Literature DB >> 25529340

Sexual and reproductive health in cystic fibrosis: a life-course perspective.

Katherine B Frayman1, Susan M Sawyer2.   

Abstract

Adolescents and adults with cystic fibrosis now approach developmental milestones, including sexual and reproductive ones, at a similar time to their healthy peers. Yet, their sexual and reproductive health (SRH) is profoundly affected by their disease, and their SRH decisions can substantially affect their health. Navigation of SRH milestones in the context of cystic fibrosis needs education, guidance, and access to SRH services. In this Review, we discuss scientific knowledge of SRH in patients with cystic fibrosis across the life course and clinical practices for SRH within cystic fibrosis care. We identify crucial gaps in SRH education of patients and their access to resources and then present a model of care for provision of developmentally appropriate SRH education and care within cystic fibrosis services across the life course. This model emphasises the central importance of the cystic fibrosis team and service links to primary and specialist SRH care.
Copyright © 2015 Elsevier Ltd. All rights reserved.

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Year:  2014        PMID: 25529340     DOI: 10.1016/S2213-2600(14)70231-0

Source DB:  PubMed          Journal:  Lancet Respir Med        ISSN: 2213-2600            Impact factor:   30.700


  7 in total

1.  Difficult conversations: Discussing prognosis with children with cystic fibrosis.

Authors:  Julia Gray Farber; Mary G Prieur; Christine Roach; Rosemary Shay; Michelle Walter; Drucy Borowitz; Elisabeth P Dellon
Journal:  Pediatr Pulmonol       Date:  2018-03-12

2.  Attitudes and Decision Making Related to Pregnancy Among Young Women with Cystic Fibrosis.

Authors:  Traci M Kazmerski; Theresa Gmelin; Breonna Slocum; Sonya Borrero; Elizabeth Miller
Journal:  Matern Child Health J       Date:  2017-04

3.  What young people with spina bifida want to know about sex and are not being told.

Authors:  C Akre; A Light; L Sherman; J Polvinen; M Rich
Journal:  Child Care Health Dev       Date:  2015-08-31       Impact factor: 2.508

4.  Developing Sexual and Reproductive Health Educational Resources for Young Women with Cystic Fibrosis: A Structured Approach to Stakeholder Engagement.

Authors:  Traci M Kazmerski; Elizabeth Miller; Gregory S Sawicki; Phaedra Thomas; Olga Prushinskaya; Eliza Nelson; Kelsey Hill; Anna Miller; S Jean Emans
Journal:  Patient       Date:  2019-04       Impact factor: 3.883

Review 5.  Optimizing sexual and reproductive health across the lifespan in people with cystic fibrosis.

Authors:  Natalie E West; Traci M Kazmerski; Jennifer L Taylor-Cousar; Vin Tangpricha; Kelsie Pearson; Moira L Aitken; Raksha Jain
Journal:  Pediatr Pulmonol       Date:  2021-10-08

6.  Sex and Relationships Education for Individuals with Cystic Fibrosis: A Service-Based Approach.

Authors:  Emily Norris; Samantha Phillips; Catherine Butler; Kirsty James
Journal:  Sex Disabil       Date:  2018-10-22

7.  Engaging Stakeholders in the Development of a Reproductive Goals Decision AID for Women with Cystic Fibrosis.

Authors:  Olivia M Stransky; Molly Pam; Sigrid L Ladores; Mehret Birru Talabi; Sonya Borrero; Emily M Godfrey; Andrea H Roe; Gregory S Sawicki; Lisa C Zuckerwise; Sheila Mody; Laura Mentch; Ashley Deal; Raelynn O'Leary; Jennifer L Taylor-Cousar; Raksha Jain; Traci M Kazmerski
Journal:  J Patient Exp       Date:  2022-02-01
  7 in total

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