Literature DB >> 25575494

Bioethics, population studies, and geneticophobia.

Francisco M Salzano1.   

Abstract

In any research of human populations, the classical principles of bioethics (respect for autonomy, non-maleficence, beneficence, proportionality between risks and benefits, and justice) should be strictly followed. The question of individual and/or community rights should also be considered, as well as some neglected rights, such as the right to benefit from progress in science and technology and the right to know the nature of the group's biological and cultural history; however, in their urge to assure rights, social researchers, bioethics commissions, non-governmental organizations, and community leaders are, in many cases, crossing the limits of good sense. DNA is sometimes interpreted as synonymous to demoniac, and there is a frequent behaviour that I could only describe using a neologism: geneticophobia. There is an irrational attitude against genetic studies aiming to unravel the biological history of a given people and to classify any genome population study as "racist". This behaviour should be opposed; science and the scientific study of humankind are the only way we have to reach the socially adequate objective of the maximum of happiness to the largest number of persons.

Entities:  

Year:  2015        PMID: 25575494      PMCID: PMC4524827          DOI: 10.1007/s12687-014-0211-3

Source DB:  PubMed          Journal:  J Community Genet        ISSN: 1868-310X


  6 in total

1.  RESEARCH IN POPULATION GENETICS OF PRIMITIVE GROUPS. REPORT OF A WHO SCIENTIFIC GROUP.

Authors:  G F EVANS
Journal:  World Health Organ Tech Rep Ser       Date:  1964

2.  Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel.

Authors:  Stephanie M Fullerton; Sandra S-J Lee
Journal:  BMC Med Ethics       Date:  2011-09-26       Impact factor: 2.652

3.  A model agreement for genetic research in socially identifiable populations.

Authors:  M W Foster; D Bernsten; T H Carter
Journal:  Am J Hum Genet       Date:  1998-09       Impact factor: 11.025

Review 4.  Human evolutionary genomics: ethical and interpretive issues.

Authors:  Joseph J Vitti; Mildred K Cho; Sarah A Tishkoff; Pardis C Sabeti
Journal:  Trends Genet       Date:  2012-01-20       Impact factor: 11.639

Review 5.  A review of international and UK-based ethical guidelines for researchers conducting nontherapeutic genetic studies in developing countries.

Authors:  Shormila Roy Choudhury; Leslie A Knapp
Journal:  Eur J Hum Genet       Date:  2006-01       Impact factor: 4.246

Review 6.  Evolving approaches to the ethical management of genomic data.

Authors:  Jean E McEwen; Joy T Boyer; Kathie Y Sun
Journal:  Trends Genet       Date:  2013-02-28       Impact factor: 11.639

  6 in total

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