Raquel Pan1, Marthe R Egberts2, Lucila Castanheira Nascimento3, Lídia Aparecida Rossi4, Els Vandermeulen5, Rinie Geenen6, Nancy E Van Loey7. 1. Interunit Nursing Doctoral Program, University of São Paulo at Ribeirão Preto College of Nursing, WHO Collaborating Centre for Nursing Research Development, Ribeirão Preto, SP, Brazil; Department of Clinical & Health Psychology, Utrecht University, Utrecht, The Netherlands. Electronic address: raquelpan01@gmail.com. 2. Association of Dutch Burn Centers, Beverwijk, The Netherlands; Department of Clinical & Health Psychology, Utrecht University, Utrecht, The Netherlands. Electronic address: megberts@burns.nl. 3. Maternal-Infant and Public Health Nursing Department, University of São Paulo at Ribeirão Preto College of Nursing, WHO Collaborating Centre for Nursing Research Development, Ribeirão Preto, SP, Brazil. Electronic address: lucila@eerp.usp.br. 4. General and Specialized Nursing Department, University of São Paulo at Ribeirão Preto College of Nursing, WHO Collaborating Centre for Nursing Research Development, Ribeirão Preto, SP, Brazil. Electronic address: rizzardo@eerp.usp.br. 5. Queen Astrid Military Hospital, Burn Center, Psychologist, Brussels, Belgium. Electronic address: els.vandermeulen@mil.be. 6. Department of Clinical & Health Psychology, Utrecht University, Utrecht, The Netherlands. Electronic address: R.Geenen@uu.nl. 7. Association of Dutch Burn Centers, Beverwijk, The Netherlands; Department of Clinical & Health Psychology, Utrecht University, Utrecht, The Netherlands. Electronic address: nvanloey@burns.nl.
Abstract
AIM: This study examined the agreement on self-reported Health-Related Quality of Life (HRQOL) between adolescents with burns and their mother's and father's observation at 6 and 18 months after the burn. Moreover, factors potentially influencing discrepancies between the adolescent and proxy reports were examined. METHODS: Children with burns (11-18 years old) and their mother and father were invited to participate. A total of 54 adolescents aged 11 years or older filled out the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ). Descriptive and correlational analyses were performed. RESULTS: The physical functioning scores showed to be optimal in almost all participants (99%) and across the three informants. Adolescents reported better functioning than their fathers and mothers on most of the scales. On average the correlations between self-reports and proxy reports were moderate to good. Higher parental traumatic stress scores were linked to less favorable parent-reported burn outcomes. CONCLUSION: Overall, this study showed that a large proportion of the parents had similar views on the adolescents physical functioning, but disparities emerged also, mainly in psychosocial scales. The discrepancies between self- and parent reports should be discussed when they have a role in treatment decisions. Preferably, besides parent-reports, adolescents' self-reports should be included in clinical assessments and treatment decisions, as parental traumatic stress symptoms are a possible factor influencing parental observations.
AIM: This study examined the agreement on self-reported Health-Related Quality of Life (HRQOL) between adolescents with burns and their mother's and father's observation at 6 and 18 months after the burn. Moreover, factors potentially influencing discrepancies between the adolescent and proxy reports were examined. METHODS:Children with burns (11-18 years old) and their mother and father were invited to participate. A total of 54 adolescents aged 11 years or older filled out the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ). Descriptive and correlational analyses were performed. RESULTS: The physical functioning scores showed to be optimal in almost all participants (99%) and across the three informants. Adolescents reported better functioning than their fathers and mothers on most of the scales. On average the correlations between self-reports and proxy reports were moderate to good. Higher parental traumatic stress scores were linked to less favorable parent-reported burn outcomes. CONCLUSION: Overall, this study showed that a large proportion of the parents had similar views on the adolescents physical functioning, but disparities emerged also, mainly in psychosocial scales. The discrepancies between self- and parent reports should be discussed when they have a role in treatment decisions. Preferably, besides parent-reports, adolescents' self-reports should be included in clinical assessments and treatment decisions, as parental traumatic stress symptoms are a possible factor influencing parental observations.
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