Philippe Rigaux1, Danièle Lefebvre-Kuntz2, Nicolas Penel3. 1. SOS Desmoïde, 45, rue René-La-Combe, 49100 Angers, France. 2. Centre Oscar Lambret, Pain Clinic and Anesthesiology Department, 59020 Lille, France. 3. SOS Desmoïde, 45, rue René-La-Combe, 49100 Angers, France; Centre Oscar Lambret, General Oncology Department, 59020 Lille, France. Electronic address: n-penel@o-lambret.fr.
Abstract
INTRODUCTION: The French Patient Advocacy Group SOS Desmoid conducted a survey to measure the pain burden of desmoid tumor patients. MATERIAL AND METHODS: We used a structured questionnaire to measure the occurrence and consequences of pain. RESULTS: The pain occurrence was approximately 63%. In one-third of the cases, the pain was permanent. This pain led to severe social and economic consequences. DISCUSSION: The occurrence of pain and its consequences are underestimated among these patients. Pain needs to be closely and precisely measured and monitored in future clinical trials to assess the efficacy of proposed treatments better.
INTRODUCTION: The French Patient Advocacy Group SOS Desmoid conducted a survey to measure the pain burden of desmoid tumorpatients. MATERIAL AND METHODS: We used a structured questionnaire to measure the occurrence and consequences of pain. RESULTS: The pain occurrence was approximately 63%. In one-third of the cases, the pain was permanent. This pain led to severe social and economic consequences. DISCUSSION: The occurrence of pain and its consequences are underestimated among these patients. Pain needs to be closely and precisely measured and monitored in future clinical trials to assess the efficacy of proposed treatments better.
Authors: Danique L M van Broekhoven; Arie J Verschoor; Thijs van Dalen; Dirk J Grünhagen; Michael A den Bakker; Hans Gelderblom; Judith V M G Bovee; Rick L M Haas; Han J Bonenkamp; Frits van Coevorden; Diederik Ten Oever; Winette T A van der Graaf; Uta E Flucke; Elisabeth Pras; Anna K L Reyners; Anneke M Westermann; Foppe Oldenburger; Cornelis Verhoef; Neeltje Steeghs Journal: Sarcoma Date: 2018-06-21
Authors: Hong Xiao; Hui Liu; Jin Liu; Yunxia Zuo; Li Liu; Hong Zhu; Yan Yin; Li Song; Bangxiang Yang; Jun Li; Ling Ye Journal: Med Sci Monit Date: 2018-11-01