Literature DB >> 25485252

Characteristics of Belgian "life-ending acts without explicit patient request": a large-scale death certificate survey revisited.

Kenneth Chambaere1, Jan L Bernheim1, James Downar2, Luc Deliens3.   

Abstract

BACKGROUND: "Life-ending acts without explicit patient request," as identified in robust international studies, are central in current debates on physician-assisted dying. Despite their contentiousness, little attention has been paid to their actual characteristics and to what extent they truly represent nonvoluntary termination of life.
METHODS: We analyzed the 66 cases of life-ending acts without explicit patient request identified in a large-scale survey of physicians certifying a representative sample of deaths (n = 6927) in Flanders, Belgium, in 2007. The characteristics we studied included physicians' labelling of the act, treatment course and doses used, and patient involvement in the decision.
RESULTS: In most cases (87.9%), physicians labelled their acts in terms of symptom treatment rather than in terms of ending life. By comparing drug combinations and doses of opioids used, we found that the life-ending acts were similar to intensified pain and symptom treatment and were distinct from euthanasia. In 45 cases, there was at least 1 characteristic inconsistent with the common understanding of the practice: either patients had previously expressed a wish for ending life (16/66, 24.4%), physicians reported that the administered doses had not been higher than necessary to relieve suffering (22/66, 33.3%), or both (7/66, 10.6%).
INTERPRETATION: Most of the cases we studied did not fit the label of "nonvoluntary life-ending" for at least 1 of the following reasons: the drugs were administered with a focus on symptom control; a hastened death was highly unlikely; or the act was taken in accordance with the patient's previously expressed wishes. Thus, we recommend a more nuanced view of life-ending acts without explicit patient request in the debate on physician-assisted dying.

Entities:  

Year:  2014        PMID: 25485252      PMCID: PMC4257563          DOI: 10.9778/cmajo.20140034

Source DB:  PubMed          Journal:  CMAJ Open        ISSN: 2291-0026


  31 in total

1.  Opioid use in last week of life and implications for end-of-life decision-making.

Authors:  A Thorns; N Sykes
Journal:  Lancet       Date:  2000-07-29       Impact factor: 79.321

2.  Sedative use in the last week of life and the implications for end-of-life decision making.

Authors:  Nigel Sykes; Andrew Thorns
Journal:  Arch Intern Med       Date:  2003-02-10

3.  The use of drugs to hasten death.

Authors:  Luc Deliens; Linda Ganzini; Robert Vander Stichele
Journal:  Pharmacoepidemiol Drug Saf       Date:  2004-02       Impact factor: 2.890

4.  Accusations of murder and euthanasia in end-of-life care.

Authors:  Lewis Cohen; Linda Ganzini; Christine Mitchell; Stephen Arons; Elizabeth Goy; James Cleary
Journal:  J Palliat Med       Date:  2005-12       Impact factor: 2.947

Review 5.  The empirical slippery slope from voluntary to non-voluntary euthanasia.

Authors:  Penney Lewis
Journal:  J Law Med Ethics       Date:  2007       Impact factor: 1.718

6.  Physician-assisted deaths under the euthanasia law in Belgium: a population-based survey.

Authors:  Kenneth Chambaere; Johan Bilsen; Joachim Cohen; Bregje D Onwuteaka-Philipsen; Freddy Mortier; Luc Deliens
Journal:  CMAJ       Date:  2010-05-17       Impact factor: 8.262

7.  Reporting end-of-life practice: can we trust doctors to be honest?

Authors:  H Draper; J Ives; H Pall; S Smith; S Damery; S Wilson
Journal:  Palliat Med       Date:  2009-07-30       Impact factor: 4.762

8.  Unrestricted opiate administration for pain and suffering at the end of life: knowledge and attitudes as barriers to care.

Authors:  Iris Cohen Fineberg; Neil S Wenger; Katherine Brown-Saltzman
Journal:  J Palliat Med       Date:  2006-08       Impact factor: 2.947

9.  Life-terminating acts without explicit request of patient.

Authors:  L Pijnenborg; P J van der Maas; J J van Delden; C W Looman
Journal:  Lancet       Date:  1993-05-08       Impact factor: 79.321

10.  End-of-life decision-making in six European countries: descriptive study.

Authors:  Agnes van der Heide; Luc Deliens; Karin Faisst; Tore Nilstun; Michael Norup; Eugenio Paci; Gerrit van der Wal; Paul J van der Maas
Journal:  Lancet       Date:  2003-08-02       Impact factor: 79.321

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  4 in total

1.  Between palliative care and euthanasia.

Authors:  Tom Mortier; René Leiva; Raphael Cohen-Almagor; Willem Lemmens
Journal:  J Bioeth Inq       Date:  2015-04-22       Impact factor: 1.352

2.  Controversies surrounding continuous deep sedation at the end of life: the parliamentary and societal debates in France.

Authors:  Kasper Raus; Kenneth Chambaere; Sigrid Sterckx
Journal:  BMC Med Ethics       Date:  2016-06-29       Impact factor: 2.652

3.  End-of-life decision-making across cancer types: results from a nationwide retrospective survey among treating physicians.

Authors:  Mariëtte N Verkissen; Dirk Houttekier; Joachim Cohen; Rik Schots; Kenneth Chambaere; Luc Deliens
Journal:  Br J Cancer       Date:  2018-03-29       Impact factor: 7.640

4.  Palliative care professionals' willingness to perform euthanasia or physician assisted suicide.

Authors:  Julia Zenz; Michael Tryba; Michael Zenz
Journal:  BMC Palliat Care       Date:  2015-11-14       Impact factor: 3.234

  4 in total

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