Literature DB >> 25740760

Facebook study: a little bit unethical but worth it?

John Kleinsman1, Sue Buckley.   

Abstract

Human research involving the use social media raises many of the same issues as medical research. The publication of a paper in June 2014 investigating "emotional contagion" received extensive publicity recently because of the methods used. The approach involved manipulating the "News Feeds" of Facebook users, but the participants were not informed of their involvement in the research and had no opportunity to consent or opt out. Some commentators have argued that although it would have been preferable to obtain informed consent, it was not strictly required because the research was unlikely to cause significant harm and was important. This paper argues that the research was unethical because (i) it should have been overseen by an independent ethics committee or review board and (ii) informed consent could and should have been obtained. Regardless of the importance of any research and irrespective of its likelihood to cause harm, the ethical principles that have evolved since the 1940s should be followed in all instances when experimental research is being carried out on human participants.

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Year:  2015        PMID: 25740760     DOI: 10.1007/s11673-015-9621-0

Source DB:  PubMed          Journal:  J Bioeth Inq        ISSN: 1176-7529            Impact factor:   1.352


  3 in total

1.  Misjudgements will drive social trials underground.

Authors:  Michelle N Meyer
Journal:  Nature       Date:  2014-07-17       Impact factor: 49.962

2.  Experimental evidence of massive-scale emotional contagion through social networks.

Authors:  Adam D I Kramer; Jamie E Guillory; Jeffrey T Hancock
Journal:  Proc Natl Acad Sci U S A       Date:  2014-06-02       Impact factor: 11.205

3.  Editorial expression of concern: Experimental evidence of massive-scale emotional contagion through social networks.

Authors:  Inder M Verma
Journal:  Proc Natl Acad Sci U S A       Date:  2014-07-03       Impact factor: 11.205

  3 in total
  12 in total

1.  "Can a Company be Bitchy?" Corporate (and Political and Scientific) Social Responsibility.

Authors:  Leigh E Rich; Michael A Ashby
Journal:  J Bioeth Inq       Date:  2015-05-28       Impact factor: 1.352

2.  Ethics in field experimentation: A call to establish new standards to protect the public from unwanted manipulation and real harms.

Authors:  Rose McDermott; Peter K Hatemi
Journal:  Proc Natl Acad Sci U S A       Date:  2020-11-23       Impact factor: 11.205

3.  Unethical work must be filtered out or flagged.

Authors:  Graeme D Ruxton; Tom Mulder
Journal:  Nature       Date:  2019-08       Impact factor: 49.962

4.  A Web 2.0 and Epidemiology Mash-Up: Using Respondent-Driven Sampling in Combination with Social Network Site Recruitment to Reach Young Transwomen.

Authors:  Sean Arayasirikul; Yea-Hung Chen; Harry Jin; Erin Wilson
Journal:  AIDS Behav       Date:  2016-06

5.  Controllability of social networks and the strategic use of random information.

Authors:  Marco Cremonini; Francesca Casamassima
Journal:  Comput Soc Netw       Date:  2017-10-13

Review 6.  Attitudes Toward the Ethics of Research Using Social Media: A Systematic Review.

Authors:  Su Golder; Shahd Ahmed; Gill Norman; Andrew Booth
Journal:  J Med Internet Res       Date:  2017-06-06       Impact factor: 5.428

7.  Innovation at the Intersection of Alcohol and HIV Research.

Authors:  Alastair van Heerden; Mark Tomlinson; Sarah Skeen; Charles Parry; Kendal Bryant; Mary Jane Rotheram-Borus
Journal:  AIDS Behav       Date:  2017-11

8.  Social Media Contexts Moderate Perceptions of Animals.

Authors:  Elizabeth Riddle; Jill R D MacKay
Journal:  Animals (Basel)       Date:  2020-05-14       Impact factor: 2.752

9.  Ethical Considerations for Participatory Health through Social Media: Healthcare Workforce and Policy Maker Perspectives.

Authors:  Octavio Rivera-Romero; Stathis Konstantinidis; Kerstin Denecke; Elia Gabarrón; Carolyn Petersen; Mowafa Househ; Mark Merolli; Miguel Ángel Mayer
Journal:  Yearb Med Inform       Date:  2020-04-17

Review 10.  Health Researchers' Use of Social Media: Scoping Review.

Authors:  Justine Dol; Perri R Tutelman; Christine T Chambers; Melanie Barwick; Emily K Drake; Jennifer A Parker; Robin Parker; Eric I Benchimol; Ronald B George; Holly O Witteman
Journal:  J Med Internet Res       Date:  2019-11-13       Impact factor: 5.428

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