Mélanie Levasseur1,2, Hélène Pigot2,3, Mélanie Couture4, Nathalie Bier5,6, Bonnie Swaine6,7, Pierre-Yves Therriault4,8, Sylvain Giroux2,3. 1. a Faculty of Medicine and Health Sciences , School of Rehabilitation, Université de Sherbrooke , Sherbrooke , Québec , Canada . 2. b Research Centre on Aging, Health and Social Services Centre, University Institute of Geriatrics of Sherbrooke , Sherbrooke , Québec , Canada . 3. c DOMUS Laboratory, Faculty of Science , Université de Sherbrooke , Sherbrooke , Québec , Canada . 4. d Centre for Research and Expertise in Social Gerontology (CREGÉS), CSSS-Cavendish , Côte St-Luc , Québec , Canada . 5. e Research Centre, University Institute of Geriatrics of Montréal , Montréal , Québec , Canada . 6. f Faculty of Medicine , School of Rehabilitation, Université de Montréal , Montréal , Québec , Canada . 7. g Centre for Interdisciplinary Research in Rehabilitation of Greater Montréal, Lucie-Bruneau Rehabilitation Centre , Montréal , Québec , Canada , and. 8. h Department of Occupational Therapy , Université du Québec à Trois-Rivières , Trois-Rivières , Québec , Canada.
Abstract
PURPOSE: This study explored the personalized and collective participation needs of people with acquired brain injury (ABI) living in a future shared community smart home. METHODS: An action research study was conducted with 16 persons, seven with ABI, four caregivers and five rehabilitation or smart home healthcare providers. Twelve interviews and two focus groups were conducted, audiotaped, transcribed and analyzed for content. RESULTS: Seventy personalized and 18 collective participation needs were reported related to daily and social activities. Personalized needs concerned interpersonal relationships, general organization of activities, leisure, housing, fitness and nutrition. Collective needs related mainly to housing, general organization of activities and nutrition. CONCLUSIONS: Personalized and collective participation needs of people with ABI planning to live in a community smart home are diverse and concern daily as well as social activities. Implications for Rehabilitation To meet participation needs of people with ABI, the design of smart homes must consider all categories of daily and social activities. Considering personalized and collective needs allowed identifying exclusive examples of each. As some persons with ABI had difficulty identifying their needs as well as accepting their limitations and the assistance required, rehabilitation professionals must be involved in needs identification.
PURPOSE: This study explored the personalized and collective participation needs of people with acquired brain injury (ABI) living in a future shared community smart home. METHODS: An action research study was conducted with 16 persons, seven with ABI, four caregivers and five rehabilitation or smart home healthcare providers. Twelve interviews and two focus groups were conducted, audiotaped, transcribed and analyzed for content. RESULTS: Seventy personalized and 18 collective participation needs were reported related to daily and social activities. Personalized needs concerned interpersonal relationships, general organization of activities, leisure, housing, fitness and nutrition. Collective needs related mainly to housing, general organization of activities and nutrition. CONCLUSIONS: Personalized and collective participation needs of people with ABI planning to live in a community smart home are diverse and concern daily as well as social activities. Implications for Rehabilitation To meet participation needs of people with ABI, the design of smart homes must consider all categories of daily and social activities. Considering personalized and collective needs allowed identifying exclusive examples of each. As some persons with ABI had difficulty identifying their needs as well as accepting their limitations and the assistance required, rehabilitation professionals must be involved in needs identification.
Entities:
Keywords:
Action research; cognitive assistance; community-based participatory research; controlled environment; nervous system diseases; participation needs; residence characteristics; smart home