Literature DB >> 25771267

A Multipronged, Adaptive Approach for the Recruitment of Diverse Community-Residing Elders with Memory Impairment: The MIND at Home Experience.

Quincy M Samus1, Halima Amjad2, Deirdre Johnston3, Betty S Black3, Stephen J Bartels4, Constantine G Lyketsos3.   

Abstract

OBJECTIVE: To provide a critical review of a multipronged recruitment approach used to identify, recruit, and enroll a diverse community-based sample of persons with memory disorders into an 18-month randomized, controlled dementia care coordination trial.
METHODS: Descriptive analysis of a recruitment approach comprised five strategies: community liaison ("gatekeepers") method, letters sent from trusted community organizations, display and distribution of study materials in the community, research registries, and general community outreach and engagement activities. Participants were 55 community organizations and 63 staff of community organizations in Baltimore, Maryland. Participant referral sources, eligibility, enrollment status, demographics, and loss to follow-up were tracked in a relational access database.
RESULTS: In total, 1,275 referrals were received and 303 socioeconomically, cognitively, and racially diverse community-dwelling persons with cognitive disorders were enrolled. Most referrals came from letters sent from community organizations directly to clients on the study's behalf (39%) and referrals from community liaison organizations (29%). African American/black enrollees were most likely to come from community liaison organizations.
CONCLUSION: A multipronged, adaptive approach led to the successful recruitment of diverse community-residing elders with memory impairment for an intervention trial. Key factors for success included using a range of evidence-supported outreach strategies, forming key strategic community partnerships, seeking regular stakeholder input through all research phases, and obtaining "buy-in" from community stakeholders by aligning study objectives with perceived unmet community needs.
Copyright © 2015 American Association for Geriatric Psychiatry. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Dementia; case finding; community outreach; memory disorders; recruitment

Mesh:

Year:  2015        PMID: 25771267      PMCID: PMC5226267          DOI: 10.1016/j.jagp.2015.01.005

Source DB:  PubMed          Journal:  Am J Geriatr Psychiatry        ISSN: 1064-7481            Impact factor:   4.105


  33 in total

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Review 2.  Recruitment of subjects into clinical trials for Alzheimer disease.

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4.  Recruitment of Older Adults: Success May Be in the Details.

Authors:  Judith C McHenry; Kathleen C Insel; Gilles O Einstein; Amy N Vidrine; Kari M Koerner; Daniel G Morrow
Journal:  Gerontologist       Date:  2012-08-16

5.  Underdiagnosis of dementia in primary care: variations in the observed prevalence and comparisons to the expected prevalence.

Authors:  Amanda Connolly; Ella Gaehl; Helen Martin; Julie Morris; Nitin Purandare
Journal:  Aging Ment Health       Date:  2011-07-21       Impact factor: 3.658

6.  Predictors of providing informed consent or assent for research participation in assisted living residents.

Authors:  Betty S Black; Jason Brandt; Peter V Rabins; Quincy M Samus; Cynthia D Steele; Constantine G Lyketsos; Adam Rosenblatt
Journal:  Am J Geriatr Psychiatry       Date:  2008-01       Impact factor: 4.105

7.  Caring for mental illness in the United States: a focus on older adults.

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8.  Detection and management of cognitive impairment in primary care: The Steel Valley Seniors Survey.

Authors:  Mary Ganguli; Eric Rodriguez; Benoit Mulsant; Stephanie Richards; Rajesh Pandav; Joni Vander Bilt; Hiroko H Dodge; Gary P Stoehr; Judith Saxton; Richard K Morycz; Robert T Rubin; Barry Farkas; Steven T DeKosky
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9.  Mental health services of the rural elderly outreach program.

Authors:  K C Buckwalter; M Smith; P Zevenbergen; D Russell
Journal:  Gerontologist       Date:  1991-06

10.  Alzheimer disease in the US population: prevalence estimates using the 2000 census.

Authors:  Liesi E Hebert; Paul A Scherr; Julia L Bienias; David A Bennett; Denis A Evans
Journal:  Arch Neurol       Date:  2003-08
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  8 in total

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Journal:  Contemp Clin Trials       Date:  2018-05-18       Impact factor: 2.226

2.  Representation of Racial and Ethnic Minority Populations in Dementia Prevention Trials: A Systematic Review.

Authors:  A R Shaw; J Perales-Puchalt; E Johnson; P Espinoza-Kissell; M Acosta-Rullan; S Frederick; A Lewis; H Chang; J Mahnken; E D Vidoni
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3.  Free-Text Documentation of Dementia Symptoms in Home Healthcare: A Natural Language Processing Study.

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4.  Progress and future challenges in aging and diversity research in the United States.

Authors:  Paul Brewster; Lisa Barnes; Mary Haan; Julene K Johnson; Jennifer J Manly; Anna María Nápoles; Rachel A Whitmer; Luis Carvajal-Carmona; Dawnte Early; Sarah Farias; Elizabeth Rose Mayeda; Rebecca Melrose; Oanh L Meyer; Adina Zeki Al Hazzouri; Ladson Hinton; Dan Mungas
Journal:  Alzheimers Dement       Date:  2018-09-19       Impact factor: 21.566

5.  Research Attitudes and Interest Among Elderly Latinxs: The Impact of a Collaborative Video and Community Peers.

Authors:  Margaret C Sewell; Judith Neugroschl; Mari Umpierre; Shehan Chin; Carolyn W Zhu; Nelly Velasco; Sabrina Gonzalez; Alexandra Acabá-Berrocal; Luca Bianchetti; Gabriela Silva; Alma Collazo; Mary Sano
Journal:  J Alzheimers Dis       Date:  2021       Impact factor: 4.472

Review 6.  Recruitment and retention of underrepresented populations in Alzheimer's disease research: A systematic review.

Authors:  Andrea L Gilmore-Bykovskyi; Yuanyuan Jin; Carey Gleason; Susan Flowers-Benton; Laura M Block; Peggye Dilworth-Anderson; Lisa L Barnes; Manish N Shah; Megan Zuelsdorff
Journal:  Alzheimers Dement (N Y)       Date:  2019-11-19

7.  Interactive Effects of Racial Identity and Repetitive Head Impacts on Cognitive Function, Structural MRI-Derived Volumetric Measures, and Cerebrospinal Fluid Tau and Aβ.

Authors:  Michael L Alosco; Yorghos Tripodis; Inga K Koerte; Jonathan D Jackson; Alicia S Chua; Megan Mariani; Olivia Haller; Éimear M Foley; Brett M Martin; Joseph Palmisano; Bhupinder Singh; Katie Green; Christian Lepage; Marc Muehlmann; Nikos Makris; Robert C Cantu; Alexander P Lin; Michael Coleman; Ofer Pasternak; Jesse Mez; Sylvain Bouix; Martha E Shenton; Robert A Stern
Journal:  Front Hum Neurosci       Date:  2019-12-20       Impact factor: 3.169

8.  Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives.

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  8 in total

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