Literature DB >> 25669218

Biobank research, informed consent and society. Towards a new alliance?

Flavio D'Abramo.   

Abstract

With the rise of -omics disciplines and biobank research, personal data and biosamples crossing national borders pose new ethical questions. In this article, informed consent, as originally conceived, is shown as not being sufficient to address aims of research and interests of patients any more. Therefore the author has, after having scrutinised issues in biobanking, sketched a model of dynamic consent and a manner of scrutinising ethical issues through empirical data. Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.

Entities:  

Keywords:  EMPOWERMENT PR; ETHICS; GENETICS; POLICY; Pharmacogenetics

Mesh：

Year:  2015        PMID： 25669218     DOI： 10.1136/jech-2014-205215

Source DB:  PubMed          Journal:  J Epidemiol Community Health        ISSN： 0143-005X            Impact factor:   3.710


  8 in total

1.  Biomolecular Prospecting, Informative Gaps, and the Cancer Clinic: A Qualitative Fieldwork and an Epistemological, Historical and Ethical Analysis of Informed Consent for Clinical Trials for Monoclonal Antibodies and Biobank Research.

Authors:  Flavio D'Abramo; Annemieke Bont; Lisa Nüßlein
Journal:  Front Genet       Date:  2022-06-13       Impact factor: 4.772

Review 2.  Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.

Authors:  Flavio D'Abramo; Jan Schildmann; Jochen Vollmann
Journal:  BMC Med Ethics       Date:  2015-09-09       Impact factor: 2.652

Review 3.  Repository of Human Blood Derivative Biospecimens in Biobank: Technical Implications.

Authors:  Ashraf Mohamadkhani; Hossein Poustchi
Journal:  Middle East J Dig Dis       Date:  2015-04

4.  Samples and data accessibility in research biobanks: an explorative survey.

Authors:  Marco Capocasa; Paolo Anagnostou; Flavio D'Abramo; Giulia Matteucci; Valentina Dominici; Giovanni Destro Bisol; Fabrizio Rufo
Journal:  PeerJ       Date:  2016-02-25       Impact factor: 2.984

5.  Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.

Authors:  Isabelle Budin-Ljøsne; Harriet J A Teare; Jane Kaye; Stephan Beck; Heidi Beate Bentzen; Luciana Caenazzo; Clive Collett; Flavio D'Abramo; Heike Felzmann; Teresa Finlay; Muhammad Kassim Javaid; Erica Jones; Višnja Katić; Amy Simpson; Deborah Mascalzoni
Journal:  BMC Med Ethics       Date:  2017-01-25       Impact factor: 2.652

6.  Ethical Issues in Consent for the Reuse of Data in Health Data Platforms.

Authors:  Alex McKeown; Miranda Mourby; Paul Harrison; Sophie Walker; Mark Sheehan; Ilina Singh
Journal:  Sci Eng Ethics       Date:  2021-02-04       Impact factor: 3.525

7.  Health, wealth and behavioural change: an exploration of role responsibilities in the wake of epigenetics.

Authors:  Danya F Vears; Flavio D'Abramo
Journal:  J Community Genet       Date:  2017-07-18

Review 8.  Donor information in research and drug evaluation with induced pluripotent stem cells (iPSCs).

Authors:  Marcin Orzechowski; Maximilian Schochow; Michael Kühl; Florian Steger
Journal:  Stem Cell Res Ther       Date:  2020-03-19       Impact factor: 6.832
  8 in total

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