Sydney Morss Dy1, Kasey B Kiley2, Katherine Ast3, Dale Lupu3, Sally A Norton4, Susan C McMillan5, Keela Herr6, Joseph D Rotella7, David J Casarett8. 1. Johns Hopkins Sidney Kimmel Cancer Center, Baltimore, Maryland, USA. Electronic address: sdy@jhsph.edu. 2. Johns Hopkins Hospital, Baltimore, Maryland, USA. 3. American Academy of Hospice and Palliative Medicine, Chicago, Illinois, USA. 4. University of Rochester School of Nursing, Rochester, New York, USA. 5. University of South Florida College of Nursing, Tampa, Florida, USA. 6. University of Iowa College of Nursing, Iowa City, Iowa, USA. 7. Hosparus, Louisville, Kentucky, USA. 8. University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA.
Abstract
CONTEXT: Measuring quality of hospice and palliative care is critical for evaluating and improving care, but no standard U.S. quality indicator set exists. OBJECTIVES: The Measuring What Matters (MWM) project aimed to recommend a concise portfolio of valid, clinically relevant, cross-cutting indicators for internal measurement of hospice and palliative care. METHODS: The MWM process was a sequential consensus project of the American Academy of Hospice and Palliative Medicine (AAHPM) and Hospice and Palliative Nurses Association (HPNA). We identified candidate indicators mapped to National Consensus Project (NCP) Palliative Care Guidelines domains. We narrowed the list through a modified Delphi rating process by a Technical Advisory Panel and Clinical User Panel and ratings from AAHPM and HPNA membership and key organizations. RESULTS: We narrowed the initial 75 indicators to a final list of 10. These include one in the NCP domain Structure and Process (Comprehensive Assessment), three in Physical Aspects (Screening for Physical Symptoms, Pain Treatment, and Dyspnea Screening and Management), one in Psychological and Psychiatric Aspects (Discussion of Emotional or Psychological Needs), one in Spiritual and Existential Aspects (Discussion of Spiritual/Religious Concerns), and three in Ethical and Legal Aspects (Documentation of Surrogate, Treatment Preferences, and Care Consistency with Documented Care Preferences). The list also recommends a global indicator of patient/family perceptions of care, but does not endorse a specific survey instrument. CONCLUSION: This consensus set of hospice and palliative care quality indicators is a foundation for standard, valid internal quality measurement for U.S. SETTINGS: Further development will assemble implementation tools for quality measurement and benchmarking.
CONTEXT: Measuring quality of hospice and palliative care is critical for evaluating and improving care, but no standard U.S. quality indicator set exists. OBJECTIVES: The Measuring What Matters (MWM) project aimed to recommend a concise portfolio of valid, clinically relevant, cross-cutting indicators for internal measurement of hospice and palliative care. METHODS: The MWM process was a sequential consensus project of the American Academy of Hospice and Palliative Medicine (AAHPM) and Hospice and Palliative Nurses Association (HPNA). We identified candidate indicators mapped to National Consensus Project (NCP) Palliative Care Guidelines domains. We narrowed the list through a modified Delphi rating process by a Technical Advisory Panel and Clinical User Panel and ratings from AAHPM and HPNA membership and key organizations. RESULTS: We narrowed the initial 75 indicators to a final list of 10. These include one in the NCP domain Structure and Process (Comprehensive Assessment), three in Physical Aspects (Screening for Physical Symptoms, Pain Treatment, and Dyspnea Screening and Management), one in Psychological and Psychiatric Aspects (Discussion of Emotional or Psychological Needs), one in Spiritual and Existential Aspects (Discussion of Spiritual/Religious Concerns), and three in Ethical and Legal Aspects (Documentation of Surrogate, Treatment Preferences, and Care Consistency with Documented Care Preferences). The list also recommends a global indicator of patient/family perceptions of care, but does not endorse a specific survey instrument. CONCLUSION: This consensus set of hospice and palliative care quality indicators is a foundation for standard, valid internal quality measurement for U.S. SETTINGS: Further development will assemble implementation tools for quality measurement and benchmarking.
Authors: Claire J Creutzfeldt; Benzi Kluger; Adam G Kelly; Monica Lemmon; David Y Hwang; Nicholas B Galifianakis; Alan Carver; Maya Katz; J Randall Curtis; Robert G Holloway Journal: Neurology Date: 2018-06-27 Impact factor: 9.910
Authors: Krista L Harrison; Elizabeth Dzeng; Christine S Ritchie; Tait D Shanafelt; Arif H Kamal; Janet H Bull; Jon C Tilburt; Keith M Swetz Journal: J Pain Symptom Manage Date: 2017-02-11 Impact factor: 3.612
Authors: Christy E Cauley; Susan D Block; Luca A Koritsanszky; Jonathon D Gass; Julia L Frydman; Suliat M Nurudeen; Rachelle E Bernacki; Zara Cooper Journal: J Palliat Med Date: 2016-04-22 Impact factor: 2.947
Authors: Sydney M Dy; Ritu Sharma; Kamini Kuchinad; Zi-Rou Liew; Nebras Abu Al Hamayel; Susan M Hannum; Junya Zhu; Arif H Kamal; Anne M Walling; Karl A Lorenz; Sarina R Isenberg Journal: J Oncol Pract Date: 2018-12 Impact factor: 3.840
Authors: Katherine A Ornstein; Joan Penrod; Julie B Schnur; Cardinale B Smith; Jeanne A Teresi; Melissa M Garrido; Karen McKendrick; Albert L Siu; Diane E Meier; R Sean Morrison Journal: J Palliat Med Date: 2017-02-10 Impact factor: 2.947
Authors: Sydney M Dy; Nebras Abu Al Hamayel; Susan M Hannum; Ritu Sharma; Sarina R Isenberg; Kamini Kuchinad; Junya Zhu; Katherine Smith; Karl A Lorenz; Arif H Kamal; Anne M Walling; Sallie J Weaver Journal: J Pain Symptom Manage Date: 2017-08-09 Impact factor: 3.612
Authors: Rebecca L Sudore; Daren K Heyland; Hillary D Lum; Judith A C Rietjens; Ida J Korfage; Christine S Ritchie; Laura C Hanson; Diane E Meier; Steven Z Pantilat; Karl Lorenz; Michelle Howard; Michael J Green; Jessica E Simon; Mariko A Feuz; John J You Journal: J Pain Symptom Manage Date: 2017-09-01 Impact factor: 3.612
Authors: Simon M Cohen; Angelo E Volandes; Michele L Shaffer; Laura C Hanson; Daniel Habtemariam; Susan L Mitchell Journal: J Pain Symptom Manage Date: 2018-09-29 Impact factor: 3.612