Literature DB >> 25648380

Negotiated reorienting: a grounded theory of nurses' end-of-life decision-making in the intensive care unit.

Ann Gallagher1, Regina Szylit Bousso2, Joan McCarthy3, Helen Kohlen4, Tom Andrews3, Maria Cristina Paganini5, Nasser Ibrahim Abu-El-Noor6, Anna Cox1, Margit Haas7, Anne Arber1, Mysoon Khalil Abu-El-Noor6, Michelle Freire Baliza2, Katia Grillo Padilha2.   

Abstract

BACKGROUND: Intensive care units (ICUs) focus on treatment for those who are critically ill and interventions to prolong life. Ethical issues arise when decisions have to be made regarding the withdrawal and withholding of life-sustaining treatment and the shift to comfort and palliative care. These issues are particularly challenging for nurses when there are varying degrees of uncertainty regarding prognosis. Little is known about nurses' end-of-life (EoL) decision-making practice across cultures.
OBJECTIVES: To understand nurses' EoL decision-making practices in ICUs in different cultural contexts.
DESIGN: We collected and analysed qualitative data using Grounded Theory. SETTINGS: Interviews were conducted with experienced ICU nurses in university or hospital premises in five countries: Brazil, England, Germany, Ireland and Palestine. PARTICIPANTS: Semi-structured interviews were conducted with 51 nurses (10 in Brazil, 9 in England, 10 in Germany, 10 in Ireland and 12 nurses in Palestine). They were purposefully and theoretically selected to include nurses having a variety of characteristics and experiences concerning end-of-life (EoL) decision-making.
METHODS: The study used grounded theory to inform data collection and analysis. Interviews were facilitated by using key questions. The comparative analysis of the data within and across data generated by the different research teams enabled researchers to develop a deeper understanding of EoL decision-making practices in the ICU. Ethical approval was granted in each of the participating countries and voluntary informed consent obtained from each participant.
RESULTS: The core category that emerged was 'negotiated reorienting'. Whilst nurses do not make the 'ultimate' EoL decisions, they engage in two core practices: consensus seeking (involving coaxing, information cuing and voice enabling); and emotional holding (creating time-space and comfort giving).
CONCLUSIONS: There was consensus regarding the core concept and core practices employed by nurses in the ICUs in the five countries. However, there were some discernible differences regarding the power dynamics in nurse-doctor relationships, particularly in relation to the cultural perspectives on death and dying and in the development of palliative care. The research suggests the need for culturally sensitive ethics education and bereavement support in different cultural contexts.
Copyright © 2015. Published by Elsevier Ltd.

Entities:  

Keywords:  End-of-life decision-making; Ethics; Grounded theory; Intensive care

Mesh:

Year:  2015        PMID: 25648380     DOI: 10.1016/j.ijnurstu.2014.12.003

Source DB:  PubMed          Journal:  Int J Nurs Stud        ISSN: 0020-7489            Impact factor:   5.837


  10 in total

1.  End-of-life decision making in the context of chronic life-limiting disease: a concept analysis and conceptual model.

Authors:  Kristin Levoy; Elise C Tarbi; Joseph P De Santis
Journal:  Nurs Outlook       Date:  2020-09-15       Impact factor: 3.250

2.  Clinical Nurse Participation at Family Conferences in the Pediatric Intensive Care Unit.

Authors:  Anne C Watson; Tessie W October
Journal:  Am J Crit Care       Date:  2016-11       Impact factor: 2.228

3.  Exploring Ghanaian nurses knowledge and application of bio-ethical principles in postoperative pain management.

Authors:  Moses Banoya Tia; Lydia Aziato; Gladys Dzansi
Journal:  PLoS One       Date:  2022-10-19       Impact factor: 3.752

4.  Psychometric properties of the Chinese version of the End-of-Life Decision-Making and Staff Stress Questionnaire.

Authors:  Jingying Huang; Lili Yang; Haiou Qi; Yiting Zhu; Minyan Zhang
Journal:  Int J Clin Health Psychol       Date:  2020-08-10

5.  Limitation of therapeutic effort experienced by intensive care nurses.

Authors:  Juan Francisco Velarde-García; Raquel Luengo-González; Raquel González-Hervías; César Cardenete-Reyes; Beatriz Álvarez-Embarba; Domingo Palacios-Ceña
Journal:  Nurs Ethics       Date:  2016-12-28       Impact factor: 2.874

6.  "It Is Difficult to Always Be an Antagonist": Ethical, Professional, and Moral Dilemmas as Potentially Psychologically Traumatic Events among Nurses in Canada.

Authors:  Rosemary Ricciardelli; Matthew S Johnston; Brittany Bennett; Andrea M Stelnicki; R Nicholas Carleton
Journal:  Int J Environ Res Public Health       Date:  2022-01-27       Impact factor: 3.390

7.  Decision-making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study.

Authors:  Shanara Abdin; Gemma Heath; Susan Neilson; James Byron-Daniel; Nic Hooper
Journal:  Child Care Health Dev       Date:  2022-01-12       Impact factor: 2.943

Review 8.  The role of emotion in clinical decision making: an integrative literature review.

Authors:  Desirée Kozlowski; Marie Hutchinson; John Hurley; Joanne Rowley; Joanna Sutherland
Journal:  BMC Med Educ       Date:  2017-12-15       Impact factor: 2.463

9.  "Go Make Your Face Known": Collaborative Working through the Lens of Personal Relationships.

Authors:  Nigel King; Alison Bravington; Joanna Brooks; Jane Melvin; David Wilde
Journal:  Int J Integr Care       Date:  2017-08-10       Impact factor: 5.120

10.  End-of-life situations in cardiology: a qualitative study of physicians' and nurses' experience in a large university hospital.

Authors:  Fiona Ecarnot; Nicolas Meunier-Beillard; Marie-France Seronde; Romain Chopard; François Schiele; Jean-Pierre Quenot; Nicolas Meneveau
Journal:  BMC Palliat Care       Date:  2018-10-05       Impact factor: 3.234

  10 in total

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