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Literature DB >> 25620797

NIH's genomic data sharing policy: timing and tradeoffs.

Abstract

NIH's new genomic data sharing (GDS) policy covers both human and model-organism genotypic and phenotypic data, and strives to balance rapid release of data with embargo periods to ensure that data producers have sufficient time to analyze their results. But how well does the policy achieve this balance?

Entities: Species

Mesh：

Year: 2015 PMID： 25620797 DOI： 10.1016/j.tig.2014.12.006

Source DB: PubMed Journal: Trends Genet ISSN： 0168-9525 Impact factor: 11.639

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Cited

9 in total

1. The Bermuda Triangle: The Pragmatics, Policies, and Principles for Data Sharing in the History of the Human Genome Project.

Authors: Kathryn Maxson Jones; Rachel A Ankeny; Robert Cook-Deegan
Journal: J Hist Biol Date: 2018-12 Impact factor: 1.326

2. Adaptive Immune Receptor Repertoire Community recommendations for sharing immune-repertoire sequencing data.

Authors: Florian Rubelt; Christian E Busse; Syed Ahmad Chan Bukhari; Jean-Philippe Bürckert; Encarnita Mariotti-Ferrandiz; Lindsay G Cowell; Corey T Watson; Nishanth Marthandan; William J Faison; Uri Hershberg; Uri Laserson; Brian D Corrie; Mark M Davis; Bjoern Peters; Marie-Paule Lefranc; Jamie K Scott; Felix Breden; Eline T Luning Prak; Steven H Kleinstein
Journal: Nat Immunol Date: 2017-11-16 Impact factor: 25.606

3. Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.

Authors: Mahsa Shabani; Adrian Thorogood; Pascal Borry
Journal: Eur J Hum Genet Date: 2016-08-24 Impact factor: 4.246

9. Share and protect our health data: an evidence based approach to rare disease patients' perspectives on data sharing and data protection - quantitative survey and recommendations.

Authors: Sandra Courbier; Rebecca Dimond; Virginie Bros-Facer
Journal: Orphanet J Rare Dis Date: 2019-07-12 Impact factor: 4.123

9 in total

NIH's genomic data sharing policy: timing and tradeoffs.

1. The Bermuda Triangle: The Pragmatics, Policies, and Principles for Data Sharing in the History of the Human Genome Project.

2. Adaptive Immune Receptor Repertoire Community recommendations for sharing immune-repertoire sequencing data.

3. Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.

4. Private and Efficient Query Processing on Outsourced Genomic Databases.

Review 5. Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.

Review 6. Replicability and Prediction: Lessons and Challenges from GWAS.

7. Secure approximation of edit distance on genomic data.

Review 8. Using Genomics to Track Global Antimicrobial Resistance.

9. Share and protect our health data: an evidence based approach to rare disease patients' perspectives on data sharing and data protection - quantitative survey and recommendations.