Emiel A Boogerd1,2, Anouk M A Damhuis1,3,4, Janiëlle A A E m van Alfen-van der Velden1,5, Marley C C H Steeghs1,4, Cees Noordam1,5, Chris M Verhaak2, Ignace P R Vermaes3,6. 1. Children's Diabetes Center Nijmegen, Nijmegen, The Netherlands. 2. Department of Psychology, Radboud University Medical Center, Nijmegen, The Netherlands. 3. Department of Paediatric Psychology, Tilburg University, Tilburg, The Netherlands. 4. Department of Psychology, Canisius Wilhelmina Hospital, Nijmegen, The Netherlands. 5. Department of Paediatrics, Radboud University Medical Center, Nijmegen, The Netherlands. 6. Behavioural Science Institute, Radboud University, Nijmegen, The Netherlands.
Abstract
AIMS AND OBJECTIVES: To investigate the assessment of psychosocial problems in children with type 1 diabetes by means of clinical estimations made by nurses and paediatricians and by using standardised questionnaires. BACKGROUND: Although children with type 1 diabetes and their parents show increased risk for psychosocial problems, standardised assessment of these problems lacks in diabetes care. DESIGN: By comparing these different modes of assessment, using a cross-sectional design, information about the additional value of using standardised questionnaires is provided. METHODS: Participants were 110 children with type 1 diabetes (aged 4-16), their parents, and healthcare professionals. Children filled out the Strengths and Difficulties Questionnaire and the Paediatric Quality of Life Inventory, Diabetes Module. Parents filled out the Strengths and Difficulties Questionnaire parent-report and the Parenting Stress Index. Independently, nurses and paediatricians filled out a short questionnaire, which assessed their clinical estimations of the children's psychosocial problems and quality of life, and parents' levels of parenting stress. Reports of children and parents were compared to clinical estimations. RESULTS: Children in our sample showed more psychosocial problems and lower health-related quality of life than their healthy peers. In approximately half of the children, dichotomous estimations by healthcare professionals and dichotomised reports by patients and parents were in agreement. In 10% of the children, no psychosocial problems were present according to professionals' estimations, although patients and parents-reported psychosocial problems. In 40%, psychosocial problems were present according to professionals' estimations, although parents and patients did not report psychosocial problems. CONCLUSION: Children with type 1 diabetes show more psychosocial problems than healthy children. Professionals seem to tend towards overestimating psychosocial problems. RELEVANCE TO CLINICAL PRACTICE: Extending the assessment of psychosocial problems with routine screening on patient-reported outcomes, using validated questionnaires, could be of additional value in tailoring care to the needs of the individual child and parents.
AIMS AND OBJECTIVES: To investigate the assessment of psychosocial problems in children with type 1 diabetes by means of clinical estimations made by nurses and paediatricians and by using standardised questionnaires. BACKGROUND: Although children with type 1 diabetes and their parents show increased risk for psychosocial problems, standardised assessment of these problems lacks in diabetes care. DESIGN: By comparing these different modes of assessment, using a cross-sectional design, information about the additional value of using standardised questionnaires is provided. METHODS:Participants were 110 children with type 1 diabetes (aged 4-16), their parents, and healthcare professionals. Children filled out the Strengths and Difficulties Questionnaire and the Paediatric Quality of Life Inventory, Diabetes Module. Parents filled out the Strengths and Difficulties Questionnaire parent-report and the Parenting Stress Index. Independently, nurses and paediatricians filled out a short questionnaire, which assessed their clinical estimations of the children's psychosocial problems and quality of life, and parents' levels of parenting stress. Reports of children and parents were compared to clinical estimations. RESULTS:Children in our sample showed more psychosocial problems and lower health-related quality of life than their healthy peers. In approximately half of the children, dichotomous estimations by healthcare professionals and dichotomised reports by patients and parents were in agreement. In 10% of the children, no psychosocial problems were present according to professionals' estimations, although patients and parents-reported psychosocial problems. In 40%, psychosocial problems were present according to professionals' estimations, although parents and patients did not report psychosocial problems. CONCLUSION:Children with type 1 diabetes show more psychosocial problems than healthy children. Professionals seem to tend towards overestimating psychosocial problems. RELEVANCE TO CLINICAL PRACTICE: Extending the assessment of psychosocial problems with routine screening on patient-reported outcomes, using validated questionnaires, could be of additional value in tailoring care to the needs of the individual child and parents.
Authors: Marisa E Hilliard; Maartje De Wit; Rachel M Wasserman; Ashley M Butler; Meredyth Evans; Jill Weissberg-Benchell; Barbara J Anderson Journal: Pediatr Diabetes Date: 2017-09-22 Impact factor: 4.866
Authors: Sarah D Corathers; Pamela J Schoettker; Mark A Clements; Betsy A List; Deborah Mullen; Amy Ohmer; Avni Shah; Joyce Lee Journal: Curr Diab Rep Date: 2015-11 Impact factor: 4.810
Authors: Amit Shapira; Lisa K Volkening; Jessica T Markowitz; Deborah A Butler; Lori M Laffel Journal: Pediatr Diabetes Date: 2020-11-04 Impact factor: 4.866
Authors: Deepak Khandelwal; Lovely Gupta; Sanjay Kalra; Amit Vishwakarma; Priti Rishi Lal; Deep Dutta Journal: Indian J Community Med Date: 2018 Oct-Dec
Authors: Miguel Angel Madrigal; María López; Alicia Sánchez; María José Cao; María José Castro; José María Jiménez Journal: Diabetes Metab Syndr Obes Date: 2020-12-15 Impact factor: 3.168
Authors: Kaitlyn E Brodar; Annette M La Greca; Rafael O Leite; Daniella Marchetti; Manuela Jaramillo; Maria Luzuriaga; Rajesh Garg; Patrice Saab Journal: J Clin Psychol Med Settings Date: 2022-03-22