Literature DB >> 25529584

No expectation to share incidental findings in genomic research.

Anna Middleton1, Katherine I Morley2, Eugene Bragin3, Helen V Firth4, Matthew E Hurles3, Caroline F Wright3, Michael Parker5.   

Abstract

Mesh：

Year:  2014        PMID： 25529584     DOI： 10.1016/S0140-6736(14)62119-X

Source DB:  PubMed          Journal:  Lancet        ISSN： 0140-6736            Impact factor:   79.321


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  14 in total

1.  32 and you - genetic testing for dental disorders.

Authors:  M Harrison; C-J Bushell; M Irving
Journal:  Br Dent J       Date:  2018-05-25       Impact factor: 1.626

2.  Start me up: ways to encourage sharing of genomic information with research participants.

Authors:  Misha Angrist
Journal:  Nat Rev Genet       Date:  2015-08       Impact factor: 53.242

3.  The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results.

Authors:  Yvonne Bombard; Kyle B Brothers; Sara Fitzgerald-Butt; Nanibaa' A Garrison; Leila Jamal; Cynthia A James; Gail P Jarvik; Jennifer B McCormick; Tanya N Nelson; Kelly E Ormond; Heidi L Rehm; Julie Richer; Emmanuelle Souzeau; Jason L Vassy; Jennifer K Wagner; Howard P Levy
Journal:  Am J Hum Genet       Date:  2019-04-04       Impact factor: 11.025

4.  Genetic diagnosis of developmental disorders in the DDD study: a scalable analysis of genome-wide research data.

Authors:  Caroline F Wright; Tomas W Fitzgerald; Wendy D Jones; Stephen Clayton; Jeremy F McRae; Margriet van Kogelenberg; Daniel A King; Kirsty Ambridge; Daniel M Barrett; Tanya Bayzetinova; A Paul Bevan; Eugene Bragin; Eleni A Chatzimichali; Susan Gribble; Philip Jones; Netravathi Krishnappa; Laura E Mason; Ray Miller; Katherine I Morley; Vijaya Parthiban; Elena Prigmore; Diana Rajan; Alejandro Sifrim; G Jawahar Swaminathan; Adrian R Tivey; Anna Middleton; Michael Parker; Nigel P Carter; Jeffrey C Barrett; Matthew E Hurles; David R FitzPatrick; Helen V Firth
Journal:  Lancet       Date:  2014-12-17       Impact factor: 79.321

5.  Potential research participants support the return of raw sequence data.

Authors:  Anna Middleton; Caroline F Wright; Katherine I Morley; Eugene Bragin; Helen V Firth; Matthew E Hurles; Michael Parker
Journal:  J Med Genet       Date:  2015-05-20       Impact factor: 6.318

6.  Impact of Next Generation Sequencing on the Organization and Funding of Returning Research Results: Survey of Canadian Research Ethics Boards Members.

Authors:  Iris Jaitovich Groisman; Beatrice Godard
Journal:  PLoS One       Date:  2016-05-11       Impact factor: 3.240

7.  Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research.

Authors:  Emmanuelle Souzeau; Kathryn P Burdon; David A Mackey; Alex W Hewitt; Ravi Savarirayan; Margaret Otlowski; Jamie E Craig
Journal:  Transl Vis Sci Technol       Date:  2016-02-09       Impact factor: 3.283

8.  Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.

Authors:  Anna Middleton; Katherine I Morley; Eugene Bragin; Helen V Firth; Matthew E Hurles; Caroline F Wright; Michael Parker
Journal:  Eur J Hum Genet       Date:  2015-04-29       Impact factor: 4.246

9.  Informed consent for next-generation nucleotide sequencing studies: Aiding communication between participants and investigators.

Authors:  Rhonda G Kost; Stephen M Poppel; Barry S Coller
Journal:  J Clin Transl Sci       Date:  2017-02-07

Review 10.  The genetic landscape of Alzheimer disease: clinical implications and perspectives.

Authors:  Caroline Van Cauwenberghe; Christine Van Broeckhoven; Kristel Sleegers
Journal:  Genet Med       Date:  2015-08-27       Impact factor: 8.822
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