RATIONALE, AIMS AND OBJECTIVES: Case management is commonly used to provide health care for patients with multiple chronic conditions. However, the most effective form of team organization and the necessary support structures need to be identified. In this respect, patients' views could provide a valuable contribution to improving the design of these services. To analyse the experiences of patients with chronic diseases and of caregivers, in relation to health care services and mechanisms, and to identify means of modelling case management services. METHODS: The method used was a qualitative study based on life stories, and semi-structured interviews with 18 patients with complex chronic diseases and with their family caregivers, selected by purposeful sampling in primary health care centres in Andalusia (southern Spain) from 2009 to 2011. RESULTS: Three transition points were clearly identified: the onset and initial adaptation, the beginning of quality-of-life changes, and the final stage, in which the patients' lives are governed by the complexity of their condition. Health care providers have a low level of proactivity with respect to undertaking early measures for health promotion and self-care education. Care is fragmented into a multitude of providers and services, with treatments aimed at specific problems. CONCLUSIONS: Many potentially valuable interventions in case management, such as information provision, self-care education and coordination between services and providers, are still not provided.
RATIONALE, AIMS AND OBJECTIVES: Case management is commonly used to provide health care for patients with multiple chronic conditions. However, the most effective form of team organization and the necessary support structures need to be identified. In this respect, patients' views could provide a valuable contribution to improving the design of these services. To analyse the experiences of patients with chronic diseases and of caregivers, in relation to health care services and mechanisms, and to identify means of modelling case management services. METHODS: The method used was a qualitative study based on life stories, and semi-structured interviews with 18 patients with complex chronic diseases and with their family caregivers, selected by purposeful sampling in primary health care centres in Andalusia (southern Spain) from 2009 to 2011. RESULTS: Three transition points were clearly identified: the onset and initial adaptation, the beginning of quality-of-life changes, and the final stage, in which the patients' lives are governed by the complexity of their condition. Health care providers have a low level of proactivity with respect to undertaking early measures for health promotion and self-care education. Care is fragmented into a multitude of providers and services, with treatments aimed at specific problems. CONCLUSIONS: Many potentially valuable interventions in case management, such as information provision, self-care education and coordination between services and providers, are still not provided.
Authors: Dena Schulman-Green; Shelli L Feder; J Nicholas Dionne-Odom; Janene Batten; Victoria Jane En Long; Yolanda Harris; Abigail Wilpers; Tiffany Wong; Robin Whittemore Journal: J Fam Nurs Date: 2020-12-17 Impact factor: 3.818
Authors: Rosa Maria de Albuquerque Freire; Maria José Lumini Landeiro; Maria Manuela Ferreira Pereira da Silva Martins; Teresa Martins; Heloísa Helena Ciqueto Peres Journal: Rev Lat Am Enfermagem Date: 2016-08-08
Authors: Ana María Porcel-Gálvez; Sergio Barrientos-Trigo; Elena Fernández-García; Regina Allande-Cussó; María Dolores Quiñoz-Gallardo; José Miguel Morales-Asencio Journal: Int J Environ Res Public Health Date: 2020-11-17 Impact factor: 3.390