Literature DB >> 25753287

The stories we tell: qualitative research interviews, talking technologies and the 'normalisation' of life with HIV.

Fadhila Mazanderani1, Sara Paparini2.   

Abstract

Since the earliest days of the HIV/AIDS epidemic, talking about the virus has been a key way affected communities have challenged the fear and discrimination directed against them and pressed for urgent medical and political attention. Today, HIV/AIDS is one of the most prolifically and intimately documented of all health conditions, with entrenched infrastructures, practices and technologies--what Vinh-Kim Nguyen has dubbed 'confessional technologies'--aimed at encouraging those affected to share their experiences. Among these technologies, we argue, is the semi-structured interview: the principal methodology used in qualitative social science research focused on patient experiences. Taking the performative nature of the research interview as a talking technology seriously has epistemological implications not merely for how we interpret interview data, but also for how we understand the role of research interviews in the enactment of 'life with HIV'. This paper focuses on one crucial aspect of this enactment: the contemporary 'normalisation' of HIV as 'just another' chronic condition--a process taking place at the level of individual subjectivities, social identities, clinical practices and global health policy, and of which social science research is a vital part. Through an analysis of 76 interviews conducted in London (2009-10), we examine tensions in the experiential narratives of individuals living with HIV in which life with the virus is framed as 'normal', yet where this 'normality' is beset with contradictions and ambiguities. Rather than viewing these as a reflection of resistances to or failures of the enactment of HIV as 'normal', we argue that, insofar as these contradictions are generated by the research interview as a distinct 'talking technology', they emerge as crucial to the normative (re)production of what counts as 'living with HIV' (in the UK) and are an inherent part of the broader performative 'normalisation' of the virus.
Copyright © 2015 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Confessional technologies; HIV; Illness narratives; Normalisation; Qualitative interviews; United Kingdom

Mesh:

Year:  2015        PMID: 25753287     DOI: 10.1016/j.socscimed.2015.02.041

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  12 in total

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2.  "Times Are Changing": The Impact of HIV Diagnosis on Sub-Saharan Migrants' Lives in France.

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3.  How HIV patients construct liveable identities in a shame based culture: the case of Singapore.

Authors:  Lai Peng Ho; Esther C L Goh
Journal:  Int J Qual Stud Health Well-being       Date:  2017-12

4.  Patterns of patient and healthcare provider viewpoints regarding participation in HIV cure-related clinical trials. Findings from a multicentre French survey using Q methodology (ANRS-APSEC).

Authors:  Christel Protière; Bruno Spire; Marion Mora; Isabelle Poizot-Martin; Marie Préau; Marjolaine Doumergue; Philippe Morlat; David Zucman; Cécile Goujard; François Raffi; Olivier Lambotte; Marie Suzan-Monti
Journal:  PLoS One       Date:  2017-11-02       Impact factor: 3.240

5.  Problematising the Discourse of 'Post-AIDS'.

Authors:  Liz Walker
Journal:  J Med Humanit       Date:  2020-06

6.  Understanding Reasons for HIV Late Diagnosis: A Qualitative Study Among HIV-Positive Individuals in Amsterdam, The Netherlands.

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7.  The perceived impact of an HIV cure by people living with HIV and key populations vulnerable to HIV in the Netherlands: A qualitative study.

Authors:  Kim A G J Romijnders; Laura de Groot; Sigrid C J M Vervoort; Maartje G J Basten; Berend J van Welzen; Mirjam E Kretzschmar; Peter Reiss; Udi Davidovich; Ganna Rozhnova
Journal:  J Virus Erad       Date:  2022-02-25

8.  Positive sexuality: HIV disclosure, gender, violence and the law-A qualitative study.

Authors:  Andrea Krüsi; Flo Ranville; Lulu Gurney; Tara Lyons; Jean Shoveller; Kate Shannon
Journal:  PLoS One       Date:  2018-08-24       Impact factor: 3.240

9.  From activism to secrecy: Contemporary experiences of living with HIV in London in people diagnosed from 1986 to 2014.

Authors:  Tanvi Rai; Jane Bruton; Sophie Day; Helen Ward
Journal:  Health Expect       Date:  2018-08-30       Impact factor: 3.377

10.  Can HIV-positive gay men become parents? How men living with HIV and HIV clinicians talk about the possibility of having children.

Authors:  Robert Pralat; Fiona Burns; Jane Anderson; Tristan J Barber
Journal:  Sociol Health Illn       Date:  2020-11-22
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