Johannes Bükki1, Georg Nübling2, Stefan Lorenzl2. 1. Hospice Care DaSein, München, Germany Insitute for Interdisciplinary Research in Palliative Care, Paracelsus Medical University, Salzburg, Austria dr.j.buekki@hospiz-da-sein.de. 2. Insitute for Interdisciplinary Research in Palliative Care, Paracelsus Medical University, Salzburg, Austria Department of Palliative Care, Klinikum der Ludwig-Maximilians-Universität, Campus Großhadern, München, Germany Department of Neurology, Klinikum der Ludwig-Maximilians-Universität, Campus Großhadern, München, Germany.
Abstract
BACKGROUND: Progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are characterized by rapid deterioration and a fatal outcome. OBJECTIVES: Admission triggers, treatment efficacy, and care patterns. METHODS: Retrospective analysis of patients with PSP/CBD admitted to an inpatient specialized palliative care service. RESULTS: In 38 patients, there were 63 admissions for swallowing difficulties, falls, pain, impaired communication, cognitive/mood disturbances, respiratory symptoms, and infection. Mean length of stay was 11.6 days. Treatment response was variable. In 68%, of admission episodes there was stabilization or improvement, 75% were discharged home. In case of readmission, the mean interval has been 9.7 months. Time since diagnosis and admission triggers were not associated with outcome or death. CONCLUSION: Patients showed high symptom load contrasting with discharge rates and subsequent health care utilization. Brief multidisciplinary interventions might be helpful to preserve autonomy.
BACKGROUND:Progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are characterized by rapid deterioration and a fatal outcome. OBJECTIVES: Admission triggers, treatment efficacy, and care patterns. METHODS: Retrospective analysis of patients with PSP/CBD admitted to an inpatient specialized palliative care service. RESULTS: In 38 patients, there were 63 admissions for swallowing difficulties, falls, pain, impaired communication, cognitive/mood disturbances, respiratory symptoms, and infection. Mean length of stay was 11.6 days. Treatment response was variable. In 68%, of admission episodes there was stabilization or improvement, 75% were discharged home. In case of readmission, the mean interval has been 9.7 months. Time since diagnosis and admission triggers were not associated with outcome or death. CONCLUSION:Patients showed high symptom load contrasting with discharge rates and subsequent health care utilization. Brief multidisciplinary interventions might be helpful to preserve autonomy.
Authors: Martin Klietz; Amelie Tulke; Lars H Müschen; Lejla Paracka; Christoph Schrader; Dirk W Dressler; Florian Wegner Journal: Front Neurol Date: 2018-03-06 Impact factor: 4.003
Authors: Lukas Kellermair; Alexandra Fuchs; Christian Eggers; Petra Schwingenschuh; Mariella Kögl; Franz Fellner; Thomas Forstner; Stephanie Mangesius; Michael Guger; Gerhard Ransmayr Journal: J Neural Transm (Vienna) Date: 2021-07-22 Impact factor: 3.575
Authors: Brent Bluett; Alexander Y Pantelyat; Irene Litvan; Farwa Ali; Diana Apetauerova; Danny Bega; Lisa Bloom; James Bower; Adam L Boxer; Marian L Dale; Rohit Dhall; Antoine Duquette; Hubert H Fernandez; Jori E Fleisher; Murray Grossman; Michael Howell; Diana R Kerwin; Julie Leegwater-Kim; Christiane Lepage; Peter Alexander Ljubenkov; Martina Mancini; Nikolaus R McFarland; Paolo Moretti; Erica Myrick; Pritika Patel; Laura S Plummer; Federico Rodriguez-Porcel; Julio Rojas; Christos Sidiropoulos; Miriam Sklerov; Leonard L Sokol; Paul J Tuite; Lawren VandeVrede; Jennifer Wilhelm; Anne-Marie A Wills; Tao Xie; Lawrence I Golbe Journal: Front Neurol Date: 2021-07-01 Impact factor: 4.003