Literature DB >> 25567294

Caregiver Preferences Regarding Personal Health Records in the Management of ADHD.

Sarah D Ronis1, Constance D Baldwin2, Scott McIntosh2, Kenneth McConnochie2, Peter G Szilagyi2, James Dolan2.   

Abstract

OBJECTIVE: Personal health records (PHRs) may address the needs of children with attention deficit hyperactivity disorder. Among parents, we assessed acceptance, barriers, and intentions regarding use of PHR for their children with attention deficit hyperactivity disorder.
METHODS: Survey of parents from 3 practices in Rochester, NY. Stepwise logistic regression analysis explored factors predicting respondents' intentions for future use of PHR, accounting for care coordination needs, caregiver education, socioeconomic status, and satisfaction with providers.
RESULTS: Of 184 respondents, 23% had used the PHR for their child, 82% intended future use. No difference was observed between users and nonusers regarding gender, age, race, or education. Users were more likely than nonusers to reside in the suburbs (P = .03). Caregivers were more likely to plan future use of the PHR if they felt engaged as partners in their child's care (adjusted odds ratio = 2.3, 95% confidence interval = 1.2, 4.5).
CONCLUSIONS: Parents are enthusiastic about PHRs. Future work should focus on engaging them as members of the health care team.
© The Author(s) 2015.

Entities:  

Keywords:  ADHD; health service needs; patient centered care; personal health records

Mesh:

Year:  2015        PMID: 25567294      PMCID: PMC4474750          DOI: 10.1177/0009922814565883

Source DB:  PubMed          Journal:  Clin Pediatr (Phila)        ISSN: 0009-9228            Impact factor:   1.168


  31 in total

1.  Electronic health record decision support and quality of care for children with ADHD.

Authors:  John Patrick T Co; Sarah A Johnson; Eric G Poon; Julie Fiskio; Sowmya R Rao; Jeanne Van Cleave; James M Perrin; Timothy G Ferris
Journal:  Pediatrics       Date:  2010-07-19       Impact factor: 7.124

2.  ADHD: clinical practice guideline for the diagnosis, evaluation, and treatment of attention-deficit/hyperactivity disorder in children and adolescents.

Authors:  Mark Wolraich; Lawrence Brown; Ronald T Brown; George DuPaul; Marian Earls; Heidi M Feldman; Theodore G Ganiats; Beth Kaplanek; Bruce Meyer; James Perrin; Karen Pierce; Michael Reiff; Martin T Stein; Susanna Visser
Journal:  Pediatrics       Date:  2011-10-16       Impact factor: 7.124

3.  Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

Authors:  Paul A Harris; Robert Taylor; Robert Thielke; Jonathon Payne; Nathaniel Gonzalez; Jose G Conde
Journal:  J Biomed Inform       Date:  2008-09-30       Impact factor: 6.317

4.  Childhood attention problems and socioeconomic status in adulthood: 18-year follow-up.

Authors:  Cédric Galéra; Manuel-Pierre Bouvard; Emmanuel Lagarde; Grégory Michel; Evelyne Touchette; Eric Fombonne; Maria Melchior
Journal:  Br J Psychiatry       Date:  2012-05-24       Impact factor: 9.319

5.  Predictors of adolescent functioning in girls with attention deficit hyperactivity disorder (ADHD): the role of childhood ADHD, conduct problems, and peer status.

Authors:  Steve S Lee; Stephen P Hinshaw
Journal:  J Clin Child Adolesc Psychol       Date:  2006-09

6.  Fragmented care for inner-city minority children with attention-deficit/hyperactivity disorder.

Authors:  James P Guevara; Chris Feudtner; Daniel Romer; Thomas Power; Ricardo Eiraldi; Snejana Nihtianova; Aracely Rosales; Janet Ohene-Frempong; Donald F Schwarz
Journal:  Pediatrics       Date:  2005-10       Impact factor: 7.124

7.  Public health in an era of personal health records: opportunities for innovation and new partnerships.

Authors:  Jason Bonander; Suzanne Gates
Journal:  J Med Internet Res       Date:  2010-08-10       Impact factor: 5.428

8.  Attention-deficit/hyperactivity disorder: increased costs for patients and their families.

Authors:  Andrine R Swensen; Howard G Birnbaum; Kristina Secnik; Maryna Marynchenko; Paul Greenberg; Ami Claxton
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2003-12       Impact factor: 8.829

9.  Acceptability of a personally controlled health record in a community-based setting: implications for policy and design.

Authors:  Elissa R Weitzman; Liljana Kaci; Kenneth D Mandl
Journal:  J Med Internet Res       Date:  2009-04-29       Impact factor: 5.428

10.  Experiences of care among Medicare beneficiaries with ESRD: Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey results.

Authors:  Charlotte A M Paddison; Marc N Elliott; Amelia M Haviland; Donna O Farley; Georgios Lyratzopoulos; Katrin Hambarsoomian; Jacob W Dembosky; Martin O Roland
Journal:  Am J Kidney Dis       Date:  2012-11-21       Impact factor: 8.860

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  1 in total

1.  Formative Evaluation of Care Nexus: a Tool for the Visualization and Management of Care Teams of Complex Pediatric Patients.

Authors:  Pallavi Ranade-Kharkar; Chuck Norlin; Guilherme Del Fiol
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16
  1 in total

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