Literature DB >> 25486707

Regulating genetic information--exploring the options in legal theory.

Aisling de Paor.   

Abstract

Ground-breaking genetic discoveries and technological advances have introduced a new world of genetic exploration, and technological advances have facilitated the discovery of the genetic basis of a myriad of diseases. Genetic testing promises to potentially revolutionise health care and offer the potential ofpersonalised medicine. Genetic technology may also offer the means to detect potential future disabilities. In light of rapid advances in genetic science and technology, questions arise as to whether an appropriate framework exists to protect the interests of individuals, prevent the misuse of genetic information by interested third parties, and also to encourage further advances in genetic science. In consideration of rapidly advancing genetic technologies and the ethical and legal concerns that arise, this article examines the regulation of genetic information, primarily from a theoretical perspective. It explores the preferable mode of regulation and choice of regulatory frameworks in legal theory, including non-discrimination, privacy and property.

Mesh:

Year:  2014        PMID: 25486707     DOI: 10.1163/15718093-12341335

Source DB:  PubMed          Journal:  Eur J Health Law        ISSN: 0929-0273


  1 in total

Review 1.  Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation.

Authors:  Mahsa Shabani; Pascal Borry
Journal:  Eur J Hum Genet       Date:  2017-11-29       Impact factor: 4.246

  1 in total

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