Andy Hau Yan Ho1, James K H Luk2, Felix H W Chan2, Wing Chun Ng3, Catherine K K Kwok4, Joseph H L Yuen4, Michelle Y J Tam5, Wing W S Kan6, Cecilia L W Chan5. 1. Division of Psychology, School of Humanities and Social Sciences, Nangyang Technological University, Singapore Sau Po Centre on Ageing, The University of Hong Kong, Hong Kong Centre on Behavioral Health, The University of Hong Kong, Hong Kong andyhyho@ntu.edu.sg. 2. Tung Wah Group of Hospitals, Fung Yiu King Hospital, Hong Kong. 3. Community Care Services, Hong Kong West Cluster, Hospital Authority, Hong Kong. 4. Tung Wah Group of Hospitals, Jockey Club Care and Attention Home, Hong Kong. 5. Centre on Behavioral Health, The University of Hong Kong, Hong Kong. 6. Sau Po Centre on Ageing, The University of Hong Kong, Hong Kong.
Abstract
PURPOSE: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents. METHODS: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups. RESULTS: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions). CONCLUSIONS: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.
PURPOSE: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents. METHODS: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups. RESULTS: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions). CONCLUSIONS: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.