Literature DB >> 25770463

Which public and why deliberate?--A scoping review of public deliberation in public health and health policy research.

Chris Degeling1, Stacy M Carter2, Lucie Rychetnik3.   

Abstract

Deliberative methods are of increasing interest to public health researchers and policymakers. We systematically searched the peer-reviewed literature to identify public health and health policy research involving deliberative methods and report how deliberative methods have been used. We applied a taxonomy developed with reference to health policy and science and technology studies literatures to distinguish how deliberative methods engage different publics: citizens (ordinary people who are unfamiliar with the issues), consumers (those with relevant personal experience e.g. of illness) and advocates (those with technical expertise or partisan interests). We searched four databases for empirical studies in English published 1996-2013. This identified 78 articles reporting on 62 distinct events from the UK, USA, Canada, Australasia, Europe, Israel, Asia and Africa. Ten different types of deliberative techniques were used to represent and capture the interests and preferences of different types of public. Citizens were typically directed to consider community interests and were treated as a resource to increase democratic legitimacy. Citizens were preferred in methodological studies (those focused on understanding the techniques). Consumers were directed to focus on personal preferences; thus convened not as a source of policy decisions, but of knowledge about what those affected by the issue would accept. Advocates-who are most commonly used as expert witnesses in juries-were sometimes engaged to deliberate with consumers or citizens. This almost always occurred in projects directly linked to policy processes. This suggests health policymakers may value deliberative methods as a way of understanding disagreement between perspectives. Overall however, the 'type' of public sought was often not explicit, and their role not specified. This review provides new insight into the heterogeneity and rising popularity of deliberative methods, and indicates a need for greater clarity regarding both the constitution of publics and the relative usefulness of different deliberative techniques.
Copyright © 2015 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Deliberative methods; Health policy; Policy making; Public health; Public participation

Mesh:

Year:  2015        PMID: 25770463     DOI: 10.1016/j.socscimed.2015.03.009

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  46 in total

1.  Ethics and Childhood Vaccination Policy in the United States.

Authors:  Kristin S Hendrix; Lynne A Sturm; Gregory D Zimet; Eric M Meslin
Journal:  Am J Public Health       Date:  2015-12-21       Impact factor: 9.308

2.  Justice and public participation in universal health coverage: when is tiered coverage unfair and who should decide?

Authors:  Bridget Pratt
Journal:  Asian Bioeth Rev       Date:  2018-11-06

3.  Public Deliberation in Service to Health Equity: Investing Resources in Roanoke, Virginia.

Authors:  Alexandra Kamler; Linda Weiss; Chris Chittum; Shauneequa Owusu; Marthe R Gold
Journal:  NAM Perspect       Date:  2020-08-17

4.  Tribal Deliberations about Precision Medicine Research: Addressing Diversity and Inequity in Democratic Deliberation Design and Evaluation.

Authors:  Erika Blacksher; Susan Brown Trinidad; R Brian Woodbury; Scarlett E Hopkins; Erica L Woodahl; Bert B Boyer; Wylie Burke; Vanessa Hiratsuka
Journal:  J Empir Res Hum Res Ethics       Date:  2022-02-28       Impact factor: 1.978

5.  Avoiding a Tyranny of the Majority: Public Deliberation as Citizen Science, Sensitive Issues, and Vulnerable Populations.

Authors:  Mary A Ott; Amelia S Knopf
Journal:  Am J Bioeth       Date:  2019-08       Impact factor: 11.229

6.  Recent controversies on comparative effectiveness research investigations: Challenges, opportunities, and pitfalls.

Authors:  Haresh Kirpalani; William E Truog; Carl T D'Angio; Michael Cotten
Journal:  Semin Perinatol       Date:  2016-08-08       Impact factor: 3.300

7.  Valuing Healthcare Improvement: Implicit Norms, Explicit Normativity, and Human Agency.

Authors:  Stacy M Carter
Journal:  Health Care Anal       Date:  2018-06

8.  Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.

Authors:  Patricia A Deverka; Dierdre Gilmore; Jennifer Richmond; Zachary Smith; Rikki Mangrum; Barbara A Koenig; Robert Cook-Deegan; Angela G Villanueva; Mary A Majumder; Amy L McGuire
Journal:  J Law Med Ethics       Date:  2019-03       Impact factor: 1.718

9.  Preferences for engagement in health technology assessment decision-making: a nominal group technique with members of the public.

Authors:  Sally Wortley; Allison Tong; Kirsten Howard
Journal:  BMJ Open       Date:  2016-02-01       Impact factor: 2.692

Review 10.  Do consumer voices in health-care citizens' juries matter?

Authors:  Rachael Krinks; Elizabeth Kendall; Jennifer A Whitty; Paul A Scuffham
Journal:  Health Expect       Date:  2015-09-28       Impact factor: 3.377

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