Pardon2, Lieve Van den Block4, Joachim Cohen2.   

Abstract

The early integration of specialist palliative care has been shown to benefit the quality of life of patients with advanced cancer. In order to explore whether other seriously ill people and people at even earlier phases would also benefit from early palliative care, we conducted 18 qualitative interviews with people having cancer, chronic obstructive lung disease, heart failure, or dementia at different phases of the illness trajectory about how they experienced care needs related to their disease from diagnosis onward. Respondents experienced needs within the different domains of palliative care at different stages of the illness and different illness types or duration of the illness. This study contributes to the understanding of primary care needs of patients for whom palliative care (not necessarily specialized palliative care) could be beneficial.
© The Author(s) 2015.

Entities:  

Keywords:  cancer; chronic care; dementia; organ failure; palliative care; symptoms

Mesh:

Year:  2015        PMID: 25852203     DOI: 10.1177/1049909115577352

Source DB:  PubMed          Journal:  Am J Hosp Palliat Care        ISSN: 1049-9091            Impact factor:   2.500


  14 in total

Review 1.  [Provision of palliative care for people with advanced dementia].

Authors:  J Diehl-Schmid; L Riedl; U Rüsing; J Hartmann; M Bertok; C Levin; J Hamann; M Arcand; S Lorenzl; B Feddersen; R J Jox
Journal:  Nervenarzt       Date:  2018-05       Impact factor: 1.214

2.  "I'd Have to Basically Be on My Deathbed": Heart Failure Patients' Perceptions of and Preferences for Palliative Care.

Authors:  Rachel A Hadler; Brett R Curtis; Dara Z Ikejiani; David B Bekelman; Matthew Harinstein; Marie A Bakitas; Rachel Hess; Robert M Arnold; Dio Kavalieratos
Journal:  J Palliat Med       Date:  2020-01-09       Impact factor: 2.947

3.  Primary palliative care. Caring for patients with life-limiting illness in the community.

Authors:  Sylvia McCarthy
Journal:  Malays Fam Physician       Date:  2021-11-28

4.  Before Hospice: Symptom Burden, Dementia, and Social Participation in the Last Year of Life.

Authors:  Halima Amjad; Scott H Snyder; Jennifer L Wolff; Esther Oh; Quincy M Samus
Journal:  J Palliat Med       Date:  2019-05-06       Impact factor: 2.947

5.  Early Palliative Care and Its Role in Oncology: A Qualitative Study.

Authors:  Breffni Hannon; Nadia Swami; Ashley Pope; Natasha Leighl; Gary Rodin; Monika Krzyzanowska; Camilla Zimmermann
Journal:  Oncologist       Date:  2016-07-22

6.  How far along the disease trajectory? An examination of the time-related patient characteristics in the palliative oncology literature.

Authors:  Supakarn Tayjasanant; Eduardo Bruera; David Hui
Journal:  Support Care Cancer       Date:  2016-04-29       Impact factor: 3.603

7.  Effect of early palliative care on quality of life in patients with non-small-cell lung cancer.

Authors:  H Zhuang; Y Ma; L Wang; H Zhang
Journal:  Curr Oncol       Date:  2018-02-28       Impact factor: 3.677

8.  Differences in place of death between lung cancer and COPD patients: a 14-country study using death certificate data.

Authors:  Joachim Cohen; Kim Beernaert; Lieve Van den Block; Lucas Morin; Katherine Hunt; Guido Miccinesi; Marylou Cardenas-Turanzas; Bregje Onwuteaka-Philipsen; Rod MacLeod; Miguel Ruiz-Ramos; Donna M Wilson; Martin Loucka; Agnes Csikos; Yong-Joo Rhee; Joan Teno; Winne Ko; Luc Deliens; Dirk Houttekier
Journal:  NPJ Prim Care Respir Med       Date:  2017-03-03       Impact factor: 2.871

9.  Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies.

Authors:  Marcus Sellars; Olivia Chung; Linda Nolte; Allison Tong; Dimity Pond; Deirdre Fetherstonhaugh; Fran McInerney; Craig Sinclair; Karen M Detering
Journal:  Palliat Med       Date:  2018-11-08       Impact factor: 4.762

Review 10.  Patients' Experiences of Telehealth in Palliative Home Care: Scoping Review.

Authors:  Simen A Steindal; Andréa Aparecida Goncalves Nes; Tove E Godskesen; Alfhild Dihle; Susanne Lind; Anette Winger; Anna Klarare
Journal:  J Med Internet Res       Date:  2020-05-05       Impact factor: 5.428

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