Literature DB >> 25729453

It takes a (virtual) village: crowdsourcing measurement consensus to advance survivorship care planning.

Carla Parry1, Ellen Beckjord2, Richard P Moser3, Sana N Vieux3, Lynne S Padgett3, Bradford W Hesse3.   

Abstract

We report results from the use of an innovative tool (the Grid-Enabled Measures (GEM) database) to drive consensus on the use of measures evaluating the efficacy and implementation of survivorship care plans. The goal of this initiative was to increase the use of publicly available shared measures to enable comparability across studies. Between February and August 2012, research and practice communities populated the GEM platform with constructs and measures relevant to survivorship care planning, rated the measures, and provided qualitative feedback on the quality of the measures. Fifty-one constructs and 124 measures were entered into the GEM-Care Planning workspace by participants. The greatest number of measures appeared in the domains of Health and Psychosocial Outcomes, Health Behaviors, and Coordination of Care/Transitional Care. Using technology-mediated social participation, GEM presents a novel approach to how we measure and improve the quality of survivorship care.

Entities:  

Keywords:  Data harmonization; Measurement consensus; Survivorship care planning; Technology-mediated social participation

Year:  2015        PMID: 25729453      PMCID: PMC4332900          DOI: 10.1007/s13142-014-0289-5

Source DB:  PubMed          Journal:  Transl Behav Med        ISSN: 1613-9860            Impact factor:   3.046


  20 in total

1.  The American Society of Clinical Oncology's Blueprint for Transforming Clinical and Translational Cancer Research.

Authors:  Neal J Meropol; Mark G Kris; Eric P Winer
Journal:  J Clin Oncol       Date:  2012-01-03       Impact factor: 44.544

2.  Is it time for (survivorship care) plan B?

Authors:  Thomas J Smith; Claire Snyder
Journal:  J Clin Oncol       Date:  2011-10-31       Impact factor: 44.544

3.  Improving survivorship care.

Authors:  Michael Jefford; Penelope Schofield; Jon Emery
Journal:  J Clin Oncol       Date:  2012-01-30       Impact factor: 44.544

4.  Development and pilot testing of a nurse-led posttreatment support package for bowel cancer survivors.

Authors:  Michael Jefford; Kerryann Lotfi-Jam; Carl Baravelli; Suzi Grogan; Megan Rogers; Meinir Krishnasamy; Carmel Pezaro; Donna Milne; Sanchia Aranda; Dorothy King; Beryl Shaw; Penelope Schofield
Journal:  Cancer Nurs       Date:  2011 May-Jun       Impact factor: 2.592

5.  Survivorship care after breast cancer treatment--experiences and preferences of Australian women.

Authors:  Meagan E Brennan; Phyllis Butow; Michelle Marven; Andrew J Spillane; Frances M Boyle
Journal:  Breast       Date:  2011-01-14       Impact factor: 4.380

Review 6.  Survivorship care planning after the institute of medicine recommendations: how are we faring?

Authors:  Carrie Tompkins Stricker; Linda A Jacobs; Betsy Risendal; Alison Jones; Sarahlena Panzer; Patricia A Ganz; Karen L Syrjala; Mary S McCabe; K Scott Baker; Kenneth Miller; Jacqueline Casillas; Donald L Rosenstein; Marci Campbell; Steven C Palmer
Journal:  J Cancer Surviv       Date:  2011-10-04       Impact factor: 4.442

7.  Survivorship care planning in colorectal cancer: feedback from survivors & providers.

Authors:  Leigh Anne Faul; Brian Rivers; David Shibata; Ione Townsend; Patricia Cabrera; Gwendolyn P Quinn; Paul B Jacobsen
Journal:  J Psychosoc Oncol       Date:  2012

8.  Realizing the promise of Web 2.0: engaging community intelligence.

Authors:  Bradford W Hesse; Mary O'Connell; Erik M Augustson; Wen-Ying Sylvia Chou; Abdul R Shaikh; Lila J Finney Rutten
Journal:  J Health Commun       Date:  2011

9.  Of mice and mentors: developing cyber-infrastructure to support transdisciplinary scientific collaboration.

Authors:  Bradford W Hesse
Journal:  Am J Prev Med       Date:  2008-08       Impact factor: 5.043

10.  Patient and provider preferences for survivorship care plans.

Authors:  Deborah K Mayer; Adrian Gerstel; Ashley N Leak; Sophia K Smith
Journal:  J Oncol Pract       Date:  2012-02-14       Impact factor: 3.840

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  3 in total

1.  Impact of Survivorship Care Plans and Planning on Breast, Colon, and Prostate Cancer Survivors in a Community Oncology Practice.

Authors:  Alexandra Hua; Mary E Sesto; Xiao Zhang; Timothy R Wassenaar; Amye J Tevaarwerk
Journal:  J Cancer Educ       Date:  2020-04       Impact factor: 2.037

2.  Research data management in health and biomedical citizen science: practices and prospects.

Authors:  Ann Borda; Kathleen Gray; Yuqing Fu
Journal:  JAMIA Open       Date:  2019-12-09

Review 3.  The application of crowdsourcing approaches to cancer research: a systematic review.

Authors:  Young Ji Lee; Janet A Arida; Heidi S Donovan
Journal:  Cancer Med       Date:  2017-09-29       Impact factor: 4.452

  3 in total

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